Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 08-16-2013, 05:10 PM #1
chocolatebell chocolatebell is offline
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Default Tomorrow is 1 year

This is my first post, but I have been on here a lot in the past year. Thank you for sharing, your stories have been a huge help to me.

I am a horse trainer, and last year I was bucked off one of my training horses and was knocked out. It was my first diagnosed concussion (probably 7th looking back with what I know now), my neck and head CT was clear so they told me to take it easy, and I could return to work a week after my symptoms went away.

A week after my accident my husband left for a trip and I was on my own with my 15 month old son. I was still "taking it easy" i.e. not riding, not cleaning stalls, but I was still taking care of my son, cleaning the house, running errands, etc.

The day after my husband left my mom had to drive me to the ER because I became so dizzy I thought I was going to pass out. They told me to make sure someone was with me and my son until the dizziness went away.

By the end of my husband's 10 day trip I was so sick I could barely make it to the bathroom on my own, and someone else had to take care of my son 24/7. It took 3 months for me to be able to play with my son, and be alone with him for 10-15 minutes.

My main symptoms were headache, dizziness, nausea. I also have visual tracking issues, other visual issues, neck issues, some memory and cognitive issues which are not severe.

The things I found most helpful:

Vestibular therapy (I had to wait 6 months before I could tolerate vestibular therapy, but it was so helpful I was starting to work by month 7)

Medications (My physiatrist sucked, pressured me to go back to work as a horse trainer before I could drive, read, etc. and he refused to prescribe any medications, so I went 4 months before I was given anything to help prevent headaches, or help me sleep) Nortriptyline for migraine prevention, Relpax as an abortive, atenolol (I developed high BP during this time) and birth control to curb the hormonal migraines.

Rest - My idea of rest the first week was driving my son around, shopping with my niece and nephew, etc. I didn't realize that my brain needed rest, not just my body.

Learn to deal with worry and stress - The book "The Power of Self Coaching" helped me to learn how to deal with stress and stop worrying. It was life changing for me. Stress is inevitable with an injury like this, and with nothing else I could do my mind went crazy with worry for a while. My mom put this book on my kindle with the text to speak feature.

Find your triggers so you can avoid them. I learned that caffeine triggered that foggy feeling, and that made it much easier to give it up.

I started back to work 10 hours a week in march, and went VERY SLOWLY, adding about 6 hours a month, and this week was my first full week!! My migraines are controlled by the medication. I missed a dose last week and had a headache within 8 hours. My dizziness and fogginess is gone as long as I don't overdo it.

I can do pretty much everything I did before, but some things still have to be in small doses. I am riding again. I have given up training unbroke and problem horses, and am only taking clients with horses who I want to work with. I have shifted the focus of my ranch to raising beef cattle, and boarding.

It was a terribly long and arduous process, but overall I like who I am now better than who I was before. I got a chance to look at my life honestly, find what I value, and learn some much needed life lessons. I learned that I have a wonderful, supportive family, and I am the most thankful for that.
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berkeleybrain (08-17-2013), ED (08-18-2013), Mokey (08-17-2013), NormaW (08-17-2013), poetrymom (08-18-2013)
Old 08-16-2013, 06:15 PM #2
"Starr" "Starr" is offline
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Congratulations chocolatebell on the progress you've made in a year! You should be proud of yourself.

I was compelled to reply as a fellow equestrian... also injured by a fall from a horse (with helmet! probably wouldn't be here without it!), also my first diagnosed concussion, but certainly not my first.

Good for you for being back to riding again... I am not yet (18 months since my fall) and its still unclear when I will be back... I've not made any dramatic progress in a year and a half and my rehab doc feels I should be able to walk consistently without falling before I ride again.

Thanks for posting your story... its a good one!

Starr
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Mokey (08-17-2013)
Old 08-17-2013, 08:36 AM #3
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Thanks for sharing that....and best wishes for continued healing! It is a difficult journey.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 08-18-2013, 11:18 PM #4
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Default Great story

Hey there ChocolateBell

You could copy and paste your story here into the thread about PCS and hope.

There is never enough hope when one is suffering from a brain injury.

thanks for sharing!

Sincerely,

pm
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 08-23-2013, 07:49 AM #5
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I was glad to hear your story. I was in a bad car accident (was rear ended so hard that the frame buckled in my F350 Dually) and it has been 8 months. I run (ran) a therapeutic riding center with 18 horses. Since the accident, I have not been able to ride or teach, my two passions. I too, have crappy doctors but can't change at this point or it could delay my LTD claim.

I am just glad to hear that you are riding again, gives me some hope that I can ride again as well. I am learning carriage driving since my vertigo and balance is still off. That way, I still can interact with my horses.
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