Demand the DX you deserve. Demand to see the doctors who can help, don't let them sweep you under the rug. Speak up for yourself.
I was there in 1980, doc. most likely is retired, He was actually named Dr. Mayo if you can belive that. He was in dermotology, as I had lost all my hair. was DX with auto immune disease called alopecia universalis, an inbalance of T @ b lymphocytes. The flight to fight responce is always in the on position, and these cells don't know who to fight. They set me up in a trial study in Columbia university medical center, two hours from my home of Quincy Illinois. Mayo would not accept me into that program unless I lived up there.
The only thing I didn't like up there, was the DX given to me while I sat in a hospital gown, bald and naked. They could have given me the chance to dress and feel more human. I was very vunerable, both physically and emotionally. Who are you seeing.? I can look him up, and see what kind of reputation he has. Also what Dept. are you in? Don't give up, get ticked. I will pray for you. will be on line tomorrow. What tests have they done, and what are they looking for? take care, and have hope, ginnie

Reading on my kindle. It is easy on the eyes and you can adjust the brightness

Rugger,

Can you perhaps get into drawing, or even doodling --- perhaps playing with writing bits of haiku or a little poetry?
Or allow yourself play with tempera paint and paintbrushes ?

Any of the above can be a mind-soothing sort of activity. Potentially also can be psychologically therapeutic.

Hoping for you a good recovery, Gal.