FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
Reply |
|
Thread Tools | Display Modes |
|
![]() |
#1 | ||
|
|||
Member
|
How terrible about the job loss(es)! What an enormous stress that must be on top of your injury. Can't imagine. But hopefully you can still focus on healing and on the really important things in life...most of us value love, peace, beauty, etc. Material things like a nice place to live and some tech toys also help
![]() Good you had a better day. I had a good day yesterday too. One day at a time! And slowly you will heal. I agree about the creativity. In terms of eye strain and writing, I am dictating more and more. The apple products (and maybe others) have an amazing dictation ability....so accurate and easy to use...I am doing my journal that way). Long emails too...and I should do this using that method too, know that I think of it ![]() Enjoy the day!
__________________
What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
||
![]() |
![]() |
"Thanks for this!" says: | DFayesMom (04-23-2013) |
![]() |
#2 | |||
|
||||
Member
|
Wow that is a LOT to handle. Woah.
I'm glad to hear you're cutting yourself some slack and being kind to yourself! One thing I thought of when reading your post - did they tell you when to do your eye exercises or do you just choose? I ask because I was told our eyes are most relaxed in the morning and that was when to put my prism glasses on for a few hours each day until I could tolerate them all day. Just thought this info may help? Hope you're deep breathing and having a good moment when you read this. ![]()
__________________
About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
|||
![]() |
![]() |
"Thanks for this!" says: | DFayesMom (04-23-2013) |
![]() |
#3 | ||
|
|||
Member
|
Quote:
I'm doing okay today. I'm keeping track of what i'm doing so I stay self aware, because having a set schedule hasn't been working well, nor has flying by the seat of my pants (as my pants seem to be Velcroed to my recliner). If I keep a record of my day, it makes me aware of how much time I'm wasting not enjoying life or at least being productive. Today, I can proudly say I've only wasted 50 minutes of time staring blankly and wishing I could get up and do something. It's an improvement. I'm going to do a little vacuuming and then reward myself with some time out on my front porch reading and writing before my daughter gets home! Then my husband and I are going to take my daughter outside to ride her trike at a local park. Even when things aren't going my way, I still have to embrace happiness wherever I can find it. Depression isn't a choice, but how I cope with it is up to me. I am choosing to fight it tooth and nail! I hope everyone has a good day!
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
||
![]() |
![]() |
"Thanks for this!" says: | Mokey (04-23-2013) |
![]() |
#4 | ||
|
|||
Junior Member
|
Quote:
Good luck to you!
__________________
I was in a snowboarding accident on January 19, 2013. I caught an edge on my snowboard while carving down the mountain without a helmet. I smacked the back of my head hard on the ground. I was not knocked out and it took about a week for symptoms to come into full effect. Since my accident I have been in a cycle of feeling better and then relapsing. It has happened many times. Although I think the overall trend is slowly traveling up. My symptoms included headaches, anxiety, sensitivity to light and noise, dizziness, fatigue, confusion, trouble concentrating, brain fog, loss of social interest, irritability, and mood swings. Many symptoms have since resolved and I am left with slight dizziness, sensitivity to large crowds and busy environments, small amounts of anxiety, and brain fog off and on. I am currently under the care of a neuropsychologist at the UPMC Sports Medicine Concussion Clinic. I am also undergoing balance/vestibular physical therapy to help with my remaining symptoms. |
||
![]() |
![]() |
"Thanks for this!" says: |
![]() |
#5 | ||
|
|||
Junior Member
|
But, that tv is a killer, all the crap, endless info, drama, more needless info. you are bombarding your brain.
A little doesn't seem to bother me, but only what I choose to watch in advance. Before my 6th concussion, I was a personality, nothing stopped me, had many hobbies, now well I have to understand that if I am able to do anything enjoyable today, it is to be celebrated. Even if it is just enjoying a beautiful cloud. That feeling sorry for myself thing is hard to kick, but when I realize that it is based on self centeredness it helps me to reject it. Try some kind of simple hobby, I made a little sand thing that I put rocks in and rake, like the japanese concept, seems lame for a strapping strong doer like I was, but it is kind of soothing....... |
||
![]() |
![]() |
"Thanks for this!" says: | Brain patch (04-24-2013), DFayesMom (04-23-2013), Jinxicat9 (04-24-2013), Mokey (04-23-2013), poetrymom (04-23-2013) |
![]() |
#6 | ||
|
|||
Member
|
That sounds very much like me, until recently that is. Question: Do you feel refreshed in the morning?
