Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-21-2013, 03:20 PM #1
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Default Bright side

Coming up on six months of PCS here, and today I'm aware of some bright sides to my story. Yet only a few short months ago, my days were quite consumed with anxiety. Through no fault of our own, I believe, our anxiety is a biological response to the head trauma. Through no merit of my own, the anxiety seems to be lessening as time wears on. Healing is at work in my brain and I'm so grateful today.

Some wonderful surprises have come into my life since being injured.

One of them is my love of baking. I had no idea I was like this but I seem to have unlocked my inner Betty Crocker. This may not seem like a big deal unless you've had the misfortune of being my friend in real life. I'm the one who would show up at a potluck with something out of a box that I likely picked up on the way to the event and didn't even bother trying to disguise it as my own creation.

How this affects my son is amazing to behold. He has begun baking with me. He is excited now to have time with me, to create. He will even do dishes with me when before that would have been a battle.

I've noticed more changes in him as well. Less screen time, more Lego time and imaginary play. Because our home is calmer, quieter, I notice him reading more often and hugging me more often.

And did you know... instead of the chaotic pace before bedtime (when I'd be packing lunches for school and work, getting clothes ready etc) I've slowed down somehow by just being afforded more hours in a day... And my son and I have rekindled our routine of praying together before sleep. My heart just feels like dancing about this one.

So many bright sides to this story. Gifts from heaven, if you ask me.

Another is my new love of silence. It's no longer needed as badly as it was in the beginning but I crave it. Silence settles me. I'm that kind of person now. I was formerly the one cranking music, telling a loud story, restless within myself to be constantly entertained or entertaining, never satisfied to just "be". I believe this has led to a calmer, more inviting home for my son.

Can six months change a person? I'd say so. Right now I have the luxury of a slow schedule of therapy and another six weeks until I return to work, where the pace will threaten to swallow this new me, and revert to the old me. I'd say the old me was delusional, contented only on the surface with her chaotic pace. She was desperate to slow down and I believe God afforded a way. Though discipline is never pleasant at the time, it is from my Father who loves me.

I pray I never forget the lessons this has taught me. I no longer miss the "old" me, as I believe this new me is actually improved.

I thought Sunday was a great day to share a bright side post. What are your bright side moments?
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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Old 04-21-2013, 08:40 PM #2
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Quote:
Originally Posted by MsRriO View Post
Coming up on six months of PCS here, and today I'm aware of some bright sides to my story. Yet only a few short months ago, my days were quite consumed with anxiety. Through no fault of our own, I believe, our anxiety is a biological response to the head trauma. Through no merit of my own, the anxiety seems to be lessening as time wears on. Healing is at work in my brain and I'm so grateful today.

Some wonderful surprises have come into my life since being injured.

One of them is my love of baking. I had no idea I was like this but I seem to have unlocked my inner Betty Crocker. This may not seem like a big deal unless you've had the misfortune of being my friend in real life. I'm the one who would show up at a potluck with something out of a box that I likely picked up on the way to the event and didn't even bother trying to disguise it as my own creation.

How this affects my son is amazing to behold. He has begun baking with me. He is excited now to have time with me, to create. He will even do dishes with me when before that would have been a battle.

I've noticed more changes in him as well. Less screen time, more Lego time and imaginary play. Because our home is calmer, quieter, I notice him reading more often and hugging me more often.

And did you know... instead of the chaotic pace before bedtime (when I'd be packing lunches for school and work, getting clothes ready etc) I've slowed down somehow by just being afforded more hours in a day... And my son and I have rekindled our routine of praying together before sleep. My heart just feels like dancing about this one.

So many bright sides to this story. Gifts from heaven, if you ask me.

Another is my new love of silence. It's no longer needed as badly as it was in the beginning but I crave it. Silence settles me. I'm that kind of person now. I was formerly the one cranking music, telling a loud story, restless within myself to be constantly entertained or entertaining, never satisfied to just "be". I believe this has led to a calmer, more inviting home for my son.

Can six months change a person? I'd say so. Right now I have the luxury of a slow schedule of therapy and another six weeks until I return to work, where the pace will threaten to swallow this new me, and revert to the old me. I'd say the old me was delusional, contented only on the surface with her chaotic pace. She was desperate to slow down and I believe God afforded a way. Though discipline is never pleasant at the time, it is from my Father who loves me.

I pray I never forget the lessons this has taught me. I no longer miss the "old" me, as I believe this new me is actually improved.

I thought Sunday was a great day to share a bright side post. What are your bright side moments?

This is such an encouraging post. Thank you for sharing! I'm at 3 months PCS and I too have recently began to reflect on how much these past three months have changed me, not necessarily in a bad way. Even though I am still recovering, I am so much more thankful everyday for the life that I have and I no longer take my health for granted. I know when I come out of this I am going to have such an appreciation for being healthy.

