Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 05-29-2013, 12:19 PM #1
drod313 drod313 is offline
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Default Was doing great until....

I went on vacation with a ton of friends this past Memorial Day Weekend. We were drinking everyday, pretty heavily. I had been drinking prior to vacation and even though it seemed like my hangovers lasted a bit longer than usual, after a few days I would feel fine again.

This time it's different. I woke up on Monday when we were leaving and felt very miserable. Eye site was off constant headache/head pressure. Things have gotten slightly better since I got home on Monday, but they have not changed significantly. I am back at work and my eyes are still very sensitive to light/the computer screen. I am contemplating calling my physical therapist and starting back up with that, but I don't know if I should wait it out and see if things get better like they usually have been.

I am still taking 30 mg nortryptiline before bed every night, but besides that I am just taking my usual vitamins. Protein shake every morning and vitamin C. Since I go back on Monday I have been taking a couple ibuprofun every few hours to help with the headaches. Any recomendation would be much appreciated. Last time I saw my Neurologist and Physical Therapist, both said it was ok to start drinking again and that I should do my best to live my life normally again. It worked for a long time, I was feeling great and symptom free until this weekend for some reason. I really hope this does not put me back to square one.

Any help is appreciated.

Thank you,
D
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anon22217 (05-29-2013)
Old 05-29-2013, 12:26 PM #2
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I think you may need to stay off the alcohol permanently or at least in moderation.

I was also wondering, did you have light sensitivity with your PCS and did nortriptyline help with it?

Take care.

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Originally Posted by drod313 View Post
I went on vacation with a ton of friends this past Memorial Day Weekend. We were drinking everyday, pretty heavily. I had been drinking prior to vacation and even though it seemed like my hangovers lasted a bit longer than usual, after a few days I would feel fine again.

This time it's different. I woke up on Monday when we were leaving and felt very miserable. Eye site was off constant headache/head pressure. Things have gotten slightly better since I got home on Monday, but they have not changed significantly. I am back at work and my eyes are still very sensitive to light/the computer screen. I am contemplating calling my physical therapist and starting back up with that, but I don't know if I should wait it out and see if things get better like they usually have been.

I am still taking 30 mg nortryptiline before bed every night, but besides that I am just taking my usual vitamins. Protein shake every morning and vitamin C. Since I go back on Monday I have been taking a couple ibuprofun every few hours to help with the headaches. Any recomendation would be much appreciated. Last time I saw my Neurologist and Physical Therapist, both said it was ok to start drinking again and that I should do my best to live my life normally again. It worked for a long time, I was feeling great and symptom free until this weekend for some reason. I really hope this does not put me back to square one.

Any help is appreciated.

Thank you,
D
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Old 05-29-2013, 12:41 PM #3
drod313 drod313 is offline
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Originally Posted by bluehiroko View Post
I think you may need to stay off the alcohol permanently or at least in moderation.

I was also wondering, did you have light sensitivity with your PCS and did nortriptyline help with it?

Take care.
Yes, one of the last things that got better for me were my eyes. I always felt like there was constant pressure behind them, also felt the light sensitivity issues. I don't think I was put on nortriptyline for this reason because I was already taking it to help with my PCS. But eventually I did start to feel completely better and the light sensitivity was the one thing that always kind of seemed to come and go, but it wasnt anything that I couldnt handle. I'd much rather have light sensitivity then that floaty feeling or loss of balance feeling. But nortriptyline has really helped IMO. Yeah I am definitely going to be staying away for alcohol, this has been a very scary experience.
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Old 05-29-2013, 01:10 PM #4
DFayesMom DFayesMom is offline
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Default Setback

Sorry you've had this setback. You might want to see a neuro-Opthamologist, if you haven't already, it you continue to feel like your eyes are a big problem. A regular opthamologist will NOT be able to help, so don't bother with that.

Alcohol--if you can't drink in moderation, don't drink. That's my opinion. I can still enjoy a margarita or a beer or two, but that's it. Anything more and I'll just feel bad the next day. Who wants that? With PCS, you just run the risk of overdoing it in every area of your life, so listening to your body is key. If you feel like you might be overdoing it--whether drinking, exercising, or using a computer--you probably are. I've learned from experience unfortunately!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 05-29-2013, 03:30 PM #5
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How long have you been on the nortriptyline and when do you plan on tapering off it?

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Originally Posted by drod313 View Post
Yes, one of the last things that got better for me were my eyes. I always felt like there was constant pressure behind them, also felt the light sensitivity issues. I don't think I was put on nortriptyline for this reason because I was already taking it to help with my PCS. But eventually I did start to feel completely better and the light sensitivity was the one thing that always kind of seemed to come and go, but it wasnt anything that I couldnt handle. I'd much rather have light sensitivity then that floaty feeling or loss of balance feeling. But nortriptyline has really helped IMO. Yeah I am definitely going to be staying away for alcohol, this has been a very scary experience.
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Old 05-29-2013, 05:41 PM #6
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Default alcohol and PCS

Hi there,

Mark and Defaysmom are spot on about alcohol and the PCS brain.

I know it's hard to be moderate if your friends are all drinking, but you only have one brain, and even if you get better, I think there are things that will be harder to handle and our recovering brains just can't take much of it.

My husband makes wine, but I've learned I just can't have it the way I used to enjoy it. Or, in the future, if I do, one glass at a sitting. Personally, I'm really afraid of how I will react to alcohol now, and I just can't risk a set back.

I hope you recover and feel well soon.

Sincerely,

pm
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 05-29-2013, 01:46 PM #7
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Originally Posted by drod313 View Post
Any help is appreciated.

Thank you,
D
Lifestyle changes are ways we can help ourselves to get better. Abstaining from alcohol is one of those recommended lifestyle changes.

http://www.msktc.org/tbi/factsheets/...c-Brain-Injury

http://www.tbicommunity.org/resource...Spring2008.pdf
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 05-29-2013, 03:22 PM #8
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drod,

Your neuro and PT do not know what they are talking about when they said you can start drinking again. Alcohol is a toxin to the brain. A hangover is the brain struggling from the trauma of the toxicity of the alcohol even after the alcohol has been cleared from the body.

Nobody can say if this has put you back at square one but my money says it has left you at close to square one.

If your vitamin regimen is a protein shake and vitamin C, your brain is seriously lacking in nutrition. B vitamins are known to help with hangovers because they also help a struggling brain.

I wish I could help you more but first you need to help yourself.

My best to you.
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