Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 03-08-2013, 09:19 PM #11
SmilinEyesMs305 SmilinEyesMs305 is offline
Member
 
Join Date: Jun 2011
Posts: 242
10 yr Member
SmilinEyesMs305 SmilinEyesMs305 is offline
Member
 
Join Date: Jun 2011
Posts: 242
10 yr Member
Default

Thinking about you!! Keep your mind off what happens after surgery and just enjoy the fact that you are continuing to move forward with all the right medical people

You are doing a wonderful job advocating for yourself and continuing to push forward in your therapies. You ROCK!
__________________
What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.)

Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles,
Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory;
Emotional: easily overstimulated, depression, anxiety;

Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy
SmilinEyesMs305 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Brain patch (03-09-2013), MiaVita2012 (03-08-2013)

advertisement
Old 03-09-2013, 01:13 AM #12
Mokey Mokey is offline
Member
 
Join Date: Oct 2012
Location: canada
Posts: 553
10 yr Member
Mokey Mokey is offline
Member
 
Join Date: Oct 2012
Location: canada
Posts: 553
10 yr Member
Default

Hope it goes okay. I had very bad TMJ about 15 years ago, was told I needed to get my jaw reset and wired, and then I met a physiotherapist who specialised in the jaw, and I was treated by her with various things and did home exercises, and it got all better! My jaw is more stable, I don't need to wear something at night, and th searing jaw pain is gone.
Everyone is different, of course, but just to encourage you to make sure you get more than one opinion!
__________________


What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
Mokey is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
MiaVita2012 (03-09-2013), SmilinEyesMs305 (03-09-2013)
Old 03-09-2013, 11:25 AM #13
MiaVita2012's Avatar
MiaVita2012 MiaVita2012 is offline
Member
 
Join Date: Dec 2012
Location: N/A
Posts: 685
10 yr Member
MiaVita2012 MiaVita2012 is offline
Member
MiaVita2012's Avatar
 
Join Date: Dec 2012
Location: N/A
Posts: 685
10 yr Member
Default

We already tried the exercisesbut yes after we get everything together I will go get a second opinion before any surgery.But my thing is the pain has went away but my bite is off and my jaw constantly pops when I open and close and can feel it like jerk on alignment....I don't know if that makes sense...but I also need to consider in future arthritis of jaw
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
MiaVita2012 is offline   Reply With QuoteReply With Quote
Old 03-13-2013, 10:30 PM #14
MiaVita2012's Avatar
MiaVita2012 MiaVita2012 is offline
Member
 
Join Date: Dec 2012
Location: N/A
Posts: 685
10 yr Member
MiaVita2012 MiaVita2012 is offline
Member
MiaVita2012's Avatar
 
Join Date: Dec 2012
Location: N/A
Posts: 685
10 yr Member
Unhappy Update on TMJ

Well I finished CT Scan of TMJ and today I had did a 2hour MRI without impressions and with impressions....with my mouth open for whole 2hours that hurt my whole head and could feel muscle spasms popping up all over my body while I could not moveWhen I got up from table the vertigo was horrible!!!
Now sore and icing...Probably know the deal next week sometime

Until then I am asking myself am I ready for this???
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
MiaVita2012 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Brain patch (03-14-2013)
Old 03-14-2013, 10:02 AM #15
Brain patch's Avatar
Brain patch Brain patch is offline
Member
 
Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
10 yr Member
Brain patch Brain patch is offline
Member
Brain patch's Avatar
 
Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
10 yr Member
Default You are ready

Mia,
Good job! You are so brave. You could come out looking really pretty. After my daughter had braces and they moved her jaw forward it really changed the shape of her face for the better. She is gorgeous. So there is that.
Hoping you are feeling ok today. I know your jaw is sore. So sorry. I am thinking of you.
Much love and healing vibrations are being sent your way,
Brain
__________________
Brain patch.
.


Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
Brain patch is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
MiaVita2012 (03-14-2013)
Old 03-14-2013, 10:08 AM #16
MiaVita2012's Avatar
MiaVita2012 MiaVita2012 is offline
Member
 
Join Date: Dec 2012
Location: N/A
Posts: 685
10 yr Member
MiaVita2012 MiaVita2012 is offline
Member
MiaVita2012's Avatar
 
Join Date: Dec 2012
Location: N/A
Posts: 685
10 yr Member
Heart

Brain thank you so much for the kind words they are greatly appreciated. I was actually sore a little last night but not today at all.Maybe it was a stretch that my jaw,head,brain needed?I will find out more after 24hrs and then 48hrs but I'm thinking NO PAIN NO GAIN LOL
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
MiaVita2012 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Brain patch (03-14-2013)
Old 03-14-2013, 02:30 PM #17
MiaVita2012's Avatar
MiaVita2012 MiaVita2012 is offline
Member
 
Join Date: Dec 2012
Location: N/A
Posts: 685
10 yr Member
MiaVita2012 MiaVita2012 is offline
Member
MiaVita2012's Avatar
 
Join Date: Dec 2012
Location: N/A
Posts: 685
10 yr Member
Shocked I just realized

I just realized it has been a year to date that my jaw locked and dropped!Wow it's kind of crazy to look back and think what or where did the last year or two or three years etc GO?I DON'T KNOW BECAUSE MY SHORT TERM MEMORY IS SHOT!LOL!Ask me about 15 years ago I can tell you details
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
MiaVita2012 is offline   Reply With QuoteReply With Quote
Old 04-02-2013, 11:12 AM #18
MiaVita2012's Avatar
MiaVita2012 MiaVita2012 is offline
Member
 
Join Date: Dec 2012
Location: N/A
Posts: 685
10 yr Member
MiaVita2012 MiaVita2012 is offline
Member
MiaVita2012's Avatar
 
Join Date: Dec 2012
Location: N/A
Posts: 685
10 yr Member
Default Results for Jaw

My TMJ MD had called and said after going over
MRIs/CBTC Scan of jaw that he has came to a decision. The decision is split therapy for 6-8months because my muscles are very hyper.I would go in once a month and get the splint adjusted to tighter fit because my jaw will change positions.With this being said I suppose it is better than being wired shut.This is a pricy ordeal still.I have done my research on it and there is people that stated it does work and people that says it does not....Seems to be a out of pocket expensive trial and error.FRUSTRATING

I need to ask second opinion now and one of my impairments is problem solving so I do not know.
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~

Last edited by MiaVita2012; 04-02-2013 at 11:52 AM.
MiaVita2012 is offline   Reply With QuoteReply With Quote
Old 04-23-2013, 09:30 AM #19
MiaVita2012's Avatar
MiaVita2012 MiaVita2012 is offline
Member
 
Join Date: Dec 2012
Location: N/A
Posts: 685
10 yr Member
MiaVita2012 MiaVita2012 is offline
Member
MiaVita2012's Avatar
 
Join Date: Dec 2012
Location: N/A
Posts: 685
10 yr Member
Default While I Am in Waiting Process

I am in a wait for the jaw M.D. to get my medical stuff back from another jaw M.D. that is out of state that is doing a second opinion. The second opinion is for split therapy to correct my jaw movement.I also have hyper muscles in my jaw from being displaced. My jaw is on edge of locking up on me and I have a great deal of ear pain and facial muscle spasms.

I am scheduled to go get some anti inflamation shot today in TMJ I guess.I don't know but I think it is going to hurt. I guess anything is better then locked jaw right?My mom is taking me, it is a hour drive away from me.Hope this is a good pain after all the pain I been threw I now have a very high pain level.
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
MiaVita2012 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Brain patch (04-23-2013)
Old 04-23-2013, 08:50 PM #20
poetrymom's Avatar
poetrymom poetrymom is offline
Member
 
Join Date: Mar 2013
Location: Minnesota
Posts: 398
10 yr Member
poetrymom poetrymom is offline
Member
poetrymom's Avatar
 
Join Date: Mar 2013
Location: Minnesota
Posts: 398
10 yr Member
Default Thinking of you

will pray for you Mia.

Take care

Poetrymom
__________________
[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
poetrymom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
MiaVita2012 (04-24-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
nervous person vs.nervous patient john1947 Bipolar Disorder 0 06-28-2011 09:43 PM
New and Nervous bluemom Trigeminal Neuralgia 6 08-24-2010 09:32 PM
New n nervous Dama New Member Introductions 7 04-03-2008 09:32 PM
I'm Nervous~ DM The Stumble Inn 80 03-08-2008 12:57 PM
Getting Nervous Rachael Thoracic Outlet Syndrome 14 11-26-2007 08:02 PM


All times are GMT -5. The time now is 09:19 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.