Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-21-2013, 10:34 PM #11
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Giving this thread a quick bump!

Quick questions on chiros - do I need one trained in UCC? Or would a general chiro suffice? There are a few western-trained chiros in my city in China, but I believe they are all generalists. I am wary of the quick and violent looking neck snaps!

Also, would an osteo be worth my time?

Feeling so conflicted on the cause of this - my ears really started bothering me about a week AFTER the hit (they swelled up the day of and day after, but felt fine after for a week)... I am self-doubting over if the concussion caused it or not.
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March 3, 2013: Directly hit top of head while jumping, impact went straight down neck and spine.

Symptoms: Congested/plugged ears (along with post naasal-drip and drainage down back of throat), increased tinnitus, sound sensitivity, minor imbalance, difficulty concentrating, difficulty reading and focusing on words and moving objects.
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Old 05-05-2013, 07:55 PM #12
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I am still struggling with this ear problem. I visited my ENT in China again, and he started me on a 16 day round of 250mgx2 clarithromycin. The reasoning behind this is that I've been coughing up some yellow gunk since about a week after my ears plugged up. I am still at a loss for the cause. I'd love to think it is caused by infection. My sinus CT and chest x-rays that I had some weeks back were both clear though (aside from sinus inflammation on the CT).

The doctor doesn't believe there is a connection between my inflamed sinuses (perhaps from the concussion?) or any potential neck injury and the ear plugging. I am going on thursday to consult with a neurosurgeon again, and hopefully I will obtain a neck x-ray and MRI.

It is frustrating, because I've gone through so many old posts on here and seen many talk of the same symptoms, but no one has really posted a resolution. I am considering all different kinds of outlets - ear grommets, osteo, chiro, massage therapist, supplements, etc, but don't know where to start!
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March 3, 2013: Directly hit top of head while jumping, impact went straight down neck and spine.

Symptoms: Congested/plugged ears (along with post naasal-drip and drainage down back of throat), increased tinnitus, sound sensitivity, minor imbalance, difficulty concentrating, difficulty reading and focusing on words and moving objects.
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Old 05-05-2013, 08:55 PM #13
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I personal would start with diet and no dairy to see if you see any changes. Are you doing quiet rest?
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What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 05-05-2013, 09:34 PM #14
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Default glad I am not alone- thanks for sharing your stories

Hi in Dec 2009 I had a car accident- where someone pulled in front of me. She did not have insurance and it was really hard to find any help. Around here, Raleigh NC, many neurologist do not see car accident victims. It took a long time before I figured out what was going on. I was finally in graduate school and doing well, enjoying it- following my dream when the accident occurred. In December 2012 I was thinking I could soon start looking for another job and thinking about when I could go back to school- if ever. Then a man pulled in front of me, and once again MTBI. This time I am grateful for the airbag that made a major difference. The witnesses who were so kiind and helpful and the guy has insurance.

HOwever here I am 6 months later struggling and can find little hep support. I am getting very angry and sometime have suicidal thoughts. I was just put on an antidepressant. My husband is clueless and my kids- teens and are in their own world. I just find it so depressing to have to go through this again.

I'm looking for hope and guidance.
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Old 05-06-2013, 03:30 PM #15
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Having previously had fullness in my ears, hypercusis, tinnitus, noise sensitivity and hypersensitive hearing I have a new problem.

Whilst all of these other very distressing symptoms have gone, I now have a rattling/rushing sensation and noise in my ears. I have never had this during the first 6 months of PCS.

I think this could be the sound of blood flow, which I am now faintly hearing. It comes and goes and is very irritating indeed. Has anyone else had this?
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 05-06-2013, 08:30 PM #16
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It could be fluid in your ears giving you the sound/sensation. When the eustachian tubes aren't functioning as well as they should be, it's very easy for fluid or mucus to get stuck in there. Did you try pseudoephedrine to see if it helped?

Not sure if it is the same as your issue, but whenever I burp/yawn/hiccup I get a massive wave of air or pressure or something into my ears that makes my eardrum vibrate, kind of like when you get to close to something very loud and it makes your eardrums wobbly.

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Originally Posted by mouse1 View Post
Having previously had fullness in my ears, hypercusis, tinnitus, noise sensitivity and hypersensitive hearing I have a new problem.

