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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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02-06-2013, 01:21 PM
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I had my third vestibular therapy appointment today and my therapist and I have already noticed improvements with the way my eyes track, less headaches, decreased dizziness and even less light sensitivity and eye strain! I know the percentage of successes with this treatment is fairly low but I'm hopeful now that I might see some improvements!
Just wanted to post this in case someone was on the fence about whether to try this type of therapy or not. Once a week she comes to my house and we go through the exercises I'm already doing and then she adds one or two new ones. For the rest of the week, until I see her again, I do them once a day myself. The day she's here and for a few days after, symptoms can be a bit worse but then they get better. We added walking with a head nod today and that was very difficult but I'm hopeful by next week it will be easier too. I hope everyone is having a good day! CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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02-06-2013, 02:57 PM
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Excellent--thank you for sharing! Please keep us posted with updates about your progress, and let us know whether certain exercises in particular have been helpful.
I got started on some vestibular therapy with a PT and later with my vision therapist, and am now going though exercises on my own. It seemed to help for awhile, but I think I've hit a plateau. I hope to get back into it once I have health insurance again.
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Male, 39 years old, suffering from PCS as a result of being rear-ended on 1/23/11. Part-time philosophy professor. |
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| "Thanks for this!" says: | cyclecrash (02-06-2013), Lara (02-07-2013) |
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02-06-2013, 03:15 PM
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Hitting a plateau or the improvements stopping is a fear of mine but I'm grateful to see some improvements. For the past 7 months I've been training myself to use workarounds to get through my day with the least amount of dizziness.
This has included: shuffling walk, looking down or straight ahead, turning my whole body instead of my eyes or head, etc. Now I have to learn NOT to do those things anymore and that I won't fall over. I think the confidence and mentally knowing I can do these things is helping the most. So far the very simple exercises of just moving my eyes up and down and then right and left with my head still and then eyes still head up, down then right, left seems to be doing the job! I know these therapies aren't cheap but don't leave them too long because it sounds like there's a success "window" CC - whose Laughing at Ellen. Love this show!
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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02-06-2013, 06:22 PM
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You have hit on a key point! Doing the exercises at home daily is really one of the only ways to have success!! Good for you for keeping with it. Keep posting
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What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.) Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles, Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory; Emotional: easily overstimulated, depression, anxiety; Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy |
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