Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 03-03-2013, 10:25 AM #21
Concussion Concussion is offline
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Concussion Concussion is offline
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Join Date: Aug 2012
Location: East Coast
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Folks,

Mark has a point here.

You have to one-on-one with everyone in this time of recovery.

When things go bad with you, you have to cut ties - be off to self, limit ties with those things that are overstimuli.

When I worked in Neurotrauma, as we place our patients into the "mainstream" of care, we constantly battled the hospital system, to place them in the suites of rooms for care, for step-down, they needed one-on-one care, not general rooms, not constant in-flow of people with this or that intrusion of general runs of activities.

One nurse, one aide, one tech, one therapist - all things revolving around their needs, and slowly bringing in more activities as the "team" saw fit with the patient evolving into acceptance........... you know how busy a general hospital room can be, well you don't want that type of thing around you at home when you are having problems with eveything helter-skelter in your head.

So, you have to set limits, and set rules - and even be tough with yourself about those rules...........your recovery depends on it.

Quiet, Rest, easy does it.......the family will learn, the kids will appreciate 'their" time with mom/dad, as they learn to accept your needs.

Our recovery cannot be rushed. Even though we would love nothing better than getting this over with.

I still, after 2.5 years, still only set aside time to go on short shopping trips with the wife, otherwise, Im inside, or short walks with my dogs, and no real stopping and talking with neighborhood friends...and few phone conversations.
__________________

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Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses.
Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings.
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"Thanks for this!" says:
Mark56 (03-16-2013)
Old 03-16-2013, 06:07 PM #22
Sara from Minnesota Sara from Minnesota is offline
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Sara from Minnesota Sara from Minnesota is offline
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Quote:
Originally Posted by Su seb View Post
Hi I am new to the board. I am 5 months post concussion/fall. I am also extremely frustrated. I don't have any children but I am a full time high school art teacher, was also a fitness instructor and an at home tutor. I led an extremely busy life. Now I lay on the couch and feel sorry for myself.
I would love to share information and resources to try to get better. Are there any other mn people on the board?
I live in the northwest metro.
Su
I lie in MN and would be happy to share resources!
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"Thanks for this!" says:
Mark56 (03-16-2013)
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