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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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06-21-2013, 09:49 PM | #1 | ||
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it DOES get better but in very small steps..progress is measured in weeks not in days!!!! and it is a marathon!!
Thank you to everyone in this forum especiallly Mark for the above words of wisdom! |
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07-01-2013, 06:09 AM | #2 | |||
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Ed,
I've struggled with this question a lot since my accident. I can relate to you. We are a group that has plenty of time to think since our activities are so limited. I found this and I keep reading it over and over. "We must be willing to let go of the life we planned so as to have the life that is waiting for us." Joseph Campbell I feel parts of me are forever changed. However, I can look back six months, three months, and see little parts of me coming back. It's a longgggggggg process. It's the emotional equivalent of a twisty loop de loop roller coaster for me. Every day is different for me. My neuropsychologist, which is great, advised me to get a hobby that doesn't highlight any of my disabilities. Huge help since I don't read, no tv, no movies, no music, no games. I do love looking at pictures. And reading here helps me cope but makes me sick. I have no magic answer, but hope you find your peace, maybe a hobby, someone to email daily. Peace, Jace |
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07-01-2013, 05:22 PM | #3 | |||
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Living Daze,
You are right, PCS is like being lost in the woods and then you recognise a path that you know and you start to come out of it. The trouble is it is a very long, often painful and tiring path, full of ups and downs. As you go along the path, things about yourself and those who are close to you come back, and senses, activities, skills and understanding that you were once familiar with return to you. Before you know it you eventually know that you are going to find your way and recover.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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06-22-2013, 09:52 AM | #4 | |||
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Quote:
i only then began to experience symptoms april 9, why the delay in onset of symptoms? Also, considering how long its been now, have my symptoms / condition climaxed or is it possible for my condition to get worst?, aside the fact i have anxiety in which i have been managing now with meds. ED |
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06-22-2013, 12:04 PM | #5 | |||
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From what I understand people can (rarely) experience PCS for the first time up to 6 months after trauma.
My symptoms were delayed for about 3 to 4 weeks after head trauma in November 2012, but got progressively worse until Christmas, but then I collapsed in the New Year and things got worse again in January and worst of all in February. I would say that my symptoms have got progressively better after the 4 month point, and I am now nearly better with the help of medication. We all react differently, and no injury is ever the same, it is a rollercoaster, but eventually symptoms will come and go, until gradually they all disappear or are there in a greatly reduced form. You can get 100% better, keep yourself calm and try not to worry - it just takes time!
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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06-22-2013, 12:49 PM | #6 | |||
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Junior Member
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Quote:
ED |
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06-22-2013, 01:00 PM | #7 | |||
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Hit my head off the metal corner of my car door very hard, drove for 30 minutes and started getting dizzy. I then pulled over and lost consciousness and woke up with four people around me, went to hospital via ambulance and needed CT scan due to bradycardia.
Symptoms started coming and going/reducing 3 to 4 months after accident, but I thought I was nearly better at Christmas before getting worse than ever in January/February. I am now working/driving and leading a full life with the help of medication and pacing myself as I get better. You have plenty more ups and downs ahead of you but you will get there. Keep a diary to log symptoms/triggers/positives/negatives/fatigue levels/sleep pattern/good and bad days. This will help you see what works and will also help you record your progress. Good luck!
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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06-22-2013, 03:38 PM | #8 | |||
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im having a bad day, depressed, crying a lot, family going through my mind, feelings of dispare, not sure i will get through this, my gut feeling im like this for life and that why i cry and think about my family...what have i done?
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06-22-2013, 05:01 PM | #9 | |||
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It isn't easy, I used to think the same thing, is it permanent? The answer is PCS is a temporary condition, although it can take a long time to get over for some of us. Stay positive, ignore the sceptics and believe you will get better!
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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06-22-2013, 05:11 PM | #10 | |||
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Junior Member
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Quote:
ed Last edited by ED; 06-23-2013 at 08:47 AM. |
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