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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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04-06-2013, 03:50 PM
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Hi all,
I went into this therapy not realizing that what I was doing was different than the standard vision therapy. I pretty much just trusted my physical therapist's recommendation. Had I known, I might have hesitated, because as far as I can tell, there is less science supporting sensory integration therapy as a treatment for PCS. It's costing me hundreds of dollars that my insurance will not cover but I decided to try it anyway. So far, I've seen definite improvements. The first week of he therapy; my depth perception noticibly improved. Maybe about two weeks into it, I felt like MAYBE my dizziness was a smidge better. I finished my 30 days of therapy on Thursday, and I think it was on Tuesday that I realized I was spinning round and round in the pool with my daughter without getting dizzy!!!!! I could have cried I was so so happy! I want to push some boundaries, see what I can do now, but I also don't want to do the wrong thing and set myself back! Right now, I'm at Disney World with my family and I soooooo want to ride the teacups, but I think the better first step is to see if I can watch people on the tea cups! Just 3 months ago, I could not watch my daughter bounce on a trampoline without getting extreme vertigo! If I can find just a traditional playground, I might try swinging on a swing with her and see how that goes. I couldn't even move back and forth gently and slowly on a swing just three months ago either, so that would be a good test. (Don't worry, I won't endanger my daughter! I'll try it without her before I try it with her!) I do also feel that my light sensitivity to the sun has improved slightly, but my light sensitivity to computer screens and fluorescent lighting seems to be just as bad as before. Still, the dr said that this doesnt tend to start improving until after the therapy is over. I'm anxiously awaiting further results! Anyway, just wanted to share my results/experience thus far! Keep your fingers crossed fOr me!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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04-06-2013, 03:54 PM
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Just the fact that I'm at Disney World is evIdence of how much I have improved over the last 6 months. At one point, this would have been a nightmare scenario for me! It's still a bit of a challenge, but I'm doing fine with it so far!
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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| "Thanks for this!" says: | Brain patch (04-06-2013) |
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04-06-2013, 05:57 PM
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This is really encouraging and I hope it lasts!!! Keep the updates coming.
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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| "Thanks for this!" says: | DFayesMom (04-15-2013) |
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04-06-2013, 08:21 PM
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Thanks! I will! Poetrymom, do you write poetry? Or just like it? I am a poet (or was one?) so I'm just curious! I haven't got back on that horse yet!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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04-06-2013, 09:11 PM
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I write a lot, but mostly stuff for school (teacher) but have published poems here and there and work on fiction and memoire writing too. But more sporadically...mostly rhyming poems for children is what I have though our kids here are nearly 17 and 19. I love to do dialogue writing with students when I can work that in the curriculum.
My symptoms have suddenly improved a ton this week and I feel very hopeful, but know, I've been well before only to slide back into that dizzy, tired hole. Keep on feeling better!!
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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04-06-2013, 09:19 PM
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I've published poems here and there too but am now working on kids books. I'd like to start writing poems again but my eyes need to improve a bit more first!
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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04-06-2013, 09:29 PM
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CBI (children's book insider) is a great site and they have a montly newsletter about the children's book business -- which is hard, hard, hard to break into. There is also Childrne's Writer and I subsribe to that. Ok I have to go,, I can't type for anything which is part of this whole TBI thing.....ack tired, but keep writing
All for now JJ
__________________
[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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| "Thanks for this!" says: | DFayesMom (04-08-2013) |
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04-07-2013, 02:52 PM
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I'll definitely check those out!
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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04-07-2013, 03:05 PM
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I found some advantage in using the dictation app that comes with the new Mac (apple?) operating system. It allowed me to get some thoughts down on paper even with my sore brain and eyes!
Great to keep those writing ambitions and dreams alive!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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04-07-2013, 09:16 PM
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I rode with my daughter on the Dumbo ride! It spins around in circles and goes up and down, and I didn't get dizzy at all! I was too chicken to try the teacups, though I was very tempted, but there are three kinds of spinning going on there, and I just thought it would be too much. I didn't want to ruin the rest of my day. At this point, I am calling my sensory integration therapy a success regardless of whether it helps with my light sensitivity issues. I've had this dizziness for six months and it was not getting better with vestibular therapy. It's too soon to say that I'm cured, but after one month of the sensory integration therapy, I've experienced significant results, and according to my dr, it takes time to get the full effect of it, so I'm hopeful for more.
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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| "Thanks for this!" says: | Lightrail11 (04-08-2013), xanadu00 (04-11-2013) |
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