Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 12-29-2012, 01:34 AM #1
mpshube mpshube is offline
Junior Member
 
Join Date: Nov 2012
Posts: 11
10 yr Member
mpshube mpshube is offline
Junior Member
 
Join Date: Nov 2012
Posts: 11
10 yr Member
Confused Tips or advice.... please, please help me!

My mTBI occurred when I hit the back of my head on the ice while playing hockey in late October of this year [2012].

2.5 months after the incident, the headaches are beginning to subside, but I'm still suffering from significant cognitive deficits, and an inability to concentrate, and I just feel different (this is perhaps the most disturbing symptom). My anxiety and depression have been severe. At times I feel so detached from my normal self. I'm having a hard time coping with this.

Sometimes, actually, I've felt almost 100%, but the littlest things will aggrivate symptoms. Minor disturbances, like walking, for example, are apt to bring on a headache or dazed feeling, or make me nauseous. Is this normal? I've taken to walking on my toes to prevent this.

It seems that everything I do aggravates my symptoms. I've confined myself to a very narrow range of activity, and it's killing me. I've stopped most reading and computer use. No T.V. But it's been 2 months and I'm getting restless. I don't want to resign myself to this limited lifestyle. No more hockey--ok, fine. But man, I've got to go for a run, read a book, something... but I don't want to hurt myself, or make my condition worse. That's what seems to happen when I do any of these things. Really struggling, and I'd appreciate any support or guidance.

I'm taking supps (fish oil, Bcomplex, multi) and started meds (SSRI) for the anxiety. Books on tape have been a helpful, tolerable activity. There's a great version of David Copperfield at *** for those who are interested (book club, anyone?). Met with a Neurologist--wasn't particularly helpful. He actually told me that if I get a headache or other symptoms while performing an activity I should just ignore it and keep doing what I was doing. Is that wise advice?

This is one of the most difficult experiences I've endured. Any tips, advice, or encouragement will be readily received and much appreciated.

Last edited by mrsD; 12-29-2012 at 02:38 AM. Reason: removing link per NT guidelines for new posters
mpshube is offline   Reply With QuoteReply With Quote

advertisement
Old 12-29-2012, 11:31 AM #2
greenfrog greenfrog is offline
Member
 
Join Date: May 2011
Posts: 378
10 yr Member
greenfrog greenfrog is offline
Member
 
Join Date: May 2011
Posts: 378
10 yr Member
Default

Physical and mental rest, good nutrition, stay optimistic and patient (clichéd but true). It really does take time. I went from feeling about 25-30% after the injury to 65-70% (lasted about a year) to 70-75% (the next six months or so) to probably 80-85% (my current state). I am doing way better than I was.

My doctor has been great - no BS. His advice: "stay sub-threshold of symptoms as much as possible." If you're triggering symptoms, you need to back off.

In my case, this progression has taken over a year and a half, and I am continuing to make gains.

Most people tend to recover more quickly, but there is a lot of variability in recovery time from MTBI. IMO there isn't a lot you can do to accelerate the recovery process, although you can slow it down by overdoing it. That said, setbacks go with the territory and you shouldn't get down on yourself when they happen. Try to use them as data points to help you be smarter in the future and keep aiming to stay sub-threshold of symptoms.

Last advice: exercise caution during your recovery (and beyond). No more head hits (this might be the most important advice of all). No jarring. Be aware that your judgment may be impaired at times (especially in stressful situations) and learn some coping strategies to ensure you stay safe.
greenfrog is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mokey (12-31-2012), ptcabe (01-03-2013), Theta Z (12-30-2012)
Old 12-29-2012, 02:26 PM #3
Abel_in_Fl Abel_in_Fl is offline
Junior Member
 
Join Date: Oct 2012
Posts: 51
10 yr Member
Abel_in_Fl Abel_in_Fl is offline
Junior Member
 
Join Date: Oct 2012
Posts: 51
10 yr Member
Default

I can relate to the feeling different and agree it is the most disturbing symptom, I could almost deal with all the other problems if I didn't feel like it changed me as a person

people here tend to say that you won't ever be the same after this injury but then I see where people make recovery's and feel normal again so im not sure whats gonna happen

I guess all we can do is wait and see what the future holds for us
Abel_in_Fl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mokey (12-31-2012)
Old 12-29-2012, 09:47 PM #4
MsRriO's Avatar
MsRriO MsRriO is offline
Member
 
Join Date: Dec 2012
Location: Saskatchewan
Posts: 237
10 yr Member
MsRriO MsRriO is offline
Member
MsRriO's Avatar
 
Join Date: Dec 2012
Location: Saskatchewan
Posts: 237
10 yr Member
Default

Hi there!


