Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 07-29-2013, 01:42 PM #1
Noland Noland is offline
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Default Interesting new treatment-potentially promising

I wanted to share the following info which comes from a trial involving two very reputable hospitals in the Boston area.

The video and article are worth a few minutes of your time.

The trial is early in its stages but is looks interesting. Fingers crossed for all of us!


http://www.wcvb.com/health/blockbust...z/-/index.html
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GlassHead (07-29-2013), SpaceCadet (07-29-2013)
Old 07-29-2013, 05:10 PM #2
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Very exciting, however i failed to understand how it should work.

Was lucky to find an article explaining the underlying mechanism better.

http://dspace.mit.edu/handle/1721.1/66182

-GlassHead
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Old 07-29-2013, 06:28 PM #3
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My doctor in California used infrared light therapy on me and it worked great. At first i was experiencing extreme brain fog for about 20 min, but when the fog cleared, i felt like a new person. I'm headed back out there soon to resume therapy (we're also doing LENS neurofeedback)...so I'll let you all know how it went.
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 07-29-2013, 06:46 PM #4
litliwlowa litliwlowa is offline
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Quote:
Originally Posted by GlassHead View Post
Very exciting, however i failed to understand how it should work.

Was lucky to find an article explaining the underlying mechanism better.

-GlassHead
This sounds so promising!! Looks to be the research is more geared to acute injury. Still, it would be wonderful if this works to diminish the life long long term residuals in those with acute injuries.
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Old 07-30-2013, 03:26 AM #5
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Good articles, great video.

Does sound like good treatment; similar to treatment for Seasonal Affective Disorder - light therapy used then too, successfully for the depressive times.

Some links showing how therapy is useful and stopping has had return of the reduced cognitive changes:

An Abstract.

A Full Article.

It is a treatment, and very useful, and hopefully can be brought to the fore, for home use for us all.

Best Wishes..............
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Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses.
Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings.
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Old 07-30-2013, 12:48 PM #6
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Quote:
Originally Posted by SpaceCadet View Post
My doctor in California used infrared light therapy on me and it worked great. At first i was experiencing extreme brain fog for about 20 min, but when the fog cleared, i felt like a new person. I'm headed back out there soon to resume therapy (we're also doing LENS neurofeedback)...so I'll let you all know how it went.
Hello,
I was reading your signature and noticed the not being able to watch TV or use computer. My son is now able to watch, understand, and ENJOY watching TV. He is now also to use an IPad. It seems to be his best source of entertainment. So there is hope that this will come back to you too!
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September 16, 2011 my son collapsed on the football field due to a subdural hematoma. He was life flighted to the hospital where they did emergency surgery. At first the DR said that he thought everything would be fine. Then his brain started swelling three days later, he had midline shift to the right side cavity and then the brain herniated onto the brain stem. They did not think he would make it. They stabilized until family could come. After family got there, he began to stabilize. We were counseled to "let him go" because the brain damage would be extensive. We chose life. He was in a coma for 48 days and then a vegetative state for another 58 days. He was considered semi-conscious Jan. 5, 2012. It is now July 2013. He has no short term memory, still is now walking with a walker, and has issues with expressive language, and is incontinent.
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Old 07-30-2013, 01:52 PM #7
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Quote:
Originally Posted by Concussion View Post
Good articles, great video.

Does sound like good treatment; similar to treatment for Seasonal Affective Disorder - light therapy used then too, successfully for the depressive times.

Some links showing how therapy is useful and stopping has had return of the reduced cognitive changes:

An Abstract.

A Full Article.

It is a treatment, and very useful, and hopefully can be brought to the fore, for home use for us all.

Best Wishes..............
I wonder if that means the effects are not permanent and treatments will need to be continued forever. Or, do you just need to administer it for longer to achieve permanent results.

Like I said, my doctor has this infrared device and used it on me once. That day I felt 30% better, but I've taken a really long break since my last treatment and everything has come crashing back on me.

I'm gonna call my doc and ask the above questions today. If anyone else wants me to ask him something, just post it on here.

If this therapy works for me and the treatments need to be kept up for life, i will find a way to obtain one of those devices lol.
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 07-30-2013, 02:01 PM #8
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Quote:
Originally Posted by supermansmom View Post
Hello,
I was reading your signature and noticed the not being able to watch TV or use computer. My son is now able to watch, understand, and ENJOY watching TV. He is now also to use an IPad. It seems to be his best source of entertainment. So there is hope that this will come back to you too!
Thank you for giving me hope. It's been a long two years and i still haven't given up. One thing my neuropsychologist told me was it could take 4-7 years to achieve maximum recovery. Just keep on keeping on.

Btw, i was just in Elko earlier this year. I work part-time for a moving company and one of our drops were in Elko.

The customer didn't tip us...WAS THAT YOU!? Lol...Just kidding.
__________________
What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.

Last edited by SpaceCadet; 07-30-2013 at 03:03 PM. Reason: Sorry for the mispelled words. I'm writing this from a new phone.
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