Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-08-2013, 07:50 PM #1
anon22217
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Default Hi everyone! New Here. My Story.

Hi everyone,

I would like to introduce myself.

I have been hit in the head a total of 7 times in the past two years. Most recently, I was hit in November. Then Again this January and then again middle of February. It was the February hit that has changed my life. Since then I have suffered from constant daily migraine headaches with light sensitivity in the left eye, pain in the head and pins and needles feelings as well. I've had to stop marathon training and my M.A program. The pain has improved a little bit but it's still there. I also had a normal CT and vision check. I haven't gone on any medications as I want it to heal naturally. I've been on a vitamin Regimen and have gone to acupuncture once a week which hasn't made a noticeable difference. I saw a neurologist for the first time last week and she prescribed a course of predisone. I haven't taken it yet as I'm a little bit afraid and still prefer to let it heal naturally. But I can't take the daily constant pain and just might start it tomorrow.

Can anyone please give me some advice or thier own thoughts on my story?
Why would a concussion cause daily constant migraines?
Is a migrane due to inflammation from my concussion?
Can predisone really help me? My neurologist told me that she has seen success with it with her other patients. So if i take the week long course will the daily migranes just really suddenly stop?
I'm so confused and scared and reading a lot of the posts here just scared also that things won't ever get better

Thank you everyone for your support.
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Old 04-08-2013, 08:47 PM #2
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Quote:
Originally Posted by bluehiroko View Post
Hi everyone,

I would like to introduce myself.

I have been hit in the head a total of 7 times in the past two years. Most recently, I was hit in November. Then Again this January and then again middle of February. It was the February hit that has changed my life. Since then I have suffered from constant daily migraine headaches with light sensitivity in the left eye, pain in the head and pins and needles feelings as well. I've had to stop marathon training and my M.A program. The pain has improved a little bit but it's still there. I also had a normal CT and vision check. I haven't gone on any medications as I want it to heal naturally. I've been on a vitamin Regimen and have gone to acupuncture once a week which hasn't made a noticeable difference. I saw a neurologist for the first time last week and she prescribed a course of predisone. I haven't taken it yet as I'm a little bit afraid and still prefer to let it heal naturally. But I can't take the daily constant pain and just might start it tomorrow.

Can anyone please give me some advice or thier own thoughts on my story?
Why would a concussion cause daily constant migraines?
Is a migrane due to inflammation from my concussion?
Can predisone really help me? My neurologist told me that she has seen success with it with her other patients. So if i take the week long course will the daily migranes just really suddenly stop?
I'm so confused and scared and reading a lot of the posts here just scared also that things won't ever get better

Thank you everyone for your support.

I had pain above and behind my left eye and it was due to a gap between my c2 and C3 vertabrae after my fourth concussion in 2 years. My physical therapist fixed the gap using the mulligan technique (google if interested) and taught me how to fix it myself if the Problem were to reoccur, which I have done several times. Before it was fixed, I had terrible daily headaches--ranging between 4 and 8 on a scale from 1-10 (with 10 being mind-blowing migraine). I'm not saying this is what is wrong with you, but it could be worth getting a ct scan or seeing a spine specialist.

The tingling could also be from a neck injury. It sounds nerve-related.

Lastly, don't lose hope! You can get better! Read the hope and healing thread at the top of the board. My story is in there, but I'll have to add an addendum because my recovery is even close, to finished now! I basically went from memory loss and other cognitive problems, as well as severe vertigo and terrible daily headaches, to pretty close to fine. I'm sure I will recOver completely.
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 04-08-2013, 09:49 PM #3
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Hi Blue,
Welcome! I have also taken numerous hits to the head. The life changing one being in feb of 2006. I also suffer from extreme migraine headaches. I would try the prednisone if it is only for a short period of time. This medication is a powerful steroid that is hard on your liver and can cause major bloating, water/fluid retention. I have heard it is very helpful for those that can tolerate it. I would not use this as a long term remedy. It may reduce inflammation enough to relieve the problem for quite a while. I have found meditation to be the number one most helpful thing and it is all natural with no side effects. Meditation helps with all the symptoms especially the anxiety and insomnia. Try it out while you are in bed trying to go to sleep. Just try concentrating on your breathing. Also sunglasses for light sensitivity, earplugs for noise sensitivity and eating a well balanced diet are crucial. You can find a wide variety of guided meditations or just relaxing meditation music on u-tube. I have found that nature sounds like water or whales singing help for relaxation and meditation. These can also be used as "white noise" to block out unwanted noise. Above all you need to REST. Give yourself and your brain a break. Keep out of crowded, noisy environments. You can and will recover. Some do not recover to what their past life was but find a new way of living that can be equal to or greater than the level you were at prior to your injuries. You just have to adapt and learn new ways to live and enjoy life. Listen to your body. These headaches are telling you that you are doing too much and need to change things. Good to have you here with us. Don't give up. Things get better. This is a slow recovery.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 04-08-2013, 11:15 PM #4
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Bluehiroko,

Welcome to NeuroTalk. It sounds like you have had a rough two years.

