Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-23-2013, 02:13 PM #1
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Default Top 5 PCS tips.

What would yours be for someone newly diagnosed?

If I knew what I know now, from the start I wish I had been able to:

1. Get plenty of quiet rest in a darkened environment - use ear plugs and sunglasses.
2. Avoid stress
3. Avoid over activity or exercise
4. Avoid over stimulation - limit TV, computers, radio.
5. If needed get medication for headaches, migraines, insomnia, anxiety or depression.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 04-23-2013, 02:18 PM #2
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Hi, yep that's about it, except, avoid all stress.. so what do we do, live in a cave? I've been going through pcs for about 5 or 6 yrs, took 2 yrs to figure out the problem. only after 2 more head bumps that increased the severity did I realize what was wrong. Still feel lazy or like I am faking it. Like I aged 30 years in a couple days. Still hoping for some kind of treatment that will enable me to improve.............
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Old 04-23-2013, 02:57 PM #3
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I'd include:

1. Good nutrition with quality protein
2. Vitamin supplements to include B’s and D (see Mark’s thread)
3. Avoid alcohol or any other non-prescribed drugs
4. Once acute symptoms are under control, consider a neuropsychological assessment to identify residual deficits and develop a recovery plan.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 04-23-2013, 03:51 PM #4
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Quote:
Originally Posted by 12many View Post
Hi, yep that's about it, except, avoid all stress.. so what do we do, live in a cave? I've been going through pcs for about 5 or 6 yrs, took 2 yrs to figure out the problem. only after 2 more head bumps that increased the severity did I realize what was wrong. Still feel lazy or like I am faking it. Like I aged 30 years in a couple days. Still hoping for some kind of treatment that will enable me to improve.............
Perhaps I should have been more specific, as we all need to try to get on, examples of stress could include:
Being in work when not ready
Worrying about symptoms - it actually makes them worse
Looking after young children when not ready
Going to busy/noisy places (eg supermarket) when not ready
The list goes on.....
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 04-24-2013, 08:50 AM #5
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My top 5 tips:

1. Be patient. Realize that with time you will get better. Recovery is a marathon and not a sprint. Trying to go back to activities too soon will impede your progress. Listen to what your body is telling you.

2. Don't worry! The symptoms you are feeling are normal for a concussed individual. Worrying causes anxiety which makes everything worse and makes recovery more difficult. Become at peace with your symptoms and have faith things will get better.

3. Prioritize. Make your recovery a priority in your life. Do whatever you have to do. Stop working, cut your hours, stop drinking alcohol, focus on your diet, etc.

4. Reduce stress. This is a biggie. I know sometimes it is hard to reduce stress but do your best. Stress can cause relapses. Take deep breaths. Do some light yoga or go for a walk.

5. Focus on nutrition. Your brain needs quality nutrients to repair itself. Drink lots of water, avoid soda and alcohol. Gulp down the vegetables. Eat lean proteins and healthy fats. And check out the vitamin thread and consider adding in some B and D vitamins in your diet.
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I was in a snowboarding accident on January 19, 2013. I caught an edge on my snowboard while carving down the mountain without a helmet. I smacked the back of my head hard on the ground. I was not knocked out and it took about a week for symptoms to come into full effect.

Since my accident I have been in a cycle of feeling better and then relapsing. It has happened many times. Although I think the overall trend is slowly traveling up. My symptoms included headaches, anxiety, sensitivity to light and noise, dizziness, fatigue, confusion, trouble concentrating, brain fog, loss of social interest, irritability, and mood swings.

Many symptoms have since resolved and I am left with slight dizziness, sensitivity to large crowds and busy environments, small amounts of anxiety, and brain fog off and on.

I am currently under the care of a neuropsychologist at the UPMC Sports Medicine Concussion Clinic. I am also undergoing balance/vestibular physical therapy to help with my remaining symptoms.
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Old 04-24-2013, 07:37 PM #6
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Quote:
Originally Posted by mouse1 View Post
What would yours be for someone newly diagnosed?

If I knew what I know now, from the start I wish I had been able to:

1. Get plenty of quiet rest in a darkened environment - use ear plugs and sunglasses.
2. Avoid stress
3. Avoid over activity or exercise
4. Avoid over stimulation - limit TV, computers, radio.
5. If needed get medication for headaches, migraines, insomnia, anxiety or depression.
I agree!!!!! I wish I had this when I was first diagnosed. I was trying so hard to get back to the old me that I was actually making it worse.

Now, if I can find out why I'm having a relapse after not having the major symptoms for over a year. No, I didn't hit my head again.
I've only had 1 concussion ( the one that caused this)
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