Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 03-27-2013, 07:10 PM #1
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I can't believe what I've read! I want to send it to my NP and get her take on it. Definitely seems like harassment to me. I'm so sorry you had to go through such a horrible ordeal. Have you not been able to find a neuro psycologist in your area to go see? Having one on your side would help your claim as well as provide possible treatment. I would think one would be cheaper than a lawyer.

I still can't believe the things he was saying and wonder if there's a motive to his words.

Anyhow, big hug to you and I hope you find a neuropsych or concussion specialist that can help you.

CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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MsRriO (03-27-2013)
Old 03-27-2013, 07:30 PM #2
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Quote:
Originally Posted by cyclecrash View Post
I can't believe what I've read! I want to send it to my NP and get her take on it. Definitely seems like harassment to me. I'm so sorry you had to go through such a horrible ordeal. Have you not been able to find a neuro psycologist in your area to go see? Having one on your side would help your claim as well as provide possible treatment. I would think one would be cheaper than a lawyer.

I still can't believe the things he was saying and wonder if there's a motive to his words.

Anyhow, big hug to you and I hope you find a neuropsych or concussion specialist that can help you.

CC
So far (when you're on WCB) I cannot see doctors outside of this system. I asked my doctor for a referral to a neurologist and he said no we have to wait to see what the WCB panel says.

My doctor will not refer me without WCB allowing it because right now WCB pays for his time as well.

I find I'm having trouble getting through to anyone and the more I push, the more I'm assumed to be an attention seeker rather than a valid case.

I find I'm even doubting my own sanity now that I've been through this. It was like he was using Jedi mind tricks. I didn't know how to play those mind games.

Of course there was motive to his words. His time was paid for (likely handsomely) by WCB to get me off benefits, he tried to convince me I'm delusional about my own pain and health.

Sad to think I'd be better off being cut off, so I could find relief from abuse, and finally be allowed to seek treatment.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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Brain patch (03-28-2013)
Old 03-27-2013, 07:44 PM #3
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Imagine if a psychologist spoke that way to someone with heart disease or cancer... You've created hyper sensitivity and that's why you feel pain, it doesn't exist, your condition doesn't exist.

There would be outrage. Brain injured patients seem to have zero rights. It was perfectly acceptable for him to trivialize my injury and I couldn't think fast enough to fight it.

For some reason I am expected with limited problem solving ability (I don't think very fast anymore, despite him saying I'm fine) to work my way through conversations to properly play this mind game.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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Brain patch (03-28-2013)
Old 03-27-2013, 08:12 PM #4
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This story just justifies why I chose to NOT go through WCB... I am thankful my injury happened on a third party location, and I could go another route. So far all my insurance reviews have been pretty cooperative, telling me I need MORE therapy and treatment to help me get better, or at least improve...

I recommend getting a lawyer, I know it's not cheap, but many of them will go on a basis of you only pay a percentage of what you get...

Good luck.
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Feb 24, 2012 - Slipped on a large puddle of ice at work, hitting the back of my head. No loss of consciousness, so I assumed I'd be back at work within a few days. I was wrong.

When resting, symptoms are low. With exertion, I still suffer from fatigue, migraines, vision problems, problems thinking or reading, troubles sleeping, issues finding or getting words to my mouth when the headaches are bad, tinnitus, and thyroid issues which I think are due to the concussion. Seen one specialist, and now a few others through insurance review of my case. Hoping for further treatment.
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