I can only relate may own experience here... I did not sleep well for many, many years. That is until I was diagnosed with, and treated for, Sleep Apnea. I now have more energy, I'm motivated and I have much better stamina. Think about it... Jamie
__________________
Brain Fog, Short Term Memory, Depression, Anxiety, Sleep Apnea |
||
![]() |
![]() |
![]() |
#7 | ||
|
|||
Member
|
Quote:
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
||
![]() |
![]() |
![]() |
#8 | ||
|
|||
Member
|
I just dropped my daughter at daycare and she was really excited to go, but I didn't want to take her. I wanted to keep her with me, because being my myself is just so hard. It's all dreary outside, which doesn't help, but today, the full weight of our predicament has finally hit me. My husband is a teacher, so if he doesn't find a position for the fall, we are screwed. I wish I could apply for jobs too, just to feel like I'm doing something, but my previous work was as a proofreader or an archivist, which are both jobs that require heavy use of your eyes. There is no way I could do either job with my eyes as bad as they are. Even this morning, they hurt so much, I'm just sitting here in the dark.
The only job openings for my husband in this city are at schools where he would not feel safe and I would not feel comfortable having him there either. The school where he is teaching currently has already had three guns in the building this year, and a month ago, he was physically intimidated by three students, one of whom has been convicted of serious crimes. So really our only option is to move to wherever he can find a job. We were hoping to move closer to family or friends, but I'm worried that the jobs are so limited that he won't be able to find one somewhere we might want to move. Before, I was thinking the worst-case scenario would be that we would have to move somewhere we didn't want to move, but now I'm worried that the worst-case scenario is that he won't find a job at all. What would we do then? This is all a lot of pressure on him. He was pretty down yesterday. I just feel totally helpless. The thought of having to pack up our house and sell it is just devastating to me. And what if it doesn't sell? What would we do then? I don't want to move. Just wish there was some other option. Thanks for reading. I don't even know where to turn anymore.
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
||
![]() |
![]() |
![]() |
#9 | ||
|
|||
Member
|
I have been following your post and I think people have been giving you reall y good advice. But I would like to add that you need to try to stay positive about the job situation. When you mentioned school, I thought I would add a thought. I am a teacher of 25 years. Sometimes a new job can be fantastic. Working in a school is an amazing place. Kids are wonderful everywhere, at all ages. Just be hopeful that there will be a silver lining in this whole experience for you and your family.
I don't post a lot because my pcs makes it difficult for me to write. Thinking of you Be kind to yourself Su seb
__________________
Su Seb Slipped in puddle and fell. 10/6/12. Whiplash and concussion. 48 years old. Dizzy, balance, vision, taste, sound, light, cognitive, headaches, foggy, head pressure , irritability,.... |
||
![]() |
![]() |
"Thanks for this!" says: |
![]() |
#10 | ||
|
|||
Member
|
Dfayesmom,
It sounds as if your have more on your plate than one can imagine! I understand how you must feel hopeless. Lots of HUGE life challenges happening at the same time. I think the only thing to do it to take it hour by hour, day by day, and don't give up hope that things will work out. What is so difficult about these situations is that we don't know how or when they will resolve. So being in the present and doing what we can in the prsent is a good strategy. Not easy, mind you!!! ![]() Hang in there. Sending positive thoughts your way. Hoping that the future brings you good things, some which you may not have expected!
__________________
What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
||
![]() |
![]() |
Reply |
Thread Tools | |
Display Modes | |
|
|
![]() |
||||
Thread | Forum | |||
How do you cope? | Myasthenia Gravis | |||
How do you cope? | Traumatic Brain Injury and Post Concussion Syndrome | |||
How do I cope with this? | SCS & Pain Pumps | |||
How do I cope? | Aneurysm | |||
How Do You Cope? | Traumatic Brain Injury and Post Concussion Syndrome |