Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-15-2013, 10:04 PM #21
DFayesMom DFayesMom is offline
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DFayesMom DFayesMom is offline
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Default I wanted to add one more thing!

Anyone within a few hour drive from Columbus, OH, send me a message if you are interested in seeing this doctor for an evaluation. I am a firm believer in his methods and happy to pass on his info to others.

Also, to those of you who think you can't do this kind of therapy, I know that my doctor wouldn't put anyone through this kind of therapy who wasn't ready for it! My vertigo was severe, and I managed to get through it. I couldn't have done it while working though, even though some people apparently do! Brave souls!

At my worst, back in September/October 2012, I felt like the whole world was falling upward with any movement. It was terribly unnerving. It would have been very difficult to do this therapy then, I think. By the time I started the sensory integration therapy, I had improved to the point where I felt dizzy with almost any movement, but my dizziness never went above a 4 on a scale from 1 to 10 with my normal restricted day-to-day activities--like walking, turning around, standing up, etc.--but more unusual activities like watching my daughter on a trampoline or swinging on a swing or just dancing would send my dizziness through the roof. In just a month, I went from that level of dizziness to, I think it's safe to say now, normal. I'm still just amazed by my progress and hopeful that others might benefit from hearing about it.
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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MiaVita2012 (04-16-2013), Mokey (04-15-2013)

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Old 04-16-2013, 06:19 AM #22
DFayesMom DFayesMom is offline
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Exclamation Forgot to say

Oops! Forgot to say . . .
While I was on the table doing the therapy, I also wore headphones softly playing "music" that sounds like it's caught between two radio stations. I know some of you will think that would just be unbearable, but it wasn't that bad. The only thing that sucked is when they would play a really bad song. Even with it that broken up, you can still tell when something sucks!
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 04-16-2013, 09:20 AM #23
Mokey Mokey is offline
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Default

The research I did on central auditory damage has a simlilar therapy...one ear listens to an audio book and the other ear to some soft music. (two ipods..two earbuds!). There is also an Ipad app for desensitizing sound....Ease or Ease light (99 cent version!). I downloaded it and boy does it challenge! Variations in frequencies, change of tempo, style, etc.

All these things help promote change.....think neuroplasticity!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 04-16-2013, 11:32 AM #24
DFayesMom DFayesMom is offline
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DFayesMom DFayesMom is offline
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Default From my doctor's website:

About sensory integration therapy:

Can it be too much stimulation at once?

On the contrary, by stimulating the well-developed sensory systems concurrently with the weaker sensory systems, the Sensory Learning Program provides an overall experience that is often gentler and more easily integrated than singularly focused interventions. Because we do not experience life in isolated modalities, the Sensory Learning Program actually provides a more holistic approach to developmental learning than do individual therapies alone.
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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