Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 05-22-2013, 06:32 PM #1
DFayesMom DFayesMom is offline
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Default How to Deal with Unavoidable Stress

My husband and I are going through a lot right now. I would go into details, but it's too much. Writing about it would just make it so much worse!


Good news is that my antidepressant is working and I feel like myself again. Bad news is that we are in such a stressful predicament that I had to force feed myself dinner tonight and feel like my heart is going to spasm right out of my chest. I feel like there is nothing to help me. My husband is probably worse off than I am in this situation, so I'm just doing everything I can to support him, but it's really all out of my hands. I have control over so little in my life right now!


A week ago I would have spent the evening in hysterical tears, so this is progress, but I just don't know how to deal with all of this. My husband and I really need to talk through our situation, but I am so avoiding it! So is he. It's not good, but I guess it's temporary self preservation. But it can only be temporary. I feel like I'm just waiting for the situation to resolve itself, hoping I won't have to make a decision!


I don't know exactly what I'm asking but any advice would be welcome. Thanks.
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 05-22-2013, 06:34 PM #2
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I'm also going through a lot right now at home and in my life. I think stress is this vicious cycle coupled with the injury. I am also thinking of going on an anti depressant or anti anxiety med. But I dont know what to do really. Would also like to hear from others. Do you also mean that the antidepressants have helped wiht your physical concussion symptoms? Thank you. Take Care.
Quote:
Originally Posted by DFayesMom View Post
My husband and I are going through a lot right now. I would go into details, but it's too much. Writing about it would just make it so much worse!


Good news is that my antidepressant is working and I feel like myself again. Bad news is that we are in such a stressful predicament that I had to force feed myself dinner tonight and feel like my heart is going to spasm right out of my chest. I feel like there is nothing to help me. My husband is probably worse off than I am in this situation, so I'm just doing everything I can to support him, but it's really all out of my hands. I have control over so little in my life right now!


A week ago I would have spent the evening in hysterical tears, so this is progress, but I just don't know how to deal with all of this. My husband and I really need to talk through our situation, but I am so avoiding it! So is he. It's not good, but I guess it's temporary self preservation. But it can only be temporary. I feel like I'm just waiting for the situation to resolve itself, hoping I won't have to make a decision!


I don't know exactly what I'm asking but any advice would be welcome. Thanks.
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Old 05-22-2013, 07:24 PM #3
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DFayesMom,
I'm sorry to hear you are having such a rough time.

I wish I had some advice for you, but I really don't. I went through some unavoidable stress in January when my mother passed away unexpectedly. I had to drive 6 hours to be with my Dad and family, plus attend the visitations and funeral, never mind grieve.

There was no magic answer to how I survived it. It wasn't pretty. It was brutal and in some ways, I'm still trying to recover from that set back.

I did my best to "steal moments" for myself whenever I could. Just a moment to close my eyes, plus my ears and just be, even for a second or two.

Without knowing details and I don't need details... all I can suggest is just breathe and know whatever it is you are dealing with won't always be like it is right now in this moment. Something will change, even if only a slight bit. Sometimes that's all we need, is just a tiny shift to make it bearable.

Take care and know you're not alone.
Starr
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Old 05-22-2013, 08:19 PM #4
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Default Antidepressants

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Originally Posted by bluehiroko View Post
I'm also going through a lot right now at home and in my life. I think stress is this vicious cycle coupled with the injury. I am also thinking of going on an anti depressant or anti anxiety med. But I dont know what to do really. Would also like to hear from others. Do you also mean that the antidepressants have helped wiht your physical concussion symptoms? Thank you. Take Care.
Hey there blue,

I strongly recommend antidepressants to those that need them, as I believe they can correct a chemical imbalance in the brain. That's what happened to me. I was suffering from a low-level depression for much of the time after my second concussion, but I was so out of sorts, I didn't really recognize what was going on.

Before my PCS diagnosis, I went on a low dose of Wellbutrin to see if it would help me feel less lethargic (as I couldn't figure out what was possibly wrong with me), but I went off the Wellbutrin after my diagnosis because I told my doctor I wasn't depressed anymore, now that I knew what was wrong with me and that I wasn't just losing my mind! Well, as soon as stress entered my life, I completely broke down. I think the concussions have made my brain less resilient to stress. I'm normally my husband's rock, and so this was unusual for me. I felt so lethargic, I could barely do anything! I was just miserable and very unstable. I was constantly in tears. I knew I needed meds. I started the lower dose of Wellbutrin, and when I was still struggling after two weeks, I had the doctor up my dosage. Two weeks after that, I felt like my normal self again.

