Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-29-2013, 12:15 AM #1
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Default Drinking any fluid or eating = Severe increase of symptoms.....Why???

This one has me baffled. I've been struggling with the most severe, debilitating and relentless setback or flare up of symptoms for 2 months straight. I've been pretty much incapable of doing anything but the basics. I will somehow manage to pull through, every once in awhile (maybe once every other day) and have "decent" thought clarity, but once I take even a gulp of water or eat, it's ripped right from underneath me and I'm back to being a complete space cadet (hence the username).

This problem didnt start until June of last year, which would be one year after the injury. The effects have only gotten worse. I've looked around on the web for 7 months now and asked all my doctors and they never heard of it.

Someone on here suggested that I drink from a straw, because maybe it had something to do with the neck movement. I've tried that and unfortunately, it didn't work. Has anyone got a clue what this could be? I'm getting frustrated and discouraged because I spend so much time resting, trying to recover from this setback, being really good to my brain...and I will start to feel the slightest bit better and it's all gone with a drink of water. Makes no sense.

Hopefully someone knows what this is and can help???
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 01-29-2013, 12:35 AM #2
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I actually get head pain or headaches if I eat something really solid, like the steak I had for dinner, perhaps. Drinking though doesn't affect me. It may be my Occipital Neuralgia, but it still remains a mystery to me. My ears pop whenever I open my jaw or swallow, and it isn't just one pop of the ears, its like crackling. It happens when I eat too, the whole thing is just so weird.
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College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012.

Symptoms: Occipital Neuralgia.
2 MRI's and CT normal.

Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now.

Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy.

Was experiencing:
Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit.

Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm.

Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside!
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Old 01-29-2013, 12:54 AM #3
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Consider, that sounds like it might be tmj. I just heard someone else describe eating a steak causing headaches and hers is tmj. Just a thought.

SpaceCadet...that sure is odd. Could it be an anxiety thing? Are you seeing a psychiatrist? And it happens with every food and drink and immediately after? So not a type of allergic or inflammatory response.... hmmm temperature of the food doesn't make a difference? i.e. too cold. Sorry I don't have any answers but I hope you start feeling better soon.

CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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Old 01-29-2013, 12:58 AM #4
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Thanks for your response.

My ears have popped after swallowing for as long as I could remember. Maybe even since.I was a kid??? It's never caused me any problems, so I haven't brought it up to a doctor. Did that start after the concussion?

Yeah im trippin out right now cuz our bodies NEED water to function. Hello??? Lol...Why on earth would WATER , of all things, cause my brain fog to increase. In fact, water is one of the solutions to brain fog.

To make things more confusing....my mouth was so dry from not drinking much water today, so I just drank another couple sips of warm water instead of cold or room temperature water and it made me feel better. I'm lost lolll.
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 01-29-2013, 01:04 AM #5
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Cyclecrash,

Hell, I don't know WHAT it is. I would like to believe it's anxiety, but I think the effects are way too intense for that to be true. I was seeing a psychiatrist for awhile, he had me on Mirtazapine (antidepressant) which helped with anxiety/depression for awhile, then it started to poop out, even on the highest dose. I quit taking it cold turkey back in July and I felt so much better being off it.

I just....don't know lol.
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 01-29-2013, 01:33 AM #6
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So there's your answer! Warm water from now on! Or maybe its the water... lead in your pipes, chlorine in the water... maybe it needs to be boiled first.....hmmm. Well stick to warm whatever it is!
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