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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#1 | ||
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I have prism lenses and do daily vision exercises coupled with weekly sessions at the Binocular Clinic.
The first 2-3 months my pain was intolerable, often triggering migraines. I took tramadol for the migraines, and sometimes I had vertigo with migraines. No fun. I was told to work towards threshold, but not to put myself in pain. I would ice, take advil and rest my eyes to manage the pain. Now in month 5, I have tapered off from daily to three times a week exercises. I need to drive my sons around, and I couldn't with daily exercises. Then two weeks ago, my son was in the hospital with a bacterial infection and a good friend passed away from metastatised breast cancer, so I took a two week break from all eye exercises and clinic. Last week I went into the clinic after this long break, and I didn't have a migraine after the session! And I haven't had one doing my exercises! For me, I have learned to not work too hard and not to worry too much. There are days when I only read and look at the computer for 1 hour total. So I walk, bake, try to talk with my sons. If I don't rest my eyes, then, as Mark says, my symptoms flare. What does your neuro-ophthalmologist say?
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness. Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine. Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs. Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014. |
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#2 | ||
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He told me to stop doing the exercises, use a cold compress four times a day to reduce inflammation, and use eyedrops (like I don't already do that), on addition to just resting. I also made an appointment to see him next week.
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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#3 | ||
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I met with my OT this morning and he has adjusted my schedule. I am going to continue with the vision therapy but slow it down.
He also want me to curb all of my activities to see if I can get on a better footing. He actually wrote out exactly what I should do for the next 2 weeks and I am to follow it exactly..... It can be hard when you start getting back into life not to just jump forward. With children there are always thing that come up and it can be really tiring and you feel guilty about saying you are not well enough. He also set up expectations for the next 3 months which he said may or may not be achieved but it gives me something to reach for. I am going to see the neuro opthomologist next month and I have just received my prism sun glasses. I find it hard not to be in the same city and able to access services as I would like. I hope things go well. |
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#4 | |||
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Sorry you're going through this.
They have me doing vestibular/vision therapy at my rehab. I do it half heatedly and skip it sometimes because I just don't buy it. Maybe I'd buy it if it didn't make me feel worse. I just think, our bodies tell us things. Why do we purposely ignore those signals? As soon as I feel dizzy I quit. My prism glasses have helped immensely in dealing with regular life. I don't do the exercises at home. By days end I'm highly symptomatic as it is. Not adding to it. WCB is sending me to a regular ophthalmologist tomorrow actually, because my local optometrist recommended vision therapy and they want a second opinion. Doubt a regular ophthalmologist will know much about it. Hope you get some rest and relief.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
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"Thanks for this!" says: | DFayesMom (06-12-2013) |
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#5 | ||
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I might his wrong, but I thought I was told that the vestibular and vision therapy is suppose to make you feel sick (fun). The idea being that you make yourself dizzy and your system tries to right it. It kinds of resets itself.
I am going to ask more questions the next time I see them. |
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#6 | ||
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With vestibular therapy, dizziness is okay, but headaches increasing is not okay. I did vestibular therapy, but most of my problems were related to my vision, so it only helped minimally. My vision therapy is totally separate thing, different therapist. I was told that doing vestibular and vision therapy at the same time would be too much. That makes sense to me.
I'm still pretty much having pain just by any exposure to light at all, but it seems like the pain goes away more quickly when I put on a sleep mask then the first few days. I'm hoping by coddling myself, not driving, not watching TV, not reading more than a couple minutes, not looking at my iPhone screen for more than five minutes twice-daily, resting frequently with my eyes covered, and using a cool compress five times per day, I will get back to a more manageable pain level quickly. Fingers crossed!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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#7 | ||
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I have been gradually getting better. Right now I've been on my iPhone for probably seven minutes without any eyestrain. Soon as I start to feel eyestrain, I stop any activity immediately and put on a sleep mask until the pain goes away, if I can. Sometimes that's not possible, and I just shut my eyes as much as I can until I get an opportunity to rest. A cold compress over the sleep mask seems to help, though I think it could just be the resting the helps. I've been resting for my daughters two hour nap in the afternoon. I hope to be back to my previous level of eyestrain and photosensitivity in a couple weeks. Less would be better, but I'm just trying to be realistic! I have an appointment with my neuro op tomorrow, so i'm interested To see what he has to say. He will not be running any tests on me though! I'm putting my foot down.
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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