Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 04-12-2013, 01:46 PM #11
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I kept on trying to go back to work full time and it wasn't working. I was just sliding backwards. Now I am trying Wednesdays off. Shorter days didn't really work for me. I would just cram everything into the shorter day. Having Wednesdays off really helps me to be away from my high stimulus job. I just can't angle the stimulus for five days straight no matter how many accommodations I make.
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Slipped in puddle and fell. 10/6/12. Whiplash and concussion. 48 years old.
Dizzy, balance, vision, taste, sound, light, cognitive, headaches, foggy, head pressure , irritability,....
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Old 04-12-2013, 02:42 PM #12
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Quote:
Originally Posted by MsRriO View Post
It states that I'm to attend daily vestibular therapy for six weeks, then return to work on a graduated basis as such:

2hours/5 days a week on week 1
4hours/5 days a week on week 2
6hours/5 days a week on week 3
8hours/5 days a week on week 4 (full time)

However when I was in his office he stated he did not think I was ready for an aggressive return to work plan.

My confusion is this: isn't the plan I just described pretty darn aggressive or is that just a standard workers comp RTW plan?

I'm trying to stay in the moment here and just focus on the fact that I have six weeks yet to heal. Positive mentality. But. I think the RTW plan stinks. And I'm confused as to what the heck my doc is thinking by agreeing to it?
As Mark mentions, I would see this as a pro-forma schedule. You may be pleasantly surprised how much progress you make over those six weeks. I don’t know how this works in Canada and/or with your employer, but I would hope there would be some flexibility based on your tolerance to returning to work.

FWIW, I began working from home ~ 20 hours/week (was still not released to drive yet) starting about 3 months after the accident. I wasn't 100% recovered cognitively at that point (I realize that now, I didn't so much back then), but I believe getting back into the "real world" was a big help in resolving my remaining deficits, which at that time included working memory problems, problem solving, and other executive functions. It just felt good to be contributing again, and I think that emotional boost helped contribute to the recovery of the cognitive functions. A couple months later my NPA showed much improved functioning. After that, the MD release stated “Return to work part time, increase to full time as tolerated”. I was back full time six months after the accident.

Staying in the moment is a good thing. Wishing you the best in this next phase of your recovery journey.

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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 04-12-2013, 05:44 PM #13
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Quote:
Originally Posted by Su seb View Post
I kept on trying to go back to work full time and it wasn't working. I was just sliding backwards. Now I am trying Wednesdays off. Shorter days didn't really work for me. I would just cram everything into the shorter day. Having Wednesdays off really helps me to be away from my high stimulus job. I just can't angle the stimulus for five days straight no matter how many accommodations I make.
Su seb
Wow Sue and you are a teacher too, like me right? I have a lot of concerns about going back to work too. And I need to get my HR to understand this too. Anyhow, hope you are all right.

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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 04-18-2013, 06:39 PM #14
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Ms. Rrio,
Hi, I am just wondering how your doing? How is your therapy coming along? Are you still feeling like you won't be able to go back to work? I was just thinking about you and worried about you. Hope things are going well for you.

I sure have a lot of problems talking to people and following the conversation. I feel like my brain is so slow. I would be unable to keep up in a work environment. Do you have this problem?

How is your depression/anxiety?

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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 04-19-2013, 12:37 AM #15
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Thanks for checking on me BP!

I haven't started the therapy yet. I went to the doc on the 11th, then he spoke on the phone to WCB about the aggressiveness of the plan and from what I understand, he was convinced by my caseworker that it would be ok. Then I assumed he signed the permission form for me to begin therapy, but he was supposed to send it to WCB himself. I never saw the form.

My physiotherapist, however, still hasn't heard the "go ahead" from WCB. So maybe my doctor didn't send the permission yet. He is away until the end of April so I think by then, WCB will be freaking out. I'll likely hear soon what is happening. I'm confused! Likely not explaining very well.

My physiotherapist did explain to me more fully what is planned once I begin therapy.

Five days a week, four hours a day! Starting at 8am each day.
Arrive at physio clinic to do ... exercise! Lots of cardio work, including weight training. (What?)
Upper body physiotherapy work (massage?) on neck and shoulders
Vestibular therapy daily.

For six weeks straight. Yippee! It sounds daunting. But, never know. Maybe I'll get thru it somehow. I don't even know what to think. WCB is just doing their usual routine that they do with injured limbs, yet I have an injured brain. They really do not get it, nor do they care. It's a standard return to work therapy plan.

I believe I will work again, yes. I remember wondering if that was even possible back in January in some of my darkest days. I believe that I will heal enough to work, but I don't know yet how I will cope starting work after six weeks of intense exercise therapy.

As far as my progress - I have had some positive days. Days where I feel like my symptoms are fading somewhat. I believe I've even had a couple of pain free hours. But then I have days that I have incredible pain, ear pressure, head pressure, very sore neck, and foggy brain. I have trouble on those days, to process sounds and voices. I get overwhelmed. Today was one of those.

