Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 12-30-2012, 02:16 PM #11
Toddwriter Toddwriter is offline
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Whatever feels strange is the new normal. Be smarter than me — don't fight it. Yield. Walk until head hurts — track time — try to add 30 secs next day. Ask friends and family to visit for short bursts — this is the one thing I needed more of. Look into a visualization tape offered on TBI — it really helped me thru toughest times.
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Old 12-30-2012, 11:52 PM #12
Mokey Mokey is offline
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I totally empathise. I am (was) an energizer bunny.....going a million miles an hour my whole life amd quite enjoying it. I don't nap.....even with this injury. But i do know all of the science literature says rest is important for healing, bnot just for feeling better. And there is new researchthat suggests that even a few weeks of total rest a year or two into an injury can still be beneficial.

I think your job must be so difficult. I don't even go into restaurants because of the noise!!!! I hope you get some quiet time.

I think what makes this type of injury difficult (so may things,actually is that intellectually we are usually completely intact with our same desire for intellectual and physical activity....but it hurts like hell to do it. I think a lot of us do things we shouldn't.....i have a massive headache right now but want to read tomorrow's newspapers on-line tonight!!!!

Have no idea if I will get better....Like really better. But I do see progress and on good days that keeps me going! Read some posts from others who say how good they feel to encourage yourself. Hang in there.
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Old 01-02-2013, 01:21 AM #13
kayley kayley is offline
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Quote:
Originally Posted by mpshube View Post
My mTBI occurred when I hit the back of my head on the ice while playing hockey in late October of this year [2012].

2.5 months after the incident, the headaches are beginning to subside, but I'm still suffering from significant cognitive deficits, and an inability to concentrate, and I just feel different (this is perhaps the most disturbing symptom). My anxiety and depression have been severe. At times I feel so detached from my normal self. I'm having a hard time coping with this.

I Know EXACTLY what you meet about feeling not like yourself, or feeling detatched. It's hard to take this advice, but as you progress, that feeling goes away. It's a really unsettling feeling but just remember it is temporary

Sometimes, actually, I've felt almost 100%, but the littlest things will aggrivate symptoms. Minor disturbances, like walking, for example, are apt to bring on a headache or dazed feeling, or make me nauseous. Is this normal? I've taken to walking on my toes to prevent this.

It seems that everything I do aggravates my symptoms. I've confined myself to a very narrow range of activity, and it's killing me. I've stopped most reading and computer use. No T.V. But it's been 2 months and I'm getting restless. I don't want to resign myself to this limited lifestyle. No more hockey--ok, fine. But man, I've got to go for a run, read a book, something... but I don't want to hurt myself, or make my condition worse. That's what seems to happen when I do any of these things. Really struggling, and I'd appreciate any support or guidance.

As boring as it sounds, the restricted activity is THE best thing you could do for your health. I made the mistake of continuing going to school and work (not sports) right after my concussion. BAD IDEA, I think it set me back majorly. My doc gave me an idea to go by. If your symptoms are a chart, and your symptom line is straight across, the idea is that your activities should hover close to that line, but never go above. As you keep touching that baseline between ok and too far, the line becomes higher on the chart. It helps me when I am deciding on activities to do in a day.

I'm taking supps (fish oil, Bcomplex, multi) and started meds (SSRI) for the anxiety. Books on tape have been a helpful, tolerable activity. There's a great version of David Copperfield at *** for those who are interested (book club, anyone?). Met with a Neurologist--wasn't particularly helpful. He actually told me that if I get a headache or other symptoms while performing an activity I should just ignore it and keep doing what I was doing. Is that wise advice?

I wouldn't take his advice on pushing through activities. My last doc, my physiotherapist both told me about the baseline thing I mentioned above, I am a good example of why pushing through is not wise, it sets you back farther. That being said, not all activities can be ignored, but limitations should be in place once you become symptomatic.

This is one of the most difficult experiences I've endured. Any tips, advice, or encouragement will be readily received and much appreciated.
I hope my advice has helped you, I know how difficult this is. If you ever feel like it is not getting better or it is taking forever, mine was oct 29, 2011 and I'm still not 100%, but a lot closer in the last 6 months than I have ever been. Lots of people on here will tell you, it takes lots of patience and time, but you will heal Good luck!
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