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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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02-12-2013, 05:36 PM | #1 | ||
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Junior Member
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Hello,
I was wondering if anyone has had any experience with DPD and how are you coping or coped with it? Thank you |
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"Thanks for this!" says: | Brain patch (02-14-2013), SkimbleShanks (03-11-2015) |
02-12-2013, 08:02 PM | #2 | ||
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Member
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Quote:
My best to you !! |
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"Thanks for this!" says: | Concussion (02-12-2013), Consider (02-14-2013) |
02-12-2013, 09:37 PM | #3 | ||
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Member
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However, when I did recognize that I was experiencing what I reported to my Neurologist as "not being on the same page with myself " at times; I did investigate DPD; and this link gave me some insight: Depersonalization Disorder - WebMD
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. Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses. Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings. |
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02-12-2013, 10:02 PM | #4 | ||
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Junior Member
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What would you say if I told you that this is a state I have been living in forever and just started to figure things out?
It is a state of mind I have been aware of, just could not name what it was. I have seen a Dr. regarding that but Dr. had no idea what I was talking about.( i guess) . I believe that has happaned after a concussion I found out I had very long time ago. From what I found out was most of the people who had it was a short exerience compared to mine. I have been in it as long as I know. Thank you for your inputs. |
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"Thanks for this!" says: | Brain patch (02-14-2013), SkimbleShanks (03-11-2015) |
02-13-2013, 05:11 PM | #5 | ||
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Member
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Dear Savas,
Are you getting help for this now? It normally is temporary because it is the brain breaking down and using a safety mechanism to care for it's wounds. Once recognised however there are many treatments to help come out of this state. You have my sympathy though, it is a horrid place to live in that mind state. Do you know why this has happened to you, apart from the concussion there is normally a stronger reason for this disorder. If you know what it is you can find the right help. |
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"Thanks for this!" says: | Brain patch (02-14-2013) |
02-13-2013, 05:29 PM | #6 | |||
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Member
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Hi,
I have this bad. I have dealt with it by learning advanced meditation and breathing exercises. I feel like my spirit is detached from my body or as if I am living at the side of myself. Does this happen to you? So sorry. Lots of love to you Brain patch
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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02-13-2013, 06:17 PM | #7 | ||
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Legendary
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I experience this but it is only momentary. I can think my way out of it. I start by identifying the simplest things around me that I know are real. This is the start of creating a context of myself and environment. Touching something or moving is usually enough.
I also have to orient my memory. By this I mean I accept that my memory is unreliable. Again, I start by establishing a simple context. Do I know what day it is ? Do I know where I am ? Once I get a few of these contexts established, the rest falls into place quickly. It is important that I do not get stressed out by this sense of ??????? Anxiety only makes it more of a problem. The big problem in my view is that we normally live with an automatic context of who, what and where so we get lazy with our attention. As brain injured, we need to purpose our thoughts more. This is no different that the Stop to Think exercise. If we just stop to think, we can usually reconnect to our reality. I struggle with this most when I wake up from a very real dream. I need to put serious contextual effort into determining where the dream ended and real life starts. Learning to live life on purpose rather than on autopilot takes a bit of effort but it becomes a habit. Hope this helps.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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"Thanks for this!" says: | Brain patch (02-13-2013), Concussion (02-14-2013) |
02-14-2013, 11:28 AM | #8 | ||
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We are no longer really able to trust our auto-pilots. We do have to always be attentive to purpose.
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. Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses. Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings. |
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02-14-2013, 11:40 AM | #9 | |||
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Member
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I would have to agree. This is something I haven't been able to take a hold of, sometimes I feel a sense of unreality. It sucks, but we just have to keep calm and carry on. It does scare me a lot, though.
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College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012. Symptoms: Occipital Neuralgia. 2 MRI's and CT normal. Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now. Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy. Was experiencing: Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit. Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm. Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside! |
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"Thanks for this!" says: | Brain patch (02-14-2013) |
02-16-2013, 11:24 PM | #10 | ||
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Junior Member
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Quote:
Quote:
It is only most recently I have started to get the Fell Of Reality. But 98% still in a dream, with auto pilot engaged. But working on it |
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