Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 03-26-2013, 01:31 PM #11
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Beckster - If your symptoms are coming and going/reducing then you are getting better. I had all the symptoms you mentioned, the only thing left now is earache and headache - but I have meds for this now. The key is to roll with it and not rush straight back into activity until you are 95% better.

I found that going back and doing things (non strenuous) gradually like the Supermarket a good test, each time it got better, until today I went and it was like being back to normal. Previously I hated the Supermarket more than anything.

Also going back to places where you struggled before with certain symptoms is a good test. If your upto it, walking is a good alternative exercise to test your progress. Swimming really provoked symptoms, even 1 or 2 lengths, today I swam 25 lengths. But don't try it if your not upto it.

Reading a book is a good test in progress for your concentration. Especially if you can manage it with background noise, something I never could have done three weeks ago.

I am going back to work this week, but still couldn't stand crowded or noises places, I will be completely better when I can manage this.

It is a rollercoaster, with good days and bad days, and I thought that I was better about 20 times over the past two months. I do feel I am getting better and so does my doctor, so thankfully I will be gradually trying to get back to normal.

Last edited by mouse1; 03-26-2013 at 01:54 PM.
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Old 03-26-2013, 07:45 PM #12
DFayesMom DFayesMom is offline
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Thumbs Down Glad to offer you some hope!

So basically, after my last concussion, I started having that pain behind and above my left eye. I was going to a physical therapist for this vestibular therapy, and she was getting very frustrated by her inability to help me with my headaches. She finally told me that she thought I should consult with her colleague who was a spine specialist. Maria came over felt the back of my neck, immediately felt that my there was a gap between my C2 when C3 vertebrae, and then with a very gentle adjustment that took less than a minute, she fixed the gap. My headache went away instantly. She was like an angel! Immediately, my physical therapist Jodi said, "you need to be going to her." She was smart enough and good enough at her job to recognize her own limitations. (The way physical therapists are, they're all very specialized.) Jodi also recommended me for the neuro-optometrist, so I'll also always be grateful to her for that.

So yeah, if i were you I'd look for a physical therapist trained in the mulligan technique and/or get a ct scan of your neck. I only mention the CT scan because after my headaches were relieved, I received my medical records from the hospital I'd gone to after the car accident and was infuriated to find that the doctor had noted an anomaly between the C2 and C3 vertebrae and hadn't mentioned it to me! I couldn't believe it. If he had just said something to me, then I wouldn't have had horrible headaches for a month and a half! I am never going to that hospital again.

Anyway, the Mulligan technique does not involve any cracking or anything like that. You can Google it to find out more! I'd be interested in knowing if you ended up having an issue with your neck. Good luck!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 03-27-2013, 08:09 AM #13
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I thought I was getting better this week too. I had a couple of good days. So I tried grocery shopping, a big trigger for me. That brought most of my symptoms back. Bummer. I was so hopeful. I'm at month six. I had more good days around Christmas. But I think I have been working too much since then. My advice would be to rest more, but don,t let depression take over.
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Old 03-27-2013, 09:44 AM #14
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Sorry about your injury. It is hell, isn't it!!!
I have slow progress...baby steps, really, and setbacks when I overdo things.
I was so looking forward to the six month mark because my doctor ASSURED me that it would all be gone. Not for me. I think if you are continuing to feel better slowly, that is a good thing. Each injury is different. Rest is important but I also try to get back to living...sometimes I overdo it. Grocercy store, staying up late, etc.

Good luck!!! Hang in there.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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