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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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Thank you for the compassionate reply. Everyone is so supportive here. I'm glad we help one another. To answer. I do not have a lawyer. I debated going the legal route earlier in my journey but put it on back burner as I don't really feel capable of all the work they require. In my experience with lawyers unless you do most of the work you will not get anywhere. So in my injured state I can't even remember to eat, dead serious. I have reminders for everything. And still my husband has to text me to ask if I've eaten or drank anything in the daytime while alone. The thought of having to advocate for myself and do more paperwork is just impossible to imagine. So I do my best but like I said I'm very subdued in person. I don't like to talk much because of how I sound, plus my thoughts are difficult to organize aloud. Paperwork makes my head spin so I avoid all those stressors. It sounds a bit melancholy but the truth is I have only enough fight left in me to cope with my every day survival. Adding any expectations from more 'professionals' is just not an option yet. More answers: I didn't even think to ask for a copy of his report. Didn't occur to me. I wish it had! As for the WCB case worker, besides one bad altercation in December she has eased up somewhat... Well, it's not like she's pleasant but not adversarial at least. I admire your strength in dealing with difficult situations. I'm kind of a mouse sometimes... I get confused enough that I don't even know how to defend myself. Can't think fast enough to keep up. I'm so much smarter in the written word. It's crazy how that works. Verbally I'm just not with it, at all. Thanks for the tips and inspiration though. I will think on it.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
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#2 | ||
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I do not know if the law is the same in Canada or not but I would call his office and ask for a copy of his notes and findings. BTW a psychiatrist is able to prescribe meds for anxiety and depression where a therapists and psychologist are not able to. This guy is in the dark ages!! Your GP maybe able to if you trust him?her and he/she is willing. The emotional component in PCS can be a bear.
Use the notes to show you are seeking help and co-operating fully. Keep demanding the care you know you need. All to frequently it is the squeaky wheel that gets the grease. I know it is not fair or right. With WCB you have to be your best advocate!!
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49, Male Married, PCS since June 2012, headaches, Back pain, neck pain, attention deficit, concentration deficit, processing speed deficit, verbal memory deficit, PTSD, fatigue, tinutitus, tremors. To see the divine in the moment. |
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"Thanks for this!" says: | MsRriO (02-05-2013) |
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#3 | |||
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rmschaver wrote: "I would call his office and ask for a copy of his notes and findings.
Yes, please do. (If it is same in Canada as here in USA, you will likely have to sign a "Release of Information" form to get a copy.) I routinely now, upon completion of seeing another Dr., request a copy of the notes to be mailed to me ... and they have me then-and-there fill out/sign the Release of Information form. No problem. Wishing you well.
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_____________________________ . 50s Babyboomer; 2008 high-impact rear-ended/totalled-MVC, closed-head injury->pcs ... "Still dealing with it." 1993, Fell on black ice; first closed-head injury; life-altering. // 2014 Now dealing with Peripheral Neuropathy, tremors, shakiness, vestibular disorder, akithesia, anhedonia, yada yada, likely thanks to rx meds // 2014: uprooted to the cold wet gray NW coast, trying to find a way back home ... where it's blue sky and warm! . __________________________________________________ _________ Each and every day I am better and better. I affirm and give thanks that it is so. // 2014-This was still true for me last year, I truly felt this a year ago. Unfortunately it holds no meaning for me now. Odd, it was the Theta mantra for years. Change change change. |
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"Thanks for this!" says: | MsRriO (02-05-2013) |
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Legendary
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MsRrio,
I think this psychiatrist di you right. he did not want to complicate your PCS with meds that would not help you. They may mask some symptoms but would not make a substantial difference. WCB would like to see you medicated into passivity so you stop complaining. WCB in Canada does not sound much different than WC here in the states. His comment about WCB paying doctors for favorable is dead on. Although there are regulations to try to prevent such 'hired guns,' there are plenty of ways the WCB payer can get around those laws and pay for the report they want. His comment about situation depression and anxiety was dead on. You likely have anxiety from over-stimulating a brain that has minimal tolerance for any stress at all. This results in a roller coaster of anxiety with moments of depression or simply emotional exhaustion/sadness. Do you have any way to seek distance consults from experienced professionals in a big town? I doubt you need hands on help. Finding the right skilled professional who can help direct you over the phone may be a big help. Your challenge will be getting WCB to support such an arrangement. I completely understand the situation you are in. You give WCB more credit than they deserve. Maybe you need to find a WCB attorney who has experience with Post Concussion. Again, you do not need to find on who is nearby. Finding good experience and knowledge is far better even if you have to do most of your communication by phone, email, and mail. Email can be a good communication system when dealing with attorneys. btw, If the psychiatrist has no experience with PCS, I wonder how much experience your PCP has. Is he really helping or is he just taking shots in the dark? The Ontario NeuroTrauma Foundation has done some excellent work with PCS. Maybe you can find some worthwhile referrals from them. Check them out at www.onf.org It is sad that we have to do all of this work ourselves when we are the ones who struggle to make it through a day. But, you are not alone. As other said, ask for (demand) copies of all notes and reports. I three hole punch them and put them in a three ring binder. It helps me not lose or misfile them. My best to you.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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"Thanks for this!" says: | MsRriO (02-05-2013) |
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#5 | ||
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I respectfully disagree with Mark. Your psych sounds arrogant, condescending, and patronizing. Just being referred to him should have indicated at minimal a evaluation and recommendations that could really help. Not offhand opined remarks that do nothing to serve your health needs. As a temporary aid medication properly administered can assist in getting over the hump so to speak until you can get your issues to a more manageable level. Of course you will need a competent Dr you trust to administer. I agree with Marks comment that it is possible to over medicate here. So exercise caution.
