Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 06-05-2013, 05:40 PM #1
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I tried it for only a few days and it made me feel like a zombie too. Apparently nortryptilene is less of a zombie drug but similar.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 06-05-2013, 11:02 PM #2
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I also tried amitriptyline for headaches and insomnia. It didn't alleviate either of these symptoms for me.
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Old 06-05-2013, 11:09 PM #3
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I took it as well. Maybe it was too early after the accident, but I felt very numb and disconnected from myself, my thoughts and feelings. A zombie.

I also found that valium was horrible as well. It didn't provide enough deep, REM sleep. I slept but wasn't rested. A zombie.

I have found propanolol and trazodone work for headache and sleep.

Best of luck!
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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Old 06-07-2013, 03:13 AM #4
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It looks like I wont be needing the Amitriptyline now.

The Cymbalta was causing excess stomach acid, so regular use of Gaviscon seems to has settled the diarrhea. Now I can continue on the minimum dose of Cymbalta which is enough to erradicate some of the lingering symptoms of PCS.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 06-10-2013, 12:37 AM #5
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I've been on it for months with good results. Improved sleep and reduction of headache, slowly, paired with other therapies.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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Old 06-10-2013, 01:42 PM #6
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MsRIO that is good to hear, but I am going to avoid switching meds because I have one which really works. Did you also get back to work?
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 06-10-2013, 07:55 PM #7
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I just started this med a few days ago (10 mg), and so far I can't tell whether it's making a difference. I haven't noticed any negative side effects, which is good, but I'll need more time before I can say whether it's helping with sleep and/or headaches.
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Male, 39 years old, suffering from PCS as a result of being rear-ended on 1/23/11. Part-time philosophy professor.
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Old 06-10-2013, 11:34 PM #8
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Quote:
Originally Posted by mouse1 View Post
MsRIO that is good to hear, but I am going to avoid switching meds because I have one which really works. Did you also get back to work?
My start date is June 17.

That's after six weeks of (in my opinion) gruelling rehab. I'm so exhausted I ache. Barely can post here anymore. Fried.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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Old 06-11-2013, 03:07 PM #9
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Quote:
Originally Posted by MsRriO View Post
My start date is June 17.

That's after six weeks of (in my opinion) gruelling rehab. I'm so exhausted I ache. Barely can post here anymore. Fried.
Good luck with work, and pace yourself because it is tiring.

I firstly did 1 day, then 2 per week and stayed at 3 days for 2 months, before eventually settling on 4 days per week.

I am coping pretty much, but still have some symptoms all be it to a lesser extent.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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