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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#1 | ||
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This sucks because it's the only thing that's ever helped me. I'm not sure that my new doc would prescribe it. Anyway, you'd think the Adderall would help with the lethargy and it does most days, but not enough! Wish there was more I could do to address this problem . . .
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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#2 | ||
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I'm trying to force myself to do my physical therapy, but I just feel so heavy, like I can't move. I don't know that my will power can overcome this feeling. It hasn't in the past week! I just need to force myself, but I can't seem to. I'm so bummed about this.
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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#3 | ||
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I have problems with that too-- and sometimes I find that it's my imagination that actually saves me. If I can get up the energy to imagine something super epic, it gives me what I need.
Also, validating small steps in yourself. For instance, I may not have made it to tai chi in time the other day, but I got up and got ready! LIKE A BOSS ![]() If you give yourself a little mental soundtrack when you're listless, sometimes it can help pick you up. I've got a few go-to songs I'll be happy to share when I can post links ![]() |
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#4 | ||
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Thanks for making me laugh! I need as many laughs as I can get. I think it's because I'm doing sooooo well in terms of overcoming my other symptoms that I'm having such a hard time dealing with other things. I felt really depressed last night! So I'm just going to try to do better today at fighting the inertia but try to be more forgiving toward myself! I think my lack of creativity is what is really getting to me. I just keep myself in a deadened, numb state of mind, which makes creativity impossible. I can be creative when I try, but I can't seem to try. That will be my primary goal for every day this week. Housework will come second. If I talk to my husband about how I'm feeling instead of hiding it from him, maybe that will give me the push I need to do what's best for myself?
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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"Thanks for this!" says: | Su seb (04-24-2013) |
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#5 | ||
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Junior Member
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And with the creativity, again, validate your small steps! You signed on here and wrote several extremely eloquent posts-- which requires creativity to do. Mission accomplished, +500xp, level up! ![]() there's a great quote I'm trying to hang on to at present-- maybe it would be useful to you too ![]() “Courage doesn't always roar. Sometimes courage is the little voice at the end of the day that says I'll try again tomorrow.” ― Mary Anne Radmacher
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Adventures in PCS: Loose brick, stumble, fall, wheelchair ramp, tilt forward, faceplant on asphalt. So graceful! . |
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#6 | ||
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I guess adderall is similar? Don't know. I know some kids take amantadine for adha. One doctor suggested amantadine as a first choice and then other adhd medicine if that did not work.
Hang in there. It is hard to get used to this...and there are good days and bad days! I had a better day today...went into a cell phone store for 15 minutes and was able to purchase something. Could not have done that 9 months ago. Progress! Baby steps all the time. Take care.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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"Thanks for this!" says: | DFayesMom (04-22-2013) |
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#7 | |||
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It's brave of you to talk about this. I think many here can understand. I'm still in the first six months (sorry I can't remember how far along you are in your PCS struggle) and have noticed such a wide variety of symptoms that come and go, it's impossible to know if it's all PCS related.
