Originally Posted by bluehiroko

Ok everyone, I just want to share with you what happened on my visit today at Stanford. I went to see my family doctor there. I was seeing another doctor at another medical organization called PAMF in Northern California. However decided to go back to Stanford to get a second opinion.

My doctor said that I have been the worst case that he's seen so far considering my daily chronic debilaiting migraines since being hit on the head Feb 21st. He bascially went through a whole long list of different drug combinations and the ones I can try. I was given the option of noritryptalin or propolin. I voiced my concerns about taking antidepressants. So he suggested propolin in combination with Excedrin. He also even suggested narcotics such as Vicodin which I didn't want to consider. He suggested a tapering up of propolin over a month period and then when my headaches get better a tapering down. My doctor did say that I will get better with time.

I was then referred to the HeadAche Clinic at Stanford. But my doctor basically said that at the headache clinic they will just try other different drug therapies that may not be so conventional. So he wanted me to try a few drugs first while I wait for my appointment at the HeadAche Clinic.

Anyway, from what I gather from my visits to various medical doctors, it doesnt seem like theres a whole lot they can do on the healing level. It seems like they can only perscribe different drug combinations to combat the symptoms which I found very sad All of them said that I will be healed with time.

I think this forum is a great place to share experiences and information but I realized everyon'es body and healing journey is different and people responnd to different things. My own story is my own journey and my own body. But I would just like to share it with everyone.

Thank you for your support.

Originally Posted by Peter11

Thanks for the post. My situation was very similar to yours.

I went through about 6 months of PCS before trying medication. About 3 weeks ago I was perscribed 2x10 mg of nortriptalyne at nigh and 2 x 40 mg of proponanol during the day. Ofourse at first I was sceptical of anti depressants, but I know that at this stage I was anxious and depressed and anything to calm my stress down would be good. It has been 3 weeks since then and I have gone from about 10% functioning to about 60% now and feel better each day. Ofcourse I have good days and bad but I am having alot more good days. I am even completely symtpm free at times. My doc wants me to start tapering off over the next few months which I agree with but for the time being i am seeing improvement and am happy with what Ive been prescribed.

Originally Posted by berkeleybrain

I am not sure if you are Japanese (it's the hiroko part of blue hiroko), but I wanted to add that if you do medications you may want to start out with the lowest dosage possible.

I am half-Japanese and my neurologist explained that often Asian women are very sensitive to the dosage requirements (which are often calculated and metabolized differently for caucasian women).

Originally Posted by Kenjhee

I went the rounds at Stanford (I'm in San Mateo) about a year ago and heard almost the identical story. They can poke at the symptoms (I get migraines also), but there's essentially nothing they can do for the underlying causes at the current state of technology.

Originally Posted by bluehiroko

Have you gone to see the headache clinic at Stanford? or What about UCSF brain and spine injury clinic?

Thanks!

Originally Posted by Kenjhee

I haven't yet, though it reamins an option. As luck would have it, just as I was about to investigate headache clinics, the migraines backed off. I went from having one virtually every day, to 2-3 a week and much less severe. That's where I am right now, not having fun but it's manageable.

I'm half Japanese, also. Other half is Chinese. My screen name is the Chinese spelling of a Japanese given name.

Originally Posted by bluehiroko

Hi Kenjhee,

Wow that's great! How long have you had headaches for? May I ask your treatment plan? My headaches are every single day and on the left side Are you born in America?

Thank you!