Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 05-19-2013, 07:22 AM #1
NormaW NormaW is offline
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Default New Prism Glasses need direction

I just got my prism glasses on Friday and was told to start wearing them slowly, starting with 2 hours a day. I have prism sunglasses and prism reading glasses. The first 1/2 hour seemed fine and I had them on for about 1 1/2 hours the first day. The second day I was a passenger in a car and my vision doubled and was blurry. Is this normal or does it mean I had them on too long. I can't get over how distorted things sometimes look, it like looking in those funky mirrors at the fair. Anyone have different experiences.
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Old 05-19-2013, 09:36 AM #2
Mokey Mokey is offline
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I was told to wear them full time right from the beginning. Distorted vision etc. will occur because you are retraining the brain to see in a different way. I think it took me a good three or four weeks to really notice a benefit in terms of reading and feeling better. Some people adapt right away.
You may want to revisit the idea of wearing them for short periods of time to start. your brain will be required to jump back and forth and I wonder if that is a good thing! I think I would try 100%. Studies on prisms in glasses show that people (even without a brain injury) have a very quick adaptation time.
Perservere. I think it should make a difference!!
Hope so.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 05-19-2013, 04:20 PM #3
berkeleybrain berkeleybrain is offline
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Perhaps your vision is also difficult as a passenger in a moving vehicle? I have been told that if you have vision difficulties (binocular vision, for me), tracking moving objects while riding in a car would elicit motion sickness and headaches.

For me, the prism glasses at 100% took four weeks to notice a difference, and even now, I am struggling. It is better, but slow progress.

Don't hesitate to contact your neuro-opthalmologist! They can provide advice based on your feedback.

Good luck!
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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