I believe the man upstairs has a plan for me and He will have me come out of this funk a better man than I was before my accident. I too lived a fast-paced lifestyle prior to my injury and I have settled down a lot as well. Now I enjoy quiet time, silence, and relaxing. It's just soothing to the soul.

I wish you the best in your recovery. Your post definitely brightened my day.
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I was in a snowboarding accident on January 19, 2013. I caught an edge on my snowboard while carving down the mountain without a helmet. I smacked the back of my head hard on the ground. I was not knocked out and it took about a week for symptoms to come into full effect.

Since my accident I have been in a cycle of feeling better and then relapsing. It has happened many times. Although I think the overall trend is slowly traveling up. My symptoms included headaches, anxiety, sensitivity to light and noise, dizziness, fatigue, confusion, trouble concentrating, brain fog, loss of social interest, irritability, and mood swings.

Many symptoms have since resolved and I am left with slight dizziness, sensitivity to large crowds and busy environments, small amounts of anxiety, and brain fog off and on.

I am currently under the care of a neuropsychologist at the UPMC Sports Medicine Concussion Clinic. I am also undergoing balance/vestibular physical therapy to help with my remaining symptoms.
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Old 04-22-2013, 12:20 AM #3
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Thanks, I'm really glad it brightened someone's day or outlook. There's nothing wrong with celebrating the bright sides, I've learned, it doesn't devalue how real the dark times can be for all of us PCS'ers. It doesn't negate suffering to celebrate the bright side. It just comforts us and we all need that comfort.

My "bell is ringing" (clogged, tight ears and head) tonight like crazy so tomorrow I'm likely to have another giant headache. Shrug... Then I'll need this post to remind myself again of why it's not all bad!
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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Old 04-22-2013, 09:15 AM #4
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rock on, both of you! this is marvellously encouraging to hear!
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Adventures in PCS: Loose brick, stumble, fall, wheelchair ramp, tilt forward, faceplant on asphalt. So graceful!
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Old 04-22-2013, 09:32 AM #5
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My bright side is that I get to go to therapy with my daughter because of my illnesses.We are getting better together.
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What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 04-22-2013, 10:10 AM #6
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Default Let me take a moment

I just want to share how PCS has changed my life in a positive way, since Ive
Been feeling so down recently! 1. I am going to be able to stay home with my daughter for a while. We never thought it would be financially possible for us, even though I really wanted to, and now we've made it happen out of necessity! 2. Being a stay at home mom will force me to make some new friends, as my daughter is too much of a social butterfly to stay cooped up with mom all day! 3. I hated my job, so I'm glad I don't have to go to work everyday, wasting my talents where they weren't appreciated. Life's too short for that! If it hadn't been for PCS, I'd probably still be working there! 4. PCS has made me reevaluate my life and discover what's really important to me: family, good friends, creativity, and helping others.
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 04-22-2013, 10:28 AM #7
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Great to hear the bright sides of this terrible illness.

I have always valued my quiet times. My bright side is that my husband now shares them with me. Also, I am getting to spend more time with my mother now that I am not working every day.

Mrs. Rrio, I envy your ability to bake. My short term memory and lack of focus prevents me from baking - I forget whether or not I have added ingredients. On the other hand - can make for some interesting tasting baked goods. ha. ha.
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Rear-ended Oct. 2012. Main issues now short term memory loss, word finding, problems with concentration and focus, light and sound sensitivity.
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Old 04-22-2013, 10:39 AM #8
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This is a lovely post as I am also struggling to accept where I am (not where I was or fantasies of where I will be).

I just read a quote from Nietzsche that reminds me of this post, of looking for the small bright sides that may just add up to some grand meaning: "He who has a why to live for can bear with almost any how."

Bright sides: more time with self, solitude, family and the few friends that are true.

I am also baking and cooking as my "cognitive" challenge! I use to forget steps and ingredients until I read about one with pcs who checks off each step and ingredient as she cooks. Now more things are yummy than icky (so says my 5 year old).
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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Old 04-22-2013, 11:24 AM #9
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Quote:
Originally Posted by MsRriO View Post

I pray I never forget the lessons this has taught me. I no longer miss the "old" me, as I believe this new me is actually improved.

I thought Sunday was a great day to share a bright side post. What are your bright side moments?

Thanks for the thread. I have so many bright sides it's difficult to capature them all. Just a few:

I realize that life is a gift to be cherished, it can be gone in an instant.
I learned it's OK to allow others to care for and take care of me; I don't always have to be in charge. My wife has grown stronger from her time as my caregiver, as have I.
People are capable of more love and compassion than I used to realize.
It's OK to be quiet, to sit and be alone for awhile.



"That which does not kill us makes us stronger" Friedrich Nietzsche
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 04-22-2013, 01:57 PM #10
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This is a good post, and its good to hear positivity. My bright side is that I appreciate all I have and all that I previously took for granted. I love my wife and 3 noisy children, even though things haven't been the best with my PCS. I love being increasingly busy in work, it is helping my recovery as I no longer have time to focus on symptoms, and I am gaining confidence all the time.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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