Did it help with my physical PCS symptoms? Um, that's complicated. I no longer have my cognitive symptoms or headaches to deal with, and when I did, I think the dose was too low to help, if it even would have. BUT some of the symptoms I did have--lethargy and lack of stamina--were 100 times worse when I was feeling depressed. I even think I felt foggier than I do now (and I thought I'd largely gotten over that!) So yes, it does help with some symptoms if you are depressed because the depression is probably contributing to your symptoms and you don't even realize it! I think it's worth trying something to see if it helps.

Finding the right medication can be trial and error, so don't give up if the first one doesn't work out! Also make sure not to abruptly stop taking an antidepressant. Some of them you need to be weaned off of to avoid withdrawal symptoms.

I'm not on anything for anxiety. I feel like most of those drugs make me feel tired, and I can't afford to have that, because I am low-energy as it is. Maybe there's something that wouldn't increase my lethargy, but I'm not sure.

Good luck to you!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 05-22-2013, 08:25 PM #5
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Default That is rough!

Quote:
Originally Posted by "Starr" View Post
DFayesMom,
I'm sorry to hear you are having such a rough time.

I wish I had some advice for you, but I really don't. I went through some unavoidable stress in January when my mother passed away unexpectedly. I had to drive 6 hours to be with my Dad and family, plus attend the visitations and funeral, never mind grieve.

There was no magic answer to how I survived it. It wasn't pretty. It was brutal and in some ways, I'm still trying to recover from that set back.

I did my best to "steal moments" for myself whenever I could. Just a moment to close my eyes, plus my ears and just be, even for a second or two.

Without knowing details and I don't need details... all I can suggest is just breathe and know whatever it is you are dealing with won't always be like it is right now in this moment. Something will change, even if only a slight bit. Sometimes that's all we need, is just a tiny shift to make it bearable.

Take care and know you're not alone.
Starr
I'm so sorry about your mom. I can't imagine dealing with that! I can see why you feel like it set you back.

I keep trying to remember that we are going to get through this, that it could be so much worse! I've gotten over feeling sorry for myself and hopeless, but now I just feel anxious about the unknowns and afraid of making bad decisions.
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 05-23-2013, 05:10 AM #6
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Default 3rd party to help you?

Hi DFMom,

So sorry to hear of your stress. And, I know there is unavoidable stress in life too.

Any 3rd party to help? Counselor or clergy -- if you have a church or faith family you belong to.

These are just some thoughts.

Wishing you well.

Sincerley,

pm
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 05-23-2013, 10:20 AM #7
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Quote:
Originally Posted by DFayesMom View Post
I don't know exactly what I'm asking but any advice would be welcome. Thanks.
Sorry to hear of your struggles. Some things I find useful include:

It actually may help to write about the stressors. Many are unavoidable but this may help identify resolution for some of them.

I practice gentle yoga. I'd recommend a good studio that incorporates the mindfulness meditation component. Most fitness centers that offer yoga classes just try to see how many poses they can get through in an hour, and ignore the restorative experience part of the practice.

Mindfulness meditation; this can allow your mind to reflect on the source of the discomfort. It won't make the stressor factors go away but can make it easier to deal with them.

Massage therapy. I find this reduces the physical reaction to stress (tense muscles) as well as the "brain chatter".

I concur with Poetrymom if you have clergy or some sort of spiritual advisor to consult with, that may be helpful.

Wishing you peace.

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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 05-23-2013, 07:59 PM #8
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Start small and give yourself a chance for success. For the more overwhelming issues a impartial third party is a good idea. Try to be patient a kind to yourself you are injured and there is nothing you can do about that.
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49, Male Married, PCS since June 2012, headaches, Back pain, neck pain, attention deficit, concentration deficit, processing speed deficit, verbal memory deficit, PTSD, fatigue, tinutitus, tremors.

To see the divine in the moment.
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Old 05-24-2013, 05:16 AM #9
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Talking There is help out there

I live in Wisconsin. I am 49 yrs old. Stress has always been a part of my life. I can't tell you the last day I didn't have some sort of stresser. Hy husband is losing his eyesight, he is down to less than 1%. To makes things worse, he has diabetes, and all the complications, like diabetic neuropathy, facial twitching, irritabilty, and being very short tempered. Then you throw my issues into the ring. I had a concussion three years ago and I am still dealing with the after effects. Memory issues, cognitive problems, the inability to speak at times, and then there is the stuttering. Last but not least, a hysterectomy last year. Menapause has bee rearing its ugly head. But is getting betterwith the help of a non hormonal treatment.
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Old 05-27-2013, 07:40 AM #10
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Counseling actually did help me a lot.

My wife was nearly killed and still suffers from a whole host of problems from a head-on crash she barely survived over 3 years ago. She suffered Diffuse Axon injury, and her injuries were deemed catastrophic.

It has been extremely stressful and anxious for the longest time.

Playing music has helped me too. Not just any musical instrument, I chose something that has a more ancient, meditative and quieting quality.

I share this with you. You may be inspired to seek some kind of personal, meditative quieting activity which suits your circumstances and personality.
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