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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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04-04-2013, 09:48 AM | #11 | ||
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I am thankful that I can answer people who ask me, "how are you doing?", with my usual statement of " I am alive".
I realize that my injury could have been more than it was, and it didn't evolve to that level. I realize that, in its own fashion, I am in a recovery mode, on its own track. I realize that my brain is in charge of this recovery, and I have to do nothing but listen, and work within the confines of what I can as far as it allows for me to try. I realize I am living, and have my loved one(s) close as needed, and they are with me for any support I may need. I realize that we have also got each other here on these forums to reach out to as a huge support machine, to encourage each other when times are rough, and no one else can really grasp some of what we are going through. Thank you all. Best Wishes
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. Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses. Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings. |
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"Thanks for this!" says: | Brain patch (04-04-2013), camyam73 (04-04-2013), MiaVita2012 (04-05-2013), Mokey (04-05-2013), mouse1 (04-04-2013), MsRriO (04-05-2013), Su seb (04-04-2013), Theta Z (04-05-2013) |
04-04-2013, 01:24 PM | #12 | ||
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Today, even though I have a headache, it's not overwhelming, so for that I am thankful. I am also thankful for my amazing hubby and kids who've made this last year as easy as it could be, and for the job my husband has which has allowed me to not work, without worrying about money overmuch.
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Feb 24, 2012 - Slipped on a large puddle of ice at work, hitting the back of my head. No loss of consciousness, so I assumed I'd be back at work within a few days. I was wrong. When resting, symptoms are low. With exertion, I still suffer from fatigue, migraines, vision problems, problems thinking or reading, troubles sleeping, issues finding or getting words to my mouth when the headaches are bad, tinnitus, and thyroid issues which I think are due to the concussion. Seen one specialist, and now a few others through insurance review of my case. Hoping for further treatment. |
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04-04-2013, 11:59 PM | #13 | |||
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I'm thankful for this thread. I need the positivity.
I'm thankful for the obvious; family, friends, shelter, food, relatively ok health. I'm thankful for the less obvious: new prism glasses that are easing pain, yoga pants that forgive the new ten pounds thanks to inactivity and Elavil, being able to drive the boys to the pool today for public swimming! What an accomplishment! I'm thankful that I'm improving, although slowly, because I recall a hellish January and here we are in April, driving short distances without dizziness overtaking. Amazing. I'm thankful for meditation, and for the book of Acts that I'm in the midst of reading again. Yes, reading! Thanks to prism glasses!!! I'm thankful for a slower, quieter, new normal. I don't miss the chaos of my former life like I used to.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
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04-05-2013, 11:44 AM | #14 | |||
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I am thankful that I am even able to respond to this post. A few years ago, I had trouble stringing a few simple words together to form a sentence. I am thankful that the nausea and vomiting has finally remitted, and that I don't need to take medication for this on a daily basis anymore. I am thankful that I am now able to sleep normally, and no longer have issues with chronic insomnia. Although it has been difficult to deal with the PCS symptoms, it has made me a more compassionate person. I work with adults who have autism, and now understand what it feels like to have hyperacusis and sensory overload, as I have experienced these issues myself.
Last edited by dare2bdifferent; 04-05-2013 at 12:08 PM. |
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04-05-2013, 03:41 PM | #15 | |||
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Great positive post, camyam. Thank you.
Today I am thankful for paying my rent, today. I am thankful for Springtime, sunshine, low-humidity ... doors and windows open ... songbirds feeding, and geckos sunning just outside my door ... a walk to the Bay. I am thankful for all the "taking care of the bizness of life" that I *have* been able to do here today, on phone, and online. And I'm thankful to be doing as well as I am ... and not obsessive-thinking over how/what I'm "not". I'm thankful that I have a 12-day silent meditation training (*free) for which I am registered to attend long distance out-of-state next week ... *if* I can get a ride to/from same ... and thankful that I'm not stressing-out over whether I'll have transportation to go. I'm thankful that I'm learning better to live one day, one hour at a time.
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_____________________________ . 50s Babyboomer; 2008 high-impact rear-ended/totalled-MVC, closed-head injury->pcs ... "Still dealing with it." 1993, Fell on black ice; first closed-head injury; life-altering. // 2014 Now dealing with Peripheral Neuropathy, tremors, shakiness, vestibular disorder, akithesia, anhedonia, yada yada, likely thanks to rx meds // 2014: uprooted to the cold wet gray NW coast, trying to find a way back home ... where it's blue sky and warm! . __________________________________________________ _________ Each and every day I am better and better. I affirm and give thanks that it is so. // 2014-This was still true for me last year, I truly felt this a year ago. Unfortunately it holds no meaning for me now. Odd, it was the Theta mantra for years. Change change change. |
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04-08-2013, 02:56 PM | #16 | |||
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I have been thinking about small thing's that I am thankful of. I came up with a longer list of HUGE, BIG and now small. The small thing's I am thankful for is my Reebok Zig's for my physical part, the squirrels that are fun to watch, and soon I am going to learn how to plant flower's to make my yard pretty and do my own cognitive therapy with. I graduated the Organic soap making for winter month's. It is spring time!Time to get outside more!!!
~I NEVER thought the squirrels lol Because they would have a party on my roof when I was in acute stage and subacute stage. Their party would make it HARD for me to concentrate when in "unknown" stage and was in college trying to do a paper on computer at home. Hope that made some people laugh or smile!
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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"Thanks for this!" says: | Brain patch (04-08-2013), Theta Z (04-13-2014) |
04-08-2013, 03:28 PM | #17 | |||
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I am thankful for this thread! It's always important for me to remember to have a sense of gratitude and thanks rather than dwell on things that are troubling to me.
First and foremost, I’m thankful to be alive. When I was first admitted to the hospital after my accident, that wasn’t considered the most likely outcome. A special shout out of thanks to neurosurgeon Steve Chang MD, who performed the lifesaving craniotomy the night of my accident. I’m grateful for my wife, who was (and is) a rock of support. She was my caregiver when I couldn’t care for myself. The list of family, friends and co-workers who shared love and prayer is too long to list but you know who you are and I am grateful to you all. I’m thankful for my little therapy pug Keona. Best to you all. I'm thankful for all of you who continue to share your experience, strength and hope.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition. Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life. |
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04-08-2013, 03:52 PM | #18 | |||
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Love these posts!
Today I'm thankful for Cadbury Mini Eggs. Lol. (Yes I know, bad sugar but I can only handle so much temptation from the Easter Bunny. I am weak!) I'm thankful for a quiet house again after the ten day Easter break with all the kids here, which was equal parts awesome and tiring. Well maybe more like 60/40 favouring awesome. I'm thankful for reusable ice packs. Heaven in a bag. I'm thankful for the school bus which will bring my "sunshine" home in less than an hour.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
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04-08-2013, 04:24 PM | #19 | ||
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I can relate, MiaVita! For the first three months, as well as the trucks digging up the road around my house, I had squirrels on the roof going crazy hiding nuts, and mice in the basement under my bedroom makng those chewy noises. i thought I would die from the sounds! I didn't, and am thankful the mice are gone and the trucks are gone. Love the squirrels!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. Last edited by Mokey; 04-08-2013 at 09:40 PM. |
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"Thanks for this!" says: | Brain patch (04-08-2013), MiaVita2012 (04-08-2013) |
04-08-2013, 09:17 PM | #20 | ||
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I am very thankful that my dizzy and balance problems are 80 percent better after six weeks of therapy at the national dizzy and blance center.
Su seb |
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"Thanks for this!" says: | Brain patch (04-08-2013), Mokey (04-08-2013) |
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