I guess what I try to do lately (to spare myself added anxiety that causes worsening symptoms) is address the symptom without trying to determine if its from PCS or not because it doesn't really solve it any faster, know what I mean? I think you should give yourself the same compassion you show other people and cut yourself some slack. Be your own good listener! You deserve a good friend like you! You may be suffering some depression, and the chicken/egg quandary of whether its caused by PCS or inactivity won't make you feel any better, any faster. It may just be a slump but from the sounds of it, it's the kind of apathy and lack of motivation that would be classified as depression. I'm no expert, I just really relate to your post. Strangely enough I relate not because of PCS but years before I was injured, I had major depression. Your post sounds like the self doubt and guilt that I felt back then. There is always help and hope. Something I find interesting especially among us moms: People who suffer mental illness often fight the good fight with the uninformed masses, shouting "it's not weakness! It's not a choice!" from the rooftops if we are supporting someone else's struggle. But amid our own thoughts, about ourselves, when no one but us can hear, I think we blame ourselves. We seem to need a syndrome to blame for our depression when in itself it's an illness, not a choice. Mechanically our brains are not coping with life, yet we blame ourselves. That's like blaming the driver for ditching the car when the brakes fail. What else was the driver supposed to do? Mechanically, the support system didn't work! For example if you think your mood and motivation is affected by PCS you feel more justified than if it's not. Is that because, without PCS as the cause, you blame yourself for not feeling well, in your own quiet thoughts? Not trying to get you to answer, just trying to get you to give yourself a break. The same grace you show other people, show to yourself. I think posting your story was so awesome. You seem like you suspect you may need more "mechanical" help, and I think you should seek it. And I think you need a hug! ![]() Hope this helps, even just to know that with or without PCS, it's a relatable tale.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
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"Thanks for this!" says: | Brain patch (04-24-2013), DFayesMom (04-22-2013), Mokey (04-22-2013), poetrymom (04-22-2013), Su seb (04-24-2013) |
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#8 | ||
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You are totally right about there being no real benefit in determining the cause of my symptoms. It doesn't really matter if it's the depression or the brain injury. I just have to address it in whatever way I can and try to move forward. Thanks for giving me that shift in perspective! I'm too emotionally confused at this moment to figure it out for myself! I seriously didn't realize I was depressed until I read the letter my therapist wrote to my insurance company in order to appeal the termination of my short-term disability. At that point, I told him, "I haven't really thought of myself as depressed, but I guess I am." The reason why I didn't realize it was that over 10 years ago, I suffered a terrible depression, verging on psychotic, since I was having hallucinations. I had to tell my roommate to get all sharp objects out of the house, because I just didn't trust myself. I was seeing a psychologist three times a week and a psychietrist once a month. What I'm feeling now is nothing like what I felt then! So I didn't recognize the depression for what it was. It just kind of snuck up on me and took the wheel. Thank you for your compassion. I really needed to read what you had to say. It's restored my feeling that I'm not just wasting time on this board (which has been one of my many self criticisms lately). Both to give support and to receive it is so important when dealing with the struggles of PCS. It is nice not to feel so alone and to feel like you are helping others. I hope you can go on with your day knowing that you reached out and helped a stranger through some difficult emotions (and probably other people going through similar emotions!) Hugs to you!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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#9 | ||
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It is really hard to keep in touch with what you feel and why, but here are a couple of things I found which seems to boost my morale and motivation.
1. I spend far too much time alone (we all do). PCS is such an isolating disorder. I have joined a athletic club. I have tried restorative yoga (anyone can do it) and it really makes me feel good. The athletic club gets me out and meet other people. I am 14 months pcs and can't work so my whole word resolves around my house and kids, I am the only adult in the house. 2. 21 Day meditation challenge. Someone sent this to me, I have never done anything like it before, but it is 15 minutes a day of positive messaging and keeps you thinking positively. (It really works, I was unsure at the beginning). 3. Baking. I make muffins, bannana bread, cookies etc., but somehow I feel accomplished by doing this. 4. Talking to a positive friend on the phone, try to avoid negative people and situations. 5. Keeping my stress under control, I asked myself is there anything I can do about this and if there is nothing I can do I don't worry about it. I use to waist alot energy being stress out about not having money and getting my kids to support me, but there is nothing I can do so waisting precious resources on worrying about does not help. All the above said I do have some really bad days and it hard to keep going but I try to recognize what might change it and ask someone for help if you need it. You need your feelings validated in order to move on. Keep truckin we are all cheering for you!!! |
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#10 | ||
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Congrats on your progress! It's been 2 1/2 years since my first PCS symptoms and 8 months since the car accident that led to my diagnosis. I remember what it was like trying to go to Carter's to buy some clothes for my baby and feeling like the saleswoman was looking at me like I was from another planet because I felt like i WAS on another planet. I've come so far since then. I believe I'm getting better, and you are too! PCS is just such a difficult constellation of symptoms that it's hard to keep a good perspective. I find coming to this site to be helpful in that respect, so thanks! Today WILL be a good day!
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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