Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 03-30-2013, 11:00 AM #1
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Default Does anyone have trouble dressing themselves?

Hi Guys,
Hope you are all having a good day. I am just wondering if any of you have trouble bathing, washing hair, dressing, putting on makeup, hair brushing, teeth brushing, basically all grooming? Also, does anyone else have trouble using a fork? I am so messy when eating now it is embarrassing. Maybe it is due to eye problems but I seem to have trouble getting the fork from plate to my mouth. Also just holding the fork is difficult. Same with toothbrush etc.
Am I the only one? I used to be such a stylish dresser. Now I have a hard time putting an outfit together. It takes all the brain power I have and leaves me exhausted.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 03-30-2013, 11:10 AM #2
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It is a full day to put myself together like I used to in a hour and half from head to toe now.I will wash my hair a few times a week and walk around with a ponytail until following day to straighten my hair(my hair is very long now)Makeup these days would be a very special event needed.My apparel is all messed up so I usually just stick with sweat suites that match.I can eat fine(when I do)but I have to check my face or clothes after otherwise I will walk around with food all over me lol.
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What Happened: In 2011 I was in a MVA
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Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 03-30-2013, 11:18 AM #3
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Lol. Same for me. I usually stick with matching sweat suits too. Then I can just go to bed in them. Makeup would have to be a very special occasion also. I don't even think I am coordinated enough to put it on. Would probably take my eye out with mascara.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 03-30-2013, 11:20 AM #4
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Yikes Brain! I don't know how I could deal with that! I am sorry you are dealing with this. Don't be too hard on yourself, do what you can. Ask for help if you need it. My grandfather who recently passed away 2 years ago due to cancer, had trouble with even the slightest things. Then, on top of that, my great grandmother had dementia, and I had to help take care of both of them. I always told them both never to be ashamed of asking for help. My Nana (great grandmother) died later on due to not eating because of depression associated with her dementia, I was really proud to help her and my grandfather too.

During the early stages of my recovery, friends were helping me. I couldn't get up and do most things. I was totally weak, confused and lethargic. But I was always hanging on. It's okay to feel overwhelmed by all the regular habits, I was too! Eating was hard too, in fact, it was actually annoying. I was so nauseous, food was the last thing I would even think about. All I did was drink water, and eat a tiny bit and vitamins. It was all overwhelming, very overwhelming. So, don't dwell on it too much, it is all a part of recovery.
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College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012.

Symptoms: Occipital Neuralgia.
2 MRI's and CT normal.

Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now.

Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy.

Was experiencing:
Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit.

Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm.

Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside!
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Old 04-01-2013, 06:24 PM #5
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I definitely had this trouble at the beginning but thankfully it got quite a bit better. I am so sorry you're going through this, and I wish it wasn't so hard for us to just "live". Things we used to take for granted as just part of being an adult are now taking effort and cause exhaustion. So frustrating.

I'm sure all of us in our various no-makeup/sweatshirt/yoga pants combinations are some HAWT patients! We're beautiful, inside and out!
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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