Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

 
 
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Old 01-03-2013, 07:03 PM #1
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SpaceCadet SpaceCadet is offline
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Join Date: Oct 2011
Location: Las Vegas, NV
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SpaceCadet SpaceCadet is offline
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Join Date: Oct 2011
Location: Las Vegas, NV
Posts: 756
10 yr Member
Default 19 months and still progressing in the wrong direction.

19 months post-injury with no lasting improvements.

This is sooooo confusing....I really dont know what to do anymore. I cant seem to put together more than one or two "good days". Ive gotten to the point where I cant even schedule doctor's appointments because Im struggling so much with my communication. I feel like I dont know what to say and I talk over the person on the phone. Every once in awhile I will be able to hold a conversation but then I will feel like I dont know to end ot properly. My memory is destroyed....UGH...Absolutely destroyed. Word finding has gone from simple word finding difficulties to hardly being able to put a proper sentence together. My social life is diminished....I noticed my FB friends dropped from 200+ to 180 or so. People are deleting me because I dont even talk to them. Its not that I dont want to talk to them, I just dont want to embarrass myself or I dont know how to hold a conversation anymore.

I wake up disoriented everyday. You could ask me who the president is or what year it is and I literally will not be able to answer you. It takes about 10-20 min to gain my bearings.

Every time I find something that helps, such as playing a game or having a new attitude about my condition, it only works for a very short time before it starts making me worse.

I used to be able to relate to anyone. I could always hold a conversation about anything and make people laugh. Even after the injury. This started to fade away as the months went by and now it's gotten really "effing" bad.

I now have physical symptoms that werent there before. It feels weird to walk...its like my brain is sending the wrong signals to my body parts. I had trouble filling out a simple form yesterday. My writing is jacked up....I was mispelling words, screwing up punctuation, the pen felt weird in my hand and my writing was hardly legible. This is not me and wasnt me even immediately after the injury. This is new stuff that wasnt there before.

I sound like an effing cry baby....I know...but this is the only place I could vent and cry out for help and people will actually listen or relate.

My recovery has been so much different than everyone else. Im happy for everyone making progress and feeling a little better as the months go by...but its depressing to know there isnt very many people out there who is experiencing what Im going through now. I just want to get better....My son needs me at 1000 percent.

Ive tried just about everything. What now?
__________________
What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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