Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 04-12-2013, 01:11 AM #1
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I doubt this is carved in stone. When there is an absence of better ideas, it is not uncommon for a plan to be made out of pure conjecture. The vestibular therapy is conjecture too.

Try to relax and go with it documenting in your journal along the way. If you struggle the first week of work, you can ask to extend the 2 hours per day.

Try to relax. You don't have any better ideas than they have. You just have anxiety. Go with the flow for 6 weeks and see where you are then.

My best to you.
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"Be still and know that I am God" Psalm 46:10
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Old 04-12-2013, 01:18 AM #2
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Nailed it Mark, I am freeeeeaking out. Anxiety high, pain high, (not sure which caused which today, chicken/egg) ears full, and still able to laugh at myself a little.

Time to attempt sleep. Tomorrow is a new day!
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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Old 04-12-2013, 01:42 AM #3
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I knew you had your doctors appt and was hoping you'd update us! Mark is spot on with this, your anxiety about the return is going to be your toughest fight here! It's understandable to be worried.

At any stage of this it can be changed if your doctor feels it's necessary or if your therapist doesn't feel you're ready. A good therapist will be golden because they will spend much more time with you and do tests etc that they can use in reports to WCB.

I find it a little odd that your vestibular therapy is daily. I see my therapist weekly or every two weeks and in between I do the exercises myself. I wonder what they're going to do with you every day. Is it just vestibular therapy or is it physical or occupational also? When does that start? Please share what they're having you do as I'm still having dizziness as one of my biggest issues.

I hope you are able to find a way to remain calm and take this all one day only at a time. I was not succeeding in that and have found low dose medication helpful. it might be an option for you if needed in the future.

Good luck to you! You've come a long way!

CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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Old 04-12-2013, 07:16 AM #4
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I was supposed to go back to work next week to ease back in per doctors plan. I was to work Tues and Thurs to have a day off in the middle and weekends to recover. My HR won't allow it. They want me back all or nothing and I think the doctor is right -- to ease back in. (I am better, but also wonder about a relapse) I have my union looking into this and need to work on my rights too -- but going back to work does make me nervous a bit because I did that once and it didn't go so well.

It seems to me that no one, no doctor, not you, certainly not the Human Resources dept, really know **for sure** how to ease back to work, or there are guidelines, but you have to listen to yourself, watch what happens to avoid a relapse.

Keep us posted about returning to work. It is on my mind too as I prepare yet another week of lessons for school.

Take care,

poetry mom aka JJ
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 04-12-2013, 09:07 AM #5
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Your plan looks reasonable to me, but you should be allowed to cut back if its too much, you don't want to relapse, and surely neither does your employer want you to. I agreed the following because it takes 45 mins drive to work and 45 back to home:

5hr day In the first week.
2 x 5hrs 2nd week.
2 x 5hrs and 1 x 8hr 3rd week - just done this.
3 x 8hrs 4th week.

I will then agree another part time 4 week plan, possibly moving upto full time during this.

I think what works depends on the individual, I hope it works for you. Expect to be tired, but you will gain confidence and strength the more you do. Good luck with your return!

Poetrymom - you have to do this gradually, all or nothing is very unreasonable of HR, and to ask this is very unrealistic.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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