Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 09-23-2013, 01:42 PM #1
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Thanks, everyone I am going to see specialists and am getting rest and trying to let my brain heal and also taking vitamins. My energy level is still up and down. I am still having some tingling and light headedness as well. I am limiting my time on the computer and have been trying to rest and sleep. I am also going to see specialists and taking it easy at home.
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Old 09-24-2013, 12:45 AM #2
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There's lots of good advice and hope here. I just wanted to add my two cents because it's all I have to offer.

To your thread question. Yes! It gets better.

Time is the best healer. Peace is a close second. Acceptance will lead to peace and time will do the rest. I really believe that.

I felt like life was over when pcs was its worst. It's far from over. It's beautiful but in new ways. Just breathe.
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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Marina22 (09-24-2013)
Old 09-26-2013, 12:51 AM #3
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I am 4 years into this thing, 5 will be in February. I have had at the very least 3 but up to 14 concussions in that time.

No, for me it did not go away. It has gotten better, it has gotten worse, it has more or less balanced out. It doesn't necessarily get better, but you learn how to live with the new you.

Such as I dim the lights when I go into a room if possible or completely turn off the fluorescents. I have switched my computer and phone to inverted colors. I have a nice pair of dark sunglasses for driving. I try never to drive at night. I try to sleep a lot, or catch up on the weekends. I stay super organized to help with stress. I never sit in a perfectly dark room because that causes my eyes to strain. I do not exercise, which I know is not ideal, but any loss of breath or increase in heart rate gives him a worse headache. I do not read books, I listen to them. I try to stay out of really cold breezes or really hot temperatures. (Unfortunately my desk at work is right under the AC vent, so that is a constant source of pain right now.) I try to eat healthy food, and avoid soda, msg, and other pain triggers. I had nausea for about 6 months each time after 2 of my concussions, and then randomly for a couple months at a time at random intervals. Dizziness comes and goes as if on a whim. I also see stars at increasing intervals. I have constant but sometimes worse and sometimes less painful pain in my head. I have difficulty remembering things. I have difficulty speaking sometimes.

But, in answer to your question, though the help of my close friends, and family. I have been able to reach a place where I can live my daily life and I know exactly the consequences of each action. I will go to that concert, but it will take me 1 week to be able to function afterwards. I will go to the movie theater, but it will take me 3 days to recover. I will get up an hour early to help out a family member but that means I have to go to bed 2 hours early. ETC....

It does not end, it is not pleasant, but we learn to cope.

Good luck! Do NOT get a 2nd concussion!!!!!!!!!!!!!!!
In Christ,
Margarite
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Fell off a horse in late winter of 2009 blacked out for a couple seconds, had amnesia for 10 hours (still don't remember this time), had 2 CT scans, 2 MRI's, 1 MRA all negative. Since the first concussion I have continually knocked my head into different things purely by accident or from being stupid. These many concussions over a short period of time have caused
constant migraines, nausea, and dizziness/lack of balance.
Migraine triggers are:
light sensitivity (especially to florescent or bright lights)
sound sensitivity (especially to high pitched or loud sounds)
temperature sensitivity (especially to cold or extreme heat)
activity (especially if breathing increases or head is jostled)
pressure on head (sinuses, hats, headbands, sunglasses, pony-tails)
lacks or quality (food, sleep, water)
tension (stress, tight muscles, tired eyes, sickness)
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