Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-03-2013, 02:10 AM #6
Kristara's Avatar
Kristara Kristara is offline
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Join Date: Aug 2011
Location: Brooksville Florida (central)
Posts: 55
10 yr Member
Kristara Kristara is offline
Junior Member
Kristara's Avatar
 
Join Date: Aug 2011
Location: Brooksville Florida (central)
Posts: 55
10 yr Member
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I consider a full recovery from TBI/PCS to be when you understand how to play the cards you were dealt, your coping skills will get better, you threshold of headache pain will improve, you learn ways to trigger your memory easier, you'll accept that you are no longer the old you, that's when you're 100% again, its 100% a different you though. Not sure the extent of your symptoms but I'm 7yrs 1mo into my severe TBI and I still have many problems (memory, anxiety, ADD, 10-15 day/mo headaches, sleeping for 24hrs straight, not sleeping for 4 days straight, depression, the list goes on) you learn to adapt honestly. The worst one are the headaches, I hope the best for you with those. You will improve greatly over time but never think you are cured or in the clear, there's always the chance of set backs and when they come they seem to hit fast and hard, not to be a buzz-kill about it but you should know it is a possibility. The first time I had a relapse in symptoms I completely broke down mentally and emotionally, I couldn't believe after all the work, doctors, meds, effort i put in I felt as bad as I did in the beginning its devastating especially if you don't know that it can happen at any point. Again I don't know about your injury, your symptoms or severity but that's my personal experience with my head injury (i was a 6 or 7 on the Glasgow Coma Scale)
I hope the best for you on your journey! Good luck with your symptoms, if they persist look on this site for ways to reduce/ deal with them. I find the community of TBI/PCS people who've been dealing with the same issues more helpful than doctors these days
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**KRISTARA**
Let the sun shine and everything will be fine

Severe TBI with 3 bleeds, broken neck (C-2), comatose for 3 days Glasgow score of 6 from a school bus t-boning my door at 60mph in December of 2004. Extraction time took over an hour, over a week just in ICU, original expectation was permanent vegetative state.
Numerous re-injuries including being rear-ended, flipping suv, and the latest in 2011 from being slammed head first on tile floor.
Still having major issues with: anxiety, depression, memory short and long term, sleeping including insomnia and hypersomnia, severe headaches 10-15 days a month, severe neck tension and pain that can be easily agitated, comprehension, problems focusing, easily distracted, irritability, skewed judgement, constantly overwhelmed, mood swings, confusion, brain fog etc etc
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