Your head aches can be directly related to the impacts or can be related to an upper neck injury.

Please tell us more about how you got your head impacts. What have you tried to help with your head aches ? have you tried icing your head and neck ? Icing the back of your head and upper neck will likely show some improvement.

Taking aspirin or ibuprofen may be important to give you a break from the pain. Tylenol/acetaminophen/paracetamol should be avoided due to negative impacts on the brain.

What is in your vitamin regimen ? Please feel free to tell us about yourself , your daily activities, where you live, etc. so we can offer better support. Are you in the US ?

My best to you as you deal with your head aches.
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Old 04-09-2013, 01:46 PM #5
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I don't know what to advise about natural remedies.

From my own experience I had very bad headaches with light sensitivity for the first 2-3 months of PCS which wouldn't go away with over the counter medication. I was then prescribed a migraine medication called Imigran and this took my headache away.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 04-09-2013, 04:14 PM #6
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Default Thank you

Thank you everyone for your replies!

I was in a very abusive relationship for three years So I was punched in the head But I'm out of that relationship now and just trying to recover physically and mentally from it.



Let me tell you the whole story and the progression of my symptoms .I was basically punched in the head on February 21st. I felt fine that day. Then i began to feel dizzy for two days. After two days I began to get intense headaches on the top of my head. Then a week later I began to feel numbness and light sensitivity in my left eye as well as pressure. The pressure and light sensitity in my left eye has improved and the headaches have also improved. Then I went hiking last weekend. Then since coming back from hiking, the headaches and pins and needles feelings suddenly came back. Now i'm left with
migrane headaches mainly on the left hand side of the back of my head with numbness and light sensititivity in the left eye and left part of face. Sometimes the pain will spread to my whole head and I've also had pins and needles pain all over my head as well. I think it has improved overall.

Sometimes I feel really depressed knowing that my injuries not from an accident but something done on purpose to me and I could've prevented it myself by leaving but I wasn't strong enough. Anyway just trying to be positive.

I haven't tried icing. Just been trying to eat healthy and take a vitamin regimen and now on my first day of predisone. So I pray that this wil work.
Have also been doing weekly massage and acupuncture.

Do you think I should see a chiropracter?

Thank you everyone again for your advice and support.

Quote:
Originally Posted by Mark in Idaho View Post
Bluehiroko,

Welcome to NeuroTalk. It sounds like you have had a rough two years.

Your head aches can be directly related to the impacts or can be related to an upper neck injury.

Please tell us more about how you got your head impacts. What have you tried to help with your head aches ? have you tried icing your head and neck ? Icing the back of your head and upper neck will likely show some improvement.

Taking aspirin or ibuprofen may be important to give you a break from the pain. Tylenol/acetaminophen/paracetamol should be avoided due to negative impacts on the brain.

What is in your vitamin regimen ? Please feel free to tell us about yourself , your daily activities, where you live, etc. so we can offer better support. Are you in the US ?

My best to you as you deal with your head aches.
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Old 04-09-2013, 05:30 PM #7
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Default Welcome

Welcome to the board. Everyone has a different story. I just slipped and fell. But most of us understand the similar symptoms. You can get lots of good advice here.
Frankly, I'm not a doctor but I wouldn't go on prednisone again. I just don't like what it does to me.
Migraines are common. I take topomax to help prevent them. That is the only med I take. The rest are supplements. I also try to prevent the headaches by not overdoing it. If I feel symptoms coming on, I take a step back and rest.
Good luck
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Old 04-09-2013, 05:36 PM #8
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Default Wow

I'm so sorry to hear of what you've been through, but glad you had the strength to leave!

I honestly am not sure which specialist to recommend for a potential neck problem. I went an unconventional route I wouldn't advise. Maybe someone else can recommend who to see
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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