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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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how much do I owe my family to suffer forever? am breaking down anddont know what to do. nausea wretching confusion stomach problems, and on and on and no doctor can help
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"Thanks for this!" says: | kay2187 (08-25-2013) |
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Hi,
I am so sorry you are having such a hard time. It is a long haul through one step forward and a couple back. It sounds like you could use some help. It is really important to have an advocate and someone who can give you perspective when you are feeling awful. I am sure your family is more than happy to have you anyway and things will get better. I know this just sounds like platitudes but I just wanted to say I hear your pain and just wanted to say I understand. God Bless, I will be thinking and hoping for the best for you. Remember that it is normally to have bad days and feel really at your end. Rest but don't give up.
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MVA March 2012 pcs, post traumatic vision syndrome, convergence insufficiencies, vision mid line shift syndrome, gaze stabilization and vision tracking. Fatigue, headaches and sore eyes are main issues. Current activities: chiro, massage, prism glasses, vision therapy, yoga, meditation, aquafit classes and rest..... |
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Hi Mark,
I understand. I can't fix anything for you, but I understand. There are many of us struggling. Rely on the support of your friends here, that get it, during dark times. Wishing peace and comfort for you, Jace
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. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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"Thanks for this!" says: | poetrymom (08-22-2013) |
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#4 | ||
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Hang in there. Sometimes we need to take it minute by minute. And then another minute. You will get through this. Wishing you much strength.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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#5 | |||
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Hi Mark,
Here's wishing you some peace. I don't have answers either, but I do remember wondering why I could feel so horrible and tired and why I was alive. See if gentle music helps. Classical music is very calming for me now. Nature sounds for real or on cd Find any gentle thing that helps you relax. Take care pm
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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#6 | ||
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I'm so sorry for your troubles. What has helped me is to focus on the moment by moment or day by day mentality. Nothing is forever. Truly.
Nausea is the worse- icing the neck, ginger/chamomile tea, and bubbly-seltzer water have helped. Each day will bring changes-it's just hard to stay positive when you hit a rough patch. Be kind to yourself---
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness. Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine. Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs. Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014. |
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"Thanks for this!" says: | poetrymom (08-22-2013) |
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#7 | ||
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thank you so much guys. it has been too many years and I just break sometimes but all of your comments mean something special to me and I want to say thank you. and I appreciate all of the comments. I just wonder why a head injury could affect almost every aspect of my body, digestion, muscles, etc crazy
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#8 | |||
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Mark,
Reach out to us on those days. If you look at my past posts I've had those dark days too and it's these amazing people here that keep me from completely losing it. Brain injuries are a unique cruelty. Peace, Jace
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. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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#9 | |||
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Junior Member
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Hey Mark,
I've been away for awhile. We are trying to figure out why my son keeps blacking out....but they can't find a reason why. I can understand you are having a rough, painful time and being strong and brave for everyone seems very difficult to always maintain for everyone. As the mom, I can't feel yours or my son's pain, but I can feel the heartbreak and the sadness. I sometimes have to fake the everything is going to be fine attitude until I have the strength to actually believe it. But you have an inner strength which I have seen in your posts and I have relied upon this strength. You have hit a rough patch, but you are STRONG and you can do this. Let me be her for you, just as you have been here for me. Together we can see this through.
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September 16, 2011 my son collapsed on the football field due to a subdural hematoma. He was life flighted to the hospital where they did emergency surgery. At first the DR said that he thought everything would be fine. Then his brain started swelling three days later, he had midline shift to the right side cavity and then the brain herniated onto the brain stem. They did not think he would make it. They stabilized until family could come. After family got there, he began to stabilize. We were counseled to "let him go" because the brain damage would be extensive. We chose life. He was in a coma for 48 days and then a vegetative state for another 58 days. He was considered semi-conscious Jan. 5, 2012. It is now July 2013. He has no short term memory, still is now walking with a walker, and has issues with expressive language, and is incontinent. . Last edited by supermansmom; 08-29-2013 at 10:31 PM. Reason: read post wrong gave bad advise based on wrong understanding. |
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