Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 03-12-2013, 09:44 AM #1
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jmsarge,

We all have some periods of life with these times of long lines of appointments and planning for appointments and dreading appointments, and proving our problems to others for this or that, due to their disbeliefs we actually have problems they don't see or refuse to see, even though their own I.M.E.'s have shown them the results.

Sadly, as another thread has shown, we are the ones that have to do all the work, and it will continue so, until some other group of super-stars have more going on with them to actually show more is "really" real, again.

Sorry, Im in one of my mood swings.

Best Wishes, and hold it together guy..
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Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses.
Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings.
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Old 03-12-2013, 08:57 PM #2
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Default Had another Neuropsychological testing session

Hi Guys,
Hope you are all holding up. I had another seizure on March 7th and I hurt my neck bad. The pain traveled down my neck into my right side and my right arm was paralyzed when I woke up in the morning on the 11th. Don't worry it is not really paralyzed but it hurt to move all day. So when I went for the Neuropsychological testing on the 11th they did not want to do too much with me because I was already in so much pain. I did manage to get her to tell me that she sees the problem and will be helpful to me with my disability claim. She wants me to come back again before she will give me the report and recommendations for future treatment. I did manage to get a new disability claim filed. I will have to send her report in later. I go back to my regular doctor on Thursday so I guess I will find out what a 3mm area of brain getting no signals on my MRI means. I am sure nothing good. I am really thinking that I have the more serious post concussive encephalitis or whatever it is when your brain has sustained maximum blows. I have passed out and fell straight back on concrete like 8-9 times (supposedly due to hypoglycemia) and was hurt even before I took the killing blow in 2006 in the car accident. I have had my entire short and long term memory wiped. I don't know how I have survived to this point. I hope there is help for me guys. I am feeling really down.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 03-12-2013, 10:46 PM #3
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Heart

I am sorry you are going threw so muchI will pray for you and let's hope it is not as bad!Remember a higher power will not put you threw more then you can handle and you are blessed to still be able to fight these battles
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What Happened: In 2011 I was in a MVA
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Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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