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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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03-13-2013, 10:00 AM | #1 | |||
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First I need to thank the higher power for pushing me threw a year and half of no direction and answers of my conditions.If it was not for that power there is 2 options where I would be with my PCS & PTSD!!! I am stronger then ever to keep pushing threw these battles with a long period of no diagnosis! Today I finally get to talk to a psychologist and I need this more then words can explain.To be able to finally sit down and talk about how I am suffering so emotional is a blessing to keep pushing threw these battles.
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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"Thanks for this!" says: | Brain patch (03-13-2013), Lightrail11 (03-13-2013), MsRriO (03-13-2013), SmilinEyesMs305 (03-13-2013) |
03-13-2013, 10:06 AM | #2 | |||
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Good news, thanks for sharing. Let us know how this goes. Is this a clinical neuropsychologist or one you are seeing for the mood disorders (stress, depression, anxiety)?
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition. Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life. |
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"Thanks for this!" says: | MiaVita2012 (03-13-2013) |
03-13-2013, 07:53 PM | #3 | ||
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I'm SOOOO HAPPY FOR YOU!
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What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.) Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles, Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory; Emotional: easily overstimulated, depression, anxiety; Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy |
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"Thanks for this!" says: | MiaVita2012 (03-13-2013) |
03-13-2013, 10:18 PM | #4 | |||
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This is my PTSD psychologist...I am still waiting for my neuro psychologist...It was a relief to talk to someone besides my speciality MDs and you guys from afar!I cannot express how BAD I needed this for myself....I fought these battles this far and was on edge to want to give up but the psychologist came in time!
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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"Thanks for this!" says: | Brain patch (03-14-2013) |
03-14-2013, 03:48 AM | #5 | |||
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MiaVita,
I too saw my neurospychologist again yesterday, and it is very helpful, so I am pleased that you are getting this help. The key thing that I am learning is that people with PCS have raised anxiety and arousal levels, subsequently emotional issues take the form of physiological issues. In my case these have been headaches, light/noise sensitivity, muscle tension, fatigue, tinnitus, numbness, insomnia, but many others previously. In my case anti anxiety medication is helping reduce the emotional-physiological cycle. As I have become more relaxed, focus less on my symptoms, do the things that help relax me, and avoid triggers, so to the physiological symptoms are reducing. The most important thing to bear in mind is that this is a temporary condition, good luck in your recovery. |
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"Thanks for this!" says: | Brain patch (03-14-2013), MiaVita2012 (03-14-2013) |
03-14-2013, 10:20 AM | #6 | |||
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Yes. I have noticed since I have been taking the clonazepam for seizures it also helps for anxiety. I have actually been able to leave my house for short periods. That makes sense that emotions are turned into neurological symptoms. Reducing the anxiety has helped. I see my doctor today and am going to ask if I can take one in the afternoon for anxiety and one at night for sleep disorder/seizure control. Hope he says yes.
Brain
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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03-14-2013, 02:54 PM | #7 | |||
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I agree brain....you know when I finally did get to the neurologist (after 15 MDs)kept trying to put me on depression meds and I fought and said I AM NOT DEPRESSED!Well I was also fighting because I know my body and I know when ANYTHING IS WRONG WITH ANYBODY'S BODY your body automatically get's depressed and anxiety.....so I waited and waited and fought and fought till I got this diagnosis to start antidepressants and I believe I got PTSD from A.The accident and B.The trauma of MDs.....yep I really do!
As I was sitting talk to the psychologist telling her the fine details of what I remember of accident and the MD fights....she stops and says "THIS IS HORRIBLE"while at this point she's looking at me like how the **** am I still here!I told her I don't want sympathy I need answers,coping skills etc.... she said I am not trying to give you sympathy, I have to commend you if anything and she looked like she was more upset than me but not crying....She was speechless for a moment and said who is your support group besides your family?I said me,myself,and I!!!She replied I really believe you are one of the strongest clients I have and I been doing this for 30years.
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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