I don't have magic advice. I just thought I'd tell you that our injuries have a very close timeline to the other and I've been told I'm early in my recovery... And I recognize my own anxiety and impatience within your post, which people have admonished me for, but I feel for you.


The despair of anxiety crushes my hope sometimes too, but I've made a commitment to myself to work through it, because essentially, what else can one do?


My best friend is an ice pack. My enemy is unrealistic expectation. I make an effort to spend the most time with the best friend, especially after a sighting of my enemy.


I hope you have some relief of symptoms soon. There's great advice in the forums, worth browsing. I don't know if it helps, but I also hope you feel less alone and frightened. There is hope and healing in store for us!
MsRriO is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark in Idaho (12-30-2012), Mokey (12-31-2012)
Old 12-30-2012, 01:12 AM #5
Mokey Mokey is offline
Member
 
Join Date: Oct 2012
Location: canada
Posts: 553
10 yr Member
Mokey Mokey is offline
Member
 
Join Date: Oct 2012
Location: canada
Posts: 553
10 yr Member
Default

That is how I was injured too...got My skates pulled out from under me by someone and my head bounced a few times (with helmet). 15 months ago....it can be a long road back but there is progress. It sounds as you are still in the acute phase. Rest, rest, rest. Dark rooms, no running, etc.

Lots of advice here on good tips.....neuro opthamology is very important. Vestibular therapist?

It does get better slowly but it is a difficult road. Hang in there. You will make it.

Ps. Santa brought my kids an air hockey table and I can play a few games. This is great progress!
Mokey is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Theta Z (12-30-2012)
Old 12-30-2012, 03:35 AM #6
mpshube mpshube is offline
Junior Member
 
Join Date: Nov 2012
Posts: 11
10 yr Member
mpshube mpshube is offline
Junior Member
 
Join Date: Nov 2012
Posts: 11
10 yr Member
Default

Quote:
Originally Posted by Mokey View Post
That is how I was injured too...got My skates pulled out from under me by someone and my head bounced a few times (with helmet). 15 months ago....it can be a long road back but there is progress. It sounds as you are still in the acute phase. Rest, rest, rest. Dark rooms, no running, etc.
Do I really have to rest in a dark room? Frankly, I can't limit my lifestyle to that extent. I work at a restaurant, which requires me to be on my feet several hours a day. In the meantime, when I can rest, I find it difficult to just lie there without doing anything. I can only sleep at night, for the most part, and I find it very difficult to just not do anything. I'd like to at least read a book or be on the computer a bit. How much do you guys think I'm delaying my recovering by not granting myself total rest? I've really toned down my activity level, but I still get on the computer for an hour or two a day, and I find it hard to resist picking up a book.
mpshube is offline   Reply With QuoteReply With Quote
Old 12-30-2012, 03:38 AM #7
mpshube mpshube is offline
Junior Member
 
Join Date: Nov 2012
Posts: 11
10 yr Member
mpshube mpshube is offline
Junior Member
 
Join Date: Nov 2012
Posts: 11
10 yr Member
Default

Quote:
Originally Posted by MsRriO View Post
Hi there!


I don't have magic advice. I just thought I'd tell you that our injuries have a very close timeline to the other and I've been told I'm early in my recovery... And I recognize my own anxiety and impatience within your post, which people have admonished me for, but I feel for you.


The despair of anxiety crushes my hope sometimes too, but I've made a commitment to myself to work through it, because essentially, what else can one do?


My best friend is an ice pack. My enemy is unrealistic expectation. I make an effort to spend the most time with the best friend, especially after a sighting of my enemy.


I hope you have some relief of symptoms soon. There's great advice in the forums, worth browsing. I don't know if it helps, but I also hope you feel less alone and frightened. There is hope and healing in store for us!
MsRriO,

Thanks so much for the support. You sound so sincere, and I really do feel less alone. I'm not looking for magic advice, as much as I wish it existed...hang in there, and I will too.
mpshube is offline   Reply With QuoteReply With Quote
Old 12-30-2012, 03:58 AM #8
mpshube mpshube is offline
Junior Member
 
Join Date: Nov 2012
Posts: 11
10 yr Member
mpshube mpshube is offline
Junior Member
 
Join Date: Nov 2012
Posts: 11
10 yr Member
Default

I guess one of the things that would help me is for someone to shoot straight with me: how much am I impeding my recovery by not giving myself complete, and total rest? Am I actually hurting myself more? Is there a point at which recovery is less likely/less likely to be as complete? For example, if I were to give myself a good week's rest a month from now, would it be as helpful to my brain's recovery as if I were to do that now? As I mentioned, I work at a restaurant where I have to be on my feet and moving for up to 8 hours a night. I'm certainly not in the financial position to quit my job, but I might be able to take a week off at some point in the next few weeks... Will I ever get better if I don't rest completely? Or can I still make progress even under my current routine?
mpshube is offline   Reply With QuoteReply With Quote
Old 12-30-2012, 12:12 PM #9
Eowyn's Avatar
Eowyn Eowyn is offline
Member
 
