Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 03-27-2013, 08:04 PM #11
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Cyclecrash,

This is definitely a great road to start on. The medication will help, definitely. If this one doesn't work, hold on! There are more out there. I tried so many meds till I found my two! Once they started working, it was like someone switched on a light! Paxil and Remeron are my combo. Paxil is used for my anxiety and Remeron is used for the nausea and sexual side effects Paxil has. I love Remeron, though for this as I take it at night for sleep and wake up peaceful. Feel better soon!
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College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012.

Symptoms: Occipital Neuralgia.
2 MRI's and CT normal.

Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now.

Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy.

Was experiencing:
Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit.

Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm.

Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside!
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Old 03-28-2013, 04:14 AM #12
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Default Concussion

Could you explain this to me better please and thank you.Because this is my medication.Is it not better to need dosage increases and increases.Sorry little confused.

4. Do not let them substitute the new drug, Pristiq, in its place - it is the drug company's (same company that makes Effexor), replacement since Effexor is ready for the generic market - Effexor can have dosage increases with increase effects noted if / when necessary; however that has not been the case with Pristiq in any study to date. (Note: what I mean is- sometimes when you are on a drug awhile, the current dose seems not to do what it use to do, so your doc increases the dose a bit for more effect, and it works again; well with Pristiq, the studies haven't shown that to occur with it.
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 03-28-2013, 08:01 AM #13
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Pristiq works basically at the recommended dose, and if you try to go higher, it won't do anything. Nada. Zero. Zilch. I think that's what he means. Not sure though. Even I am confused lol!
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College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012.

Symptoms: Occipital Neuralgia.
2 MRI's and CT normal.

Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now.

Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy.

Was experiencing:
Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit.

Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm.

Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside!
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Old 03-28-2013, 10:12 AM #14
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Yes that is what the studies have shown.

Pristiq will not show improvement of effect with increasing the dosage like Effexor does.

Pristq is Effexor - supercharged - a chemical alteration of Effexor. However , the studies have shown that increasing dosages of Effexor will show increasing effects for the patient , while increasing the dose of Pristiq will not.

You can find more info in this Pristiq link. < This guy is constantly updating his information, and his resources, so you can always recheck the info.

Sorry for the late edit: If Pristiq is working for you, Great, Im not saying it isn't a good drug; as the link shows. And further studies may eventually gather enough to finally give it the ok on increasing dosage vs. effect, we can hope, for those on it.
__________________

.
Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses.
Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings.

Last edited by Concussion; 03-28-2013 at 11:37 AM.
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Old 03-29-2013, 07:50 AM #15
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C.C,
I would recommend you read about Effexor on a website called crazy meds. It looks like this med has a real bad withdrawl syndrome when trying to come of it. As well as some bad side effects that I did not know about. I would definately check out what people are saying about this med on that website.
I don't know why the doctors keep trying to treat us with psychiatric medication. I absolutely refuse them after trying so many for chronic pain and having horrible results. Just an F.Y.I.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 03-29-2013, 07:59 AM #16
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Default Brain I got a bone to pick

Every medication has side effects.The reason and purpose of us needing these is for a crutch to our brain.When the central nervous system is moved around everything that is connected is moved.I refused all pain medicine and antidepressants till I got a diagnosis.And I must say that I am nowhere near dwelling on negative like I used to.But I still got Love for ya lol

PS I could not leave the house either till I got on my crutch and went
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 03-29-2013, 08:24 AM #17
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Default No offense meant Mia

I know everyone is different and medication is needed. I am on medication. I am not saying anything negative. C.C asked if anyone knew about Effexor. I read some information about it that she might want to know about. We all have to make our own decisions about medications. We all react differently to medications. What helps me may make you feel terrible. I am not saying anything bad about needing medication. I have to take MS Contin, Clonazepam and Ambian myself. Pain and sleep disorders are the main problems that I have to control. I am not against medication. I am only giving information for consideration.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 03-29-2013, 08:30 AM #18
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Also, you do not have chronic pain. You telling me that you did not leave your house either until you got on your crutch and went is like me telling you to just overcome brain damage with positive thinking.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 03-29-2013, 08:30 AM #19
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Absolutely.

The meds are useful. Some are tolerated very well. Some are not.

Please remember. We are individuals... and one thing we have to bear in mind is sometimes our PCP's are busy, under pressure by us, and tend to forget alot of the information is available to them.

That is why I posted that its not a bad thing to present them with the information about plans, like withdrawals regimens if/when you are ready to stop these meds - because there are really no true plans plotted out other than those tried by others like us and their docs.

Just like places like CrazyMeds points out, there is information about these drugs out there that until its forced out of the drug companies, even the docs haven't heard about it.

If they are working for you, great; its not to worry now. If you are worried, then talk it over with your PCP, and begin planning to withdraw, sensibly... NEVER Cold Turkey, unless its an Emergency, and never without Medical attention.

Best Wishes

__________________

.
Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses.
Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings.
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Old 03-29-2013, 08:47 AM #20
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Default Brain

I did have chronic pain from a dislocated Jaw/TMJ on top of a TBI.I tried the pain meds and I still hurt,then my PCP put me on 4 muscle relaxer at one time.That did not last but a month or two.I had to live with the pain until now.Sorry if you got offended.I was not directing it to you at all.I really was meaning that I wish I was smart enough to look at withdraw before since I am on Pristiq and I take valium.
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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