Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 04-20-2013, 08:23 AM #1
GingerandBella GingerandBella is offline
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As we know - most meds just address the symptoms. When I take my meds my headache is gone most of the day now. So do I try and do all the normal things in my life when I have no headache? My fear is that headaches are the brain's way of saying "slow down" - if I go full-speed ahead - I am not taking the time I need to heal.
Any thoughts?
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Old 04-20-2013, 09:59 AM #2
Mokey Mokey is offline
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I think sometimes it is nature's way fo slowing down...but my experience is that is not always true, especially with brain injuries. Last week I had a great sleep, had an hour to slowly prepare for an appointment, and then BANG!!! The start of a massive headache which lasted for days, and was so bad I couldn't get out of bed for an MRI that I had been on the waiting list for since January!
So if the meds make you feel good, I would say live as good a life as you feel you can in that moment! But don't overdo things. Great you have some relief!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 04-20-2013, 01:04 PM #3
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Seems to be the case to me. I had head pressure then migraines with over exertion. Only lately I had a 48 hour headache after a gym session. So in my case it is a warning that I am putting my body and mind under too much pressure.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 04-20-2013, 01:51 PM #4
berkeleybrain berkeleybrain is offline
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I'm now in month 8, and I have just begun to differentiate between the dull headaches and the sharp, painful ones that sometimes lead to migraines.

I have tried to push through with some advil on the dull ones, but I take heed and slow down when and if it begins to throb.

However, having said that, I had vision therapy Friday, and the exercises triggered a dull headache, and I mistakenly pushed through them. Now I am with a big, bad migraine!

We all have different triggers and thresholds for pain, but I do think headaches are our bodies way of communicating to our brain. It is just with mtbi/pcs, our brain sometimes over-reacts or mis-interprets these signals.

Trust your intuition-you know best.
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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