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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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03-11-2013, 07:28 PM
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I am in Minnesota and am looking for good advice for doctors, support groups therapists etc.
I slipped and fell five months ago and am suffering from lots of pcs symptoms. It is a workers comp case and up until about a month ago I was getting little to no care. I started going to the national dizzy and balance center a few weeks ago. They detected central nervous deficits. I am also going to noran neurology and I am scheduled for a neuro psych test late April. |
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| "Thanks for this!" says: | Brain patch (03-11-2013) |
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03-11-2013, 09:02 PM
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I saw some good people at the Hennepin Hospital Brain Trauma Centre in MSP. They have a multi-disciplinary approach.
One of the best doctors I have ever seen is Dr Marian Rubenfeld who is a neuro-opthamologist and a PhD. She works out of a few clinics in Minneapolis and area. Phillips eye care centre is one. She is brilliant.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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03-11-2013, 09:09 PM
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Support Groups:
http://www.braininjurymn.org/support/supportGroups.php Courage Center: http://www.couragecenter.org/Preview...in_injury.aspx MN Brain Injury Alliance: http://www.braininjurymn.org/ Hennepin County Medical Center: http://www.hcmc.org/braininjury/index.htm I don't know any specifics about the Courage Center or Hennepin Cty Medical Center. I also know that there are a couple of places I'm forgetting about. Do some google searches and see what else you find; the medical care in this area is some of the best in the world.
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Male, 39 years old, suffering from PCS as a result of being rear-ended on 1/23/11. Part-time philosophy professor. |
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03-11-2013, 09:22 PM
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I know we have great medical resources here in mn. After the accident I felt too crappy to be an advocate for myself.
And when I finally got clearance for an appointment with a neurologist, the doctor cancelled the appointment stating he would not see workers comp cases. And now it is still very difficult to get a dr visit approved so I want to make sure I choose wisely. |
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03-11-2013, 09:56 PM
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I have found the Neuropsychological testing to be a very good move. I would do that if you can. It will be helpful to me with my disability claim. I assume it would be helpful for workers comp claim and disability if needed. Good luck. I can tell by your posts that you are suffering severely.
Brain
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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03-12-2013, 01:24 AM
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Legendary
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Su,
Do you have an attorney helping you ? You are better getting no treatment/diagnostics than getting the wrong diagnostics and treatment. Have you checked out the information at www.tbilaw.com and www.subtlebraininjury.com ? There is good information about finding the right professional to help you and the risks about the wrong professional messing up your case.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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| "Thanks for this!" says: | Su seb (03-12-2013) |
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