Whilst all of these other very distressing symptoms have gone, I now have a rattling/rushing sensation and noise in my ears. I have never had this during the first 6 months of PCS.

I think this could be the sound of blood flow, which I am now faintly hearing. It comes and goes and is very irritating indeed. Has anyone else had this?
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March 3, 2013: Directly hit top of head while jumping, impact went straight down neck and spine.

Symptoms: Congested/plugged ears (along with post naasal-drip and drainage down back of throat), increased tinnitus, sound sensitivity, minor imbalance, difficulty concentrating, difficulty reading and focusing on words and moving objects.
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Old 05-06-2013, 10:25 PM #17
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If you try the no dairy it will eliminate the mucus from sinus that is a "flu like symptom".I had this I thought I had water in my ears for some months.

I am telling you to leave dairy Alone and you will probably see changes also add time for concussion to run it's course.You are still very early in your recovery and this is not something you cannot rush sorry.It sucks and be gentle to yourself.

Recovery is not a sprint. It is a marathon.A marathon of effort to prevent relapses.Those who learn how to run this marathon do quite well.Some try other ways for a long time before they learn to run the marathon.The sooner you accept the need to run this recovery as a marathon, the sooner you will start to see lasting improvement.

I have not seen Mark say this in awhile.I put it out there for all the new people.
When I first found out I had a concussion I took this saying and never forgot it.Thank you Mark
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What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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"Thanks for this!" says:
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Old 05-07-2013, 03:18 AM #18
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Thanks for the suggestion. I actually tried this in the past, but only for a week. I am currently on day 4 or 5 of my second attempt, hopefully it brings about better results - gonna try to stick it out for 2 or 3 weeks.
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March 3, 2013: Directly hit top of head while jumping, impact went straight down neck and spine.

Symptoms: Congested/plugged ears (along with post naasal-drip and drainage down back of throat), increased tinnitus, sound sensitivity, minor imbalance, difficulty concentrating, difficulty reading and focusing on words and moving objects.
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Old 05-09-2013, 03:08 AM #19
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I went and had a nasal endoscopy done today. First of all, the procedure is not nearly as bad as I had expected. The worst part was the numb nose I was left with for a few hours after!

They looked in both of my nostrils, although they had lots of trouble getting the scope into my right nostril because of inflammation and my deviated septum. They found nothing too distressing - adenoids were fine, eustachian tube exits looked okay.

What they did see was excess clear thick mucus. They said based on that finding, that I was probably suffering from sinusitis. I am trying to piece a connection between my concussion and the sinuses... I've seen some info on the net about how head trauma can cause the sinuses to excrete extra mucus, although for all I know it could just be allergies or an infection.

My next step is to get a neck MRI and then head to a chiropractor to see if maybe this is a neck-related issue. My thoughts are maybe it is a trapped nerve, or tight muscles which are restricting bloodflow or not allowing proper mucus and lymph drainage.

I am at a loss as to whether I should be attacking this from a TBI or sinus angle...
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March 3, 2013: Directly hit top of head while jumping, impact went straight down neck and spine.

Symptoms: Congested/plugged ears (along with post naasal-drip and drainage down back of throat), increased tinnitus, sound sensitivity, minor imbalance, difficulty concentrating, difficulty reading and focusing on words and moving objects.
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Old 05-09-2013, 06:41 AM #20
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Default Tbi

You only tried it for a week or few weeks.That is not the key here sorry.The key is this is a work around condition like a lot of TBI/PCS consist of.You need to stop something at least a month or 2 for results. for example I do not eat much dairy at all now, If I am clear with the sinus issues and then decide I want a turkey sandwich with cheese. Directly after consumption I will go from dry clear sinuses to nose running, phlegm in throat and nose, ears hurting, and from these experiences I stopped dairy.If I do dairy I know what the results are.

You can take this advice from a person that has been there and run with it or keep searching in M.D.s that are pretty lost in TBI/PCS.And you are with a brain injury so you probably aren't thinking clear to try to figure a lot of this change in body, mind, soul.Sorry it is the truth.

About the MRI~Why would you go to a chiropractor if they find any problems?Why not physical therapy?

This is just my 2 cent's but you are in China...why aren't you doing acupuncture or any Chinese medicine??????I think that would be a SUPER start.
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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