Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 03-24-2013, 05:16 PM #11
xanadu00 xanadu00 is offline
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Also, I forgot to mention two more things.

For light sensitivity, you should be able to get FL-41 tint lenses prescribed. These lenses are reddish in color, but they block out the blue wavelengths--the ones that cause me the most trouble.

If you use a PC, your computer should have a "high contrast black" setting. Right click on your desktop and go to "personalize." From there, you should be able to choose "high contrast black" as your display setting. This greatly reduces the amount of light entering yuor eyes when you use the computer.
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Male, 39 years old, suffering from PCS as a result of being rear-ended on 1/23/11. Part-time philosophy professor.
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Old 04-02-2013, 01:47 PM #12
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Default Vision testing taxed my brain

I saw the vision doctor Sat. and she did about 45 minutes of testing. The next day, my brain felt a whole lot worse -- like it was taxed too much. I'm still in the process of recovering. Had to cancel the second testing session for this week and moved it to next week.

Did any of you with PCS who had vision testing done find that it "strained" your brain and set you back a bit?

I'm concerned because the next testing session is for 75 minutes. I'm also concerned that the therapy itself may be too taxing for my brain. What was your experience?
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Old 04-02-2013, 02:11 PM #13
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Yes...the testing was difficult but at the same time gave me hope that FINALLY there was something concrete I could do to get my brain better. I did home based vision therapy(very simple to the point of where I could tolerate it. Only a few minutes a day) and then went to in office sessions....usually with massive headaches at the beginning. Once I got prisms, it improved a lot. Still doing vision therapy and still determined to improve to help reading, etc. vision is a huge resource drain on the brain so if it is messed up, not a lot of extra brain energy to function on other things. Good luck. Take it very slow!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 04-02-2013, 04:20 PM #14
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Quote:
Originally Posted by Mokey View Post
Yes...the testing was difficult but at the same time gave me hope that FINALLY there was something concrete I could do to get my brain better. I did home based vision therapy(very simple to the point of where I could tolerate it. Only a few minutes a day) and then went to in office sessions....usually with massive headaches at the beginning. Once I got prisms, it improved a lot. Still doing vision therapy and still determined to improve to help reading, etc. vision is a huge resource drain on the brain so if it is messed up, not a lot of extra brain energy to function on other things. Good luck. Take it very slow!
How long have you been doing the vision therapy? How much have you improved so far from the vision therapy?
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Old 04-02-2013, 05:14 PM #15
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I started home exercises very slowly (a wee bit - mimutes - every day or so) after my first visit to a neuro opthamologist 5 months post injury (a year ago). I saw a real vision therapist locally at 9 months post injury and did about 20 minutes a day. Still difficult at that time. One year post accident, i got prisms and THEN i made a lot of progress. I was finally able to read on the computer and function a bit more. Since adapting to the prisms, i have been able to write, read for longer periods, amd write on the computer (academic stuff). I now do computer programme vision therapy at home. Still need to improve! But HUGe difference from last year. Baby steps, but steps you probably need to take.
Vision is a huge part of this injury for many people.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.

Last edited by Mokey; 04-03-2013 at 04:53 PM. Reason: Typos!
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Old 04-03-2013, 01:08 PM #16
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Vision testing was extremely taxing for me. 1st neuro I saw wanted me to do vision therapy and was going to cost me thousands and provide no immediate relief.

2nd neuro opthamologist was able to prescribe blue tinted glasses that are retraining my eyes to work together. I noticed immediate relief. Dr. Said prisms would have been too much for me so people that aren't finding relief from prism should ask about getting blue tint lenses.

I know it sounds too good to be true that this really works, but my glasses are a miracle to me.
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Old 04-03-2013, 04:54 PM #17
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There are some free or cheap vision therapy apps for Ipad. I use them a lot. They can help and sounds like an Ipad would be cheaper than vision therapy for you!!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 04-03-2013, 05:18 PM #18
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Hi Mokey-

Do you think you could provide some recommended apps for the iPad?

The vision therapy at home and in office does trigger headaches and eye strain.

Baby steps that lead to more accurate vision! I hope!
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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Old 04-04-2013, 12:01 PM #19
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Quote:
Originally Posted by todayistomorrow View Post
Vision testing was extremely taxing for me. 1st neuro I saw wanted me to do vision therapy and was going to cost me thousands and provide no immediate relief.

2nd neuro opthamologist was able to prescribe blue tinted glasses that are retraining my eyes to work together. I noticed immediate relief. Dr. Said prisms would have been too much for me so people that aren't finding relief from prism should ask about getting blue tint lenses.

I know it sounds too good to be true that this really works, but my glasses are a miracle to me.
How do you know if you're a candidate for prism lenses or blue lenses?

I think my insurance is going to cover the vision therapy, but I'm looking for relief as soon as I can get it so I would be willing to try anything.
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Old 04-04-2013, 06:44 PM #20
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One quick thing that I did not see mentioned. I had/have all the same difficulties you listed. I actually used many of the tips listed by xanadu00 to help make my PC experience better.

One thing that I did not see mentioned that may be worth experimenting. I had compact fluroscent lights throughout my house and was advised to get rid of them by my behavioral optometrist and switch to regular incadescent bulbs. It made a huge difference when watching TV or computer. Something in regards to the dip in the color spectrum (green if I recall) for those types of bulbs that your brain cannot compensate for properly. Trying to remember what I was told so it could be incorrect.

At work now where I have that awful commercial lighting, I just have a table lamp above my space with a regular bulb and it helps alot along with f.Lux and workrave mentioned.

Just a side note, I did 5 months of vision therapy. Had another injury which upset my eyes again and had to do 2 more months. It made a huge difference, I also now wear a pair of prism glasses at work for my computer. I still get some issues in very busy public places (Costco, etc...)

Good luck!
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