Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 03-22-2013, 03:02 PM #11
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Originally Posted by Brain patch View Post
Lightrail,

How long did it take to get to this point? Anyway, really you are my inspiration and hero. I always think of you when I start to get down.
Much love,
Brain
Thank you for that. About 5 months.

I awoke in neuro rehab about 5 weeks after the accident. I did have a few scattered memories from the month in ICU, but most of the things I “remember” never actually happened, at least not the way I remember; my neuropsychologist called these confabulations.

The first week in neuro rehab is also a bit blurry. I remember some of my first speech therapy appointment. I didn’t know what year it was. I got my age wrong. I didn’t know who the president was. I didn’t know what hospital I was in or why. I did remember my name, and the names of my wife and kids.

I had speech, occupational, and physical therapy 5 days a week. After a while I began to piece things together. When discharged from inpatient after 4 weeks, a NPA indicated I still had deficits in spatial orientation, executive functioning, and working memory. I continued with outpatient therapy and things kept improving. I had a second NPA around the 5 month anniversary of the accident. That evaluation stated:

"On examination, the patient demonstrated intact cognition in all domains assessed including learning and memory, attention, processing speed, language skills, and executive functions. He has shown an excellent recovery from his severe injury only five months ago. From a cognitive standpoint there are currently no concerns with respect to the patient returning to work full time or returning to driving."

I am truly grateful. Wishing all of you continued progress.

__________________
What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 03-22-2013, 04:07 PM #12
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Wow! I wonder if the difference is that you were hurt so severely that you were put in the hospital and ICU and got the right treatment right off the bat. I somehow flew under the radar but was severely hurt. I am just so glad that you are doing so well. You have done a great job.
I do not know how much recovery I can have at this point. I am just hoping the neuropsychological evaluation people can come up with something that can help me. I have my (hopefully) last session with them at the end of the month. I will see what they have to say. Holding on to hope.
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Brain patch.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 03-22-2013, 06:14 PM #13
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Originally Posted by Brain patch View Post
Wow! I wonder if the difference is that you were hurt so severely that you were put in the hospital and ICU and got the right treatment right off the bat.

I do not know how much recovery I can have at this point. I am just hoping the neuropsychological evaluation people can come up with something that can help me. I have my (hopefully) last session with them at the end of the month. I will see what they have to say. Holding on to hope.
Brain
Yes, I believe the early treatment was key to my recovery. I was fortunate in that the accident happened about a mile from one of the top 10 neurological hospitals in the nation. They performed the craniotomy the evening of the accident.

Don't let go of that hope. Hopefully the NPA will give some direction on the best course of treatment. Best to you.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 03-23-2013, 11:01 AM #14
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Default Early Treatment

I was one that did not get early treatment and now I have PTSD you have brought hope to me I appreciate your story.
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What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 03-23-2013, 06:33 PM #15
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I only had mild tbis, thank god, but too many of them. I am amazed by how much those of you with severe tbis have had to deal with! I will try to remember that whenever I start feeling sorry for myself! I have a good friend who had a severe TBI and she's living a full healthy life now! It does happen!
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Old 03-25-2013, 11:47 PM #16
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Default Lightrail

I was wondering since this was very traumatic do you have PTSD?
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What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 03-26-2013, 10:25 AM #17
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Quote:
Originally Posted by MiaVita2012 View Post
I was wondering since this was very traumatic do you have PTSD?
Hi Mia.

Actually no, I have no PTSD symptoms. I think this is because I have no memory of the accident. I have 4 days of retrograde and about 5 weeks of post traumatic amnesia. I still ride the train from time to time with no sense of anxiety.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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