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49, Male Married, PCS since June 2012, headaches, Back pain, neck pain, attention deficit, concentration deficit, processing speed deficit, verbal memory deficit, PTSD, fatigue, tinutitus, tremors. To see the divine in the moment. |
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"Thanks for this!" says: | MsRriO (02-05-2013) |
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#6 | |||
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Thanks everyone. I respect all the views on this and thank you for taking the time to post replies.
I don't think I wrote my original post very well... But it was a true account of what was said. I'm really on the fence about whether I would have benefited from a different approach. But it's neither here nor there, I've got to move on from it anyway. As for the question of my PCP (as you Americans call them instead of GP's... Haha) I think... frankly, they are all clueless. I've seen now a total of four different doctors in 3 months including my usual family doctor. I think I've finally found a decent one on the fourth try but time will tell. I'm going to heed advice on the "copy" of reports. It's not standard practice up here. Didn't even occur to me yet, in 21 years of being an adult, to ask for my records. Also the distance consultation is something I'll look into, and distance legal representation too. Thanks Mark. Another thing I hadn't considered. I guess I better gear up for some of these difficult conversations and find my inner strength. Had no idea I was this subdued and mousy. I used to be a force to be reckoned with, I tell ya! Problem solving is not my forte at the moment. Lol ![]()
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
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#7 | ||
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Legendary
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rmschaver,
I think you missed my point. If the psych had tried to do an evaluation and even prescribed medication, even as a temporary help, WCB would be able to leverage that against MsRrio. It is amazingly difficult to undo even well intentioned temporary helps. I have been through the WC system and lost miserably. I have observed this same struggle in the lives of plenty of other injured workers. FYI, The Work Comp system was established to protect employers at the expense of the injured employee. The 'gift' to the employee is a no fault process as long as the injury took place during working hours. As WC insurance companies complained, the WC rules got rewritten to favor the employer even more. This created an entire 'industrial medicine' industry. The statutes pay the doctors based on report pages. There are industrial medicine partnerships that have databases of boilerplate reports that paramedical writers cut and paste into reports to be signed by the 'reporting doctor.' Some doctors write their own reports but the low pay causes them to become disenchanted with the system. It becomes worse when they see the way their reports get twisted against well deserving injured workers. The system is simple, play along and the medical professions will get paid as long as the injured worker does not get everything they deserve. The attorneys and doctors with their post graduate degrees deserve their big paychecks but workers who can get injured at work are the peons who deserve the leftovers. In a few cases, the injured workers gets a just settlement, usually when the injury is obvious, like a broken leg or amputated finger or hand. Those of us with invisible injuries are labeled as driven by the chance of a big payout. There are lawyers and claims adjusters who fill conference halls to teach how to blame the injured worker for malingering. All we need is a medical or psych report that questions the cause of our symptoms to have our claim crash and burn. A professional who does not know how to connect our symptoms to our concussion can open that door of question. Attorney Gordon Johnson addresses the serious risk of getting such an evaluation and report. My experience confirms what he says a www.tbilaw.com and www.subtlebraininjury.com btw, No offense taken from those who disagree with this. My best to you all.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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#8 | |||
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Remember the time I posted about the Acquired Brain Injury coordinator coming to my house to meet with me? (At least I think I posted that story, she was the one who said I'd have therapists come right to my house and then later said, no that won't happen, the ABI team won't see concussion patients).
Anyway... She did a follow up visit today. I told her the account of the psychiatrist and she says he did me a favour. Because, she said that in her experience, anytime WCB can pin symptoms on depression instead of the injury they will. She said the ideal healing for head injury patients is drug free for a year if possible. I thought some of you may find that interesting.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
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"Thanks for this!" says: | cyclecrash (02-06-2013) |
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