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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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02-18-2013, 07:31 PM | #11 | |||
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That sounds horribly frustrating msRrio! I have it where i can't think of words and stutter a little when stressed or having a bad day but not like that.
I don't understand why doctors or people don't believe us or our symptoms but yet we all have the same ones! Each of us has our own unique grouping of issues but most of the main symptoms are very common. How can we all be making it up/exaggerating/lying? Its obviously real. CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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"Thanks for this!" says: | MsRriO (02-18-2013) |
02-18-2013, 08:25 PM | #12 | ||
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MsRrio,
You might ask your doctor for a prescription of an anti-seizure med. Neurontin (gabapentin) or some of the old standbys like phenobarbital or phenytoin (Dilantin). I was on both in high school (1971-2) and they settled my brain down. It sounds like your brain gets caught struggling and loses control of the timing processes needed to control a natural flow of information and speech. The added stress of your son's struggles likely makes this brain stress much worse. My best to you.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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02-20-2013, 10:02 PM | #13 | |||
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Ms rio,
I have major speech slurring and some stuttering or like a shaky voice when I get real nervous. Looks like it is normal for all of us. No worries. I know it is embarrassing though.
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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"Thanks for this!" says: | MsRriO (02-20-2013) |
02-20-2013, 11:20 PM | #14 | |||
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Thanks Mark. I'm interested in what you think of the other symptom that accompanies the stutter sometimes. It's a very strong pressure in the middle of my forehead, sort of down into my sinuses almost, like a strong painful pulling sensation. Wondering if this is related or just concurrent pain from trying to process speech. Probably just coincidence? You're right about stress. The week since the neuro psych day has been torturous and a very disheartening setback. I feel consistently worse than I did even at two months post injury. Month three and four have sucked. Next appt to see GP is Friday, will bring up meds again. Will try to remember.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
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02-21-2013, 11:55 PM | #15 | ||
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My speech therapist specializes in traumatic brain injury. When I first started the therapy, she said that I should expect to have more problems when I am stressed, tired, or under cognitive strain. Being relaxed, explaining something that I have said repeatedly (like how the injury happened) made my speech almost like it was before the accident.
I was really amazed at how much the speech therapy really helped. The breathing techniques and learning transitions from one syllable to another and easy onset of words made a huge difference. After a while I was able to self-correct. Now, unless I am exhausted or have not planned what I want to say, no one suspects that I ever had a stutter. I wouldn't be concerned if the neurologist is not familiar with this, but your speech therapist says something different, I would look for a new speech therapist -- one with experience treating patients with TBI. |
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02-21-2013, 11:58 PM | #16 | ||
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By the way, I found that "trying harder" almost always made the stuttering worse. Learning to relax and learning the techniques to deal with the aspects of speech I found difficult were key to getting past the stuttering.
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06-05-2015, 06:55 PM | #17 | ||
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06-05-2015, 09:50 PM | #18 | ||
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Mbolin,
MsRio has not been around in quite some time. It took a while but she did improve. One of the common problems with stuttering after a concussion is the more we stress out about the symptoms, the worse that symptom becomes. The brain gets overloaded with stress chemicals and goes haywire. Many of us have learned relaxation skills to help our body and mind settle down so we can perform a little better. For me, it usually starts with taking a slow deep breath. Then, I rehearse what i want to say in mind. It helps but does not always solve the problem. It may just take time to heal. My best to you. |
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06-11-2015, 01:32 PM | #19 | ||
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Yep me too.
How do they not know this? You overload a computer with work and it won't be very responsive will it? To further the analogy, you drop your computer on the floor, and then overload it with work, it's going to be even less responsive |
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06-12-2015, 02:40 PM | #20 | ||
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MsR,
I thought I was all done stuttering at one point then it reappeared. Now when stressed or overloaded it starts up again. Stressor is gone and stuttering is gone. Happens all the time again so your doc as seems to be the case with many is clueless. Bud |
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