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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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Starr,
Glad to see you received your results from the neuropsychological testing. I still have not received my report. It has been a month since I had my last session. I am getting really nervous about why I don't have a report yet. I have called the place twice and left messages but I get no call back. If I went through all that for nothing I am going to be really upset. Did anyone else have to wait this long to get their report? I need it for my disability claim. The lady knows this! I wish you the best in your recovery Starr. I think it is easier to have the areas identified that you need to work on. Don't let this report get you down. I think you can learn ways to work around the problems. Mark and some others on here seem to have learned how to run this marathon and still have an enjoyable life. I am going to try and look to their example. Brain ![]()
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Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
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"Thanks for this!" says: | "Starr" (04-22-2013) |
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Starr~I can relate!Your test results sounds very similar to mine. I did my test at a year and half (when I got diagnosis).Except my visual is ok as well so I can still drive.That is a huge plus.My percentile range was in the zero to 10 range.I am needing cognitive rehab for 4 impairments.Keep your head up and now you have some direction to aid with dealing with the impairments and to build skills around the impairments.
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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Thanks everyone for your kind word and support.
I'm trying not to let it get me down and just focus on the good parts, like it not triggering an issue with my driver's license... I was very worried about that. I guess just seeing it in black and white was a bit ouchie. A bit like bringing home a bad report card or something! Not sure when I'll be called back to the brain injury clinic to meet with the physiatrist, but I'm sure it'll be topic for discussion at that appointment and I wonder if he'll suggest a new referral then or not? Not knowing where this will lead is a bit unnerving also. Tomorrow I meet with my rehab psych (different from my neuro psych) and she may well have insight into the next step as well... she seems to have a pretty good handle on what the general path(s) often are. At $210/ 50 min hour, she better!! LOL!!! Starr |
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I should receive my test results beck in the next week. It was very helpful to read your post. I think my results will be very similar to yours. It was also very helpful to read other people's posts on work arounds.
When reading the recommendations at the bottom I couldn't imagine how I can modify my job. I work in a very noisy, hectic, busy, multi-tasking situation. But, i love my job. Working in nature sounds heavenly. I wish you luck.. Keep us posted. I am interested to hear what the further recommendations are going to be. Su seb
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Su Seb Slipped in puddle and fell. 10/6/12. Whiplash and concussion. 48 years old. Dizzy, balance, vision, taste, sound, light, cognitive, headaches, foggy, head pressure , irritability,.... |
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"Thanks for this!" says: | "Starr" (04-24-2013) |
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