Join Date: Jun 2011
Location: Sunset Coast, USA
Posts: 711
10 yr Member
Eowyn Eowyn is offline
Member
Eowyn's Avatar
 
Join Date: Jun 2011
Location: Sunset Coast, USA
Posts: 711
10 yr Member
Default

Working in a busy restaurant setting is almost certainly hurting you. For many people, going to a restaurant is one of the last things we are able to do successfully again, and it often causes relapses.

Taking a week off would help. Even if you can't take more time off than that, is it possible for you to be reassigned to a less stressful assignment within the restaurant? For example, could you host instead of waiting tables (having to remember orders, etc?)? Or could you bus tables? I don't know the pay differential, but the stress differential could make a big difference for your brain.

Basically, what has happened to your brain is that the things your brain used to be able to do automatically it now has to focus on to be able to do. You are essentially having to re-learn or re-build those pathways in your brain, so it takes lots of mental and physical energy to do your ordinary things.

You do need to have activity, but you need to have a lot less of it than you normally do.

Does this make sense?

I will make a separate post showing natural lifestyle things I learned to optimize my brain health.
__________________
mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

.
Eowyn is offline   Reply With QuoteReply With Quote
Old 12-30-2012, 12:15 PM #10
Eowyn's Avatar
Eowyn Eowyn is offline
Member
 
Join Date: Jun 2011
Location: Sunset Coast, USA
Posts: 711
10 yr Member
Eowyn Eowyn is offline
Member
Eowyn's Avatar
 
Join Date: Jun 2011
Location: Sunset Coast, USA
Posts: 711
10 yr Member
Default

Here are some natural things you can do to strengthen the brain:

- Eat a whole foods (clean eating) diet high in omega-3s and tryptophan. Take 3 tbsp of ground flax seed in juice every morning for a complete daily dose of both and then whatever you eat during the day is bonus. I also switched to a vegan diet, which is optimal for getting the nutrients you need across the blood-brain barrier.

- Be sure to stay well hydrated. Drink half your body weight in ounces of water daily (i.e. if you weigh 100lbs, drink 50 oz. of water).

- There are also hot and cold water treatments you can do to increase circulation to the brain. In the shower, alternate 3 minutes of hot water with 1 minute of cold for at least 3 cycles. The greater the temperature contrast, the greater the benefit (just be sure not to scald yourself). Don't get the very hot water on your head, but do get it on your shoulders. Cold water is okay to get on your head. Always end on cold.

- Sunlight through the skin is good for vitamin D and through the eyes is good for melatonin (sleeping at night).

- Listening to baroque music (such as Bach) can help strengthen frontal lobe function (provided it does not increase symptoms).

- Exercise (even light exercise such as walking) can reduce harmful biochemicals and release endorphins. Again, be sure you are keeping it gentle enough to avoid symptoms.

- Avoid caffeine, alcohol, tobacco, and other non-prescribed drugs.

- Avoid or strictly limit television, video games, smart phone, and computer usage.

- Get fresh air daily and take 10-20 minutes specifically to do deep diaphragmatic breathing.

- Try to have regular times for sleeping and waking.

- Connect with spiritual practice, even something as small as making a list of 3-5 things you are grateful for.

These things will strengthen the brain naturally and shouldn't interfere with any medications or treatments your doctors want to use.

Medically speaking, the two things that helped me the most were having my vision evaluated for vision therapy and seeing a physiatrist. These links may help you find practitioners in your area.

http://www.braininjuries.org
http://www.nora.cc
http://www.aapmr.org/patients/findph...s/default.aspx
__________________
mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

.
Eowyn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
cyclecrash (12-30-2012), ginnie (12-30-2012), greenfrog (12-30-2012), Mokey (12-30-2012)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Any Useful Tips bmatz25 Spinal Disorders & Back Pain 15 12-16-2012 10:22 AM
Tips for a Bad Day. SpaceCadet Traumatic Brain Injury and Post Concussion Syndrome 8 02-07-2012 04:04 PM
Neuropathy moving into hands - advice or tips please kreink Peripheral Neuropathy 16 02-23-2010 08:40 PM
Organization tips? braingonebad Social Chat 14 01-23-2010 10:07 AM
Tips for thickening myst Gluten Sensitivity / Celiac Disease 3 11-06-2006 09:45 PM


All times are GMT -5. The time now is 08:32 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.