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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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05-09-2013, 01:20 PM
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Sounds awful, Cyclecrash! Hope youare feeling better. It is a catch 22 - some meds help some symptoms but cause problems elsewhere! Sounds like you had a bad reaction. Like you needed that!
Hang in there and good luck with the detox.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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05-09-2013, 01:31 PM
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Cyclecrash,
I couldn't take SNRI's either. Too many bad reactions for me. Cymbalta was the worst! I ended up finding my happy combo with Remeron and Paxil. Paxil is a strong anxiety and depression reliever. I use Remeron to counteract the side effects of nausea. But also remember there are alternatives to AD's. CBT is an option if you don't like meds, and also there are natural alternatives, I can recall Mark being on L-Tryptophan, which works also. Good luck with the withdrawal, and best wishes!
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College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012. Symptoms: Occipital Neuralgia. 2 MRI's and CT normal. Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now. Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy. Was experiencing: Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit. Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm. Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside! |
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05-09-2013, 01:42 PM
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Thank you all for being so candid about your symptoms with SSRI's. Because of your experiences, I decided to go the L-tryptophan route which has worked so far.
Hang in there- you are listening to your body's responses which with PCS / mtbi can be so hard to parse out. This too shall pass!
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness. Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine. Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs. Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014. |
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05-09-2013, 03:37 PM
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Cyclecrash,
I have got off lightly compared to yourself, I am sorry to hear what happened you. Get well soon and take it even easier than ever for the next few weeks. I am now missing the Cymbalta a little because headaches and fatigue have really increased since I stopped it. I also have a whirring noise in my ears which I am told is tinnitus. I was fine until my stomach upset - now I have come off all medication and supplements until a doctor can get to the bottom of it. I really need to get my stomach fixed, I hope it is medication withdrawal and not something physical. It has obviously made my work life much more difficult. Brainpatch - I think imodium is the best medication around for this problem, unfortunately I am allergic to it. All the other treatments prescribed have made no difference.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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05-10-2013, 12:23 AM
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I know that everyone reacts to medication differently, but I do find the amantadine has helped a lot with fatigue and with my tolerance to noise. Specifically multiple sources of noise. It has relatively few side effects for most people and has been around for almost 50 years. It is even prescribed for children. It is more used in the US for brain injury fan in Canada and the UK but it may be worth a try for those of you who are really struggling with fatigue.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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05-10-2013, 09:35 AM
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Thank you everyone for the kind words and tips! I'm starting to think now that some of this "withdrawal" is actually my PCS symptoms, that were helped by the anti-depressants, coming back. Yesterday I was very sick in the car and the light and noise were bothering me again. These were all things that I had kind of forgotten about since started Effexor 6 weeks ago or so. The fatigue is pretty bad too but that could be a combination of things right now.
Amantadine and l-tryptophan will be things I will look into once everything has settled down and I know what I am left with. I started medication because of anxiety and over-stimulation issues, not depression, so if that becomes a problem again I will look at my options. I feel like I've gone back a couple months in my recovery and hope that that is not the case. Next week will be better and I will get more of an understanding what's going on. I hope everyone has a great day! CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world. Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances. Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident. The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful! My brain WANTS to heal itself... I just have to let it and stop trying to get better! |
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05-10-2013, 10:23 AM
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Quote:
You are right to think this perhaps. Since stopping Cymbalta I have more fatigue, headaches, a new form of tinnitus, and sure enough when I was really tired last night the lights bothered me. However, the Cymbalta had pushed me forwards I think, as I am working four days a week and my job involves a lot of driving as well. I am functioning a lot better now. I also got my bloods back and they are all clear, which makes me wonder that the Cymbalta has caused the diarrhea perhaps.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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