Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-25-2013, 07:48 PM #21
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Hi everyine just need to know does it get bettter and
will i get my old life back?

ED
Hi just got back from store and a lot of people noise
it did not go very well for me, felt dizzy, out touch
with the eviroment, things happening to fast, confusion
setting in, it a terrifying feeling. Are these normal symptoms?

ED
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Old 06-25-2013, 08:47 PM #22
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Default Stores are a big challenge

I really limit the amount of time I spend in a store. The lighting is awful, there is too much stimulation and you will get sensory overload.

I also get really sick and dizzy from scanning the shelves looking for items.

Large crowds are hard, there are too many things to deal with. You also may find the same thing with conversations, I can speak with one or two people but once there are more people, I get really tired and trying to keep up is too hard.

My process know for the store is to walk in, go around the perimeter and pick maybe one aisle to go down. Unfortunately you do not get everything you need but you learn to make do.

Good Luck, it does get better, but try and limit your symptoms any way that works.
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MVA March 2012 pcs, post traumatic vision syndrome, convergence insufficiencies, vision mid line shift syndrome, gaze stabilization and vision tracking. Fatigue, headaches and sore eyes are main issues.

Current activities: chiro, massage, prism glasses, vision therapy, yoga, meditation, aquafit classes and rest.....
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ED (06-26-2013)
Old 06-26-2013, 08:47 AM #23
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By going to a store with lots of noise, people, bright lighting, and hundreds of choices about what to buy you are overloading your brain.

If you can you should avoid Supermarkets and other busy or noisy places until a lot of your symptoms reduce.

I found the Supermarket a great recovery marker as I got better, because each time I went the symptoms decreased.

For the time being, I think you should stay indoors and be getting quiet rest and relaxation.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 06-26-2013, 05:49 PM #24
GingerandBella GingerandBella is offline
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Unhappy Having a hard time.

I am having such a hard time with my PCS today. I am almost 6 mo. in and feel like it will never get better either. My neuro said I would have some bad days - and I thought the days I was having WERE the bad ones - daily headaches, unable to concentrate - then out of nowhere - dizziness, fogginess and just feeling out of it. Everything is an effort. There are no warnings - I try and do everything right - eat well, exercise - it does not make a difference. I read each post and can relate to each symptom. Just a really bad day
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Old 06-26-2013, 06:36 PM #25
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Quote:
Originally Posted by GingerandBella View Post
I am having such a hard time with my PCS today. I am almost 6 mo. in and feel like it will never get better either. My neuro said I would have some bad days - and I thought the days I was having WERE the bad ones - daily headaches, unable to concentrate - then out of nowhere - dizziness, fogginess and just feeling out of it. Everything is an effort. There are no warnings - I try and do everything right - eat well, exercise - it does not make a difference. I read each post and can relate to each symptom. Just a really bad day
I complete understand what u r going through because im going
through the same, daily headache, dizzy, fatigue, noise sensitive,
problems with environmental awareness. Im in my 4 month post injury
and third month with symptoms post injury. there are many times
i think this will never get better, but as u can from this forum
there is hope, people do get better, so for me i hold on to
hope. I wish u a complete recovery, never give up hoping, the day
will come and u will feel better.

ED
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Old 06-27-2013, 10:54 AM #26
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Default Thank you

Quote:
Originally Posted by ED View Post
pr

I complete understand what u r going through because im going
through the same, daily headache, dizzy, fatigue, noise sensitive,
problems with environmental awareness. Im in my 4 month post injury
and third month with symptoms post injury. there are many times
i think this will never get better, but as u can from this forum
there is hope, people do get better, so for me i hold on to
hope. I wish u a complete recovery, never give up hoping, the day
will come and u will feel better.

ED
Thank you for the kind reply Ed.

Today is a new day and a better one than yesterday. It is nice to have a support group such as this as it is very frustrating trying to explain what is happening to you because they don't understand - I did not understand before this happened. I think also - that most injuries/surgeries etc. clear up quite quickly in comparison to a concussion - and I feel that I am always complaining when someone asks how I feel.
I hope that you are having a good day today - you certainly made mine better. Take care.
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Old 06-28-2013, 05:13 PM #27
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Hi everyine just need to know does it get bettter and
will i get my old life back?

ED
got home and i feel out of touch with reality, do u get this feeling or sensation, like lack environmental perception..does anyone feel this way?

ED
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Old 06-29-2013, 02:56 AM #28
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Default Yes.

Hi Mark.

I think it is extremely unlikely that you will not get your old life back.

I had concussion - it has taken me about five months to get back to 90%, but most people take only a few weeks or up to three months.

I have full confidence I will get back to 100%, or I feel a better diagnosis might be that any change will be almost imperceptible on a day to day level.

There are a lot of people on this forum that have ongoing problems but they are the exception rather than the rule. You will get there.

xo Raili
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Old 06-29-2013, 04:53 AM #29
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Originally Posted by Raili Simojoki View Post
Hi Mark.

I think it is extremely unlikely that you will not get your old life back.

I had concussion - it has taken me about five months to get back to 90%, but most people take only a few weeks or up to three months.

I have full confidence I will get back to 100%, or I feel a better diagnosis might be that any change will be almost imperceptible on a day to day level.

There are a lot of people on this forum that have ongoing problems but they are the exception rather than the rule. You will get there.

xo Raili
Very well said, I agree with you 100%!
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 06-30-2013, 05:32 PM #30
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Quote:
Originally Posted by Raili Simojoki View Post
Hi Mark.

I think it is extremely unlikely that you will not get your old life back.

I had concussion - it has taken me about five months to get back to 90%, but most people take only a few weeks or up to three months.

I have full confidence I will get back to 100%, or I feel a better diagnosis might be that any change will be almost imperceptible on a day to day level.

There are a lot of people on this forum that have ongoing problems but they are the exception rather than the rule. You will get there.

xo Raili
If u dont me asking how did u get injured?

ED
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