I've noticed a mood improvement over the last month. I have blue days but I'm coping.

Sorry to hear of your struggles but I believe you have much to offer the world even if not in a traditional workplace setting.

Thanks again for reaching out.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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Old 04-19-2013, 08:42 AM #16
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Sounds like it will be tough! But good that you are getting that type of support ($$$)! Paying for that rehab and training would be costly. Just don't overdo it.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 04-19-2013, 12:42 PM #17
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Good to hear from you Ms. Rrio,
I hope all the therapy will help. I imagine you must feel pretty overwhelmed by that. Maybe they will give you some good massages.
Just do the best you can. I am glad that you are having some good days. That is how it is for me. I have a few good days and I think maybe I can do this or that and then I try and I cannot do that much. But I am trying to do what I can. It is frustrating to work your way up from being down so far.
Good luck with all the exercise and therapy. I am pulling for you and you are always in my prayers. Let me know how it goes. Thanks for your encouragement and all your kind comments to me. I appreciate you very much!
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 04-19-2013, 02:37 PM #18
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Default My confusing Return to Work plan

Hi MsRrio, I haven't posted in a while, but I also fell on black ice over 2 yrs ago, and still have the full feeling, pressure in my head, torqued-brain feeling, upon exertion. Symptoms are usually brought on by physical, mental, or even chemical stress...

Does your ear pressure, head pressure worsen when you lift things, or exert yourself too much ??? The therapy that was prescribed for you sounds crazy (if your symptoms are anything like mine).. Pushing thru it will just make you feel worse.

Also did you ever have your neck checked out ??? I am currently seeing an upper cervical chiropractor, who has helped me a lot when my neck is out.. I'm also seeing a myofascial therapist every 2 wks, and a cranial sacral therapist once a month.

I never give up hope in being healed, but realize it is an extremely slow process. I work part time as a Personal Trainer, and lift as little weight as possible, when working with my clients. It's tough sometimes, but I know if I push too much (or overdo it at work), I pay for it.

So when it comes times for your therapy, I would definitely not try to push thru it. You don't want to set yourself back anymore. The stress of having to go to therapy is enough on your brain already.

Good luck with everything !




Quote:
Originally Posted by MsRriO View Post
Thanks for checking on me BP!

I haven't started the therapy yet. I went to the doc on the 11th, then he spoke on the phone to WCB about the aggressiveness of the plan and from what I understand, he was convinced by my caseworker that it would be ok. Then I assumed he signed the permission form for me to begin therapy, but he was supposed to send it to WCB himself. I never saw the form.

My physiotherapist, however, still hasn't heard the "go ahead" from WCB. So maybe my doctor didn't send the permission yet. He is away until the end of April so I think by then, WCB will be freaking out. I'll likely hear soon what is happening. I'm confused! Likely not explaining very well.

My physiotherapist did explain to me more fully what is planned once I begin therapy.

Five days a week, four hours a day! Starting at 8am each day.
Arrive at physio clinic to do ... exercise! Lots of cardio work, including weight training. (What?)
Upper body physiotherapy work (massage?) on neck and shoulders
Vestibular therapy daily.

For six weeks straight. Yippee! It sounds daunting. But, never know. Maybe I'll get thru it somehow. I don't even know what to think. WCB is just doing their usual routine that they do with injured limbs, yet I have an injured brain. They really do not get it, nor do they care. It's a standard return to work therapy plan.

I believe I will work again, yes. I remember wondering if that was even possible back in January in some of my darkest days. I believe that I will heal enough to work, but I don't know yet how I will cope starting work after six weeks of intense exercise therapy.

As far as my progress - I have had some positive days. Days where I feel like my symptoms are fading somewhat. I believe I've even had a couple of pain free hours. But then I have days that I have incredible pain, ear pressure, head pressure, very sore neck, and foggy brain. I have trouble on those days, to process sounds and voices. I get overwhelmed. Today was one of those.

I've noticed a mood improvement over the last month. I have blue days but I'm coping.

Sorry to hear of your struggles but I believe you have much to offer the world even if not in a traditional workplace setting.

Thanks again for reaching out.
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Old 04-19-2013, 08:53 PM #19
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Keepin'

Does your upper cervical chiro know you are seeing a cranial sacral therapist ? CST may be in conflict with the other therapies. The other two should be very capable of treating you. Glad you found an MFR therapist who helps.
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Old 04-19-2013, 09:59 PM #20
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Default My confusing Return to Work plan

Hi Mark, yes, my chiro is aware of the cranial sacral therapy. I always get relief from each CST session, and look forward to going ! My cranial sacral therapist works on the whole body, not just my head. And when I leave there, I always feel so calm afterwards, and my head cleared.. She is also a Physical Therapist. I don't go that often, every 4-5 weeks, and usually see the chiro every 1-2 weeks, depending on how I am doing.

I don't feel like there's any magic bullet at this point.. It's finding and doing what makes you feel better, getting enough rest, and staying positive..
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