Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-26-2013, 12:51 AM #8
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Margarite Margarite is offline
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Join Date: Jun 2010
Location: USA
Posts: 162
10 yr Member
Margarite Margarite is offline
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Join Date: Jun 2010
Location: USA
Posts: 162
10 yr Member
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I am 4 years into this thing, 5 will be in February. I have had at the very least 3 but up to 14 concussions in that time.

No, for me it did not go away. It has gotten better, it has gotten worse, it has more or less balanced out. It doesn't necessarily get better, but you learn how to live with the new you.

Such as I dim the lights when I go into a room if possible or completely turn off the fluorescents. I have switched my computer and phone to inverted colors. I have a nice pair of dark sunglasses for driving. I try never to drive at night. I try to sleep a lot, or catch up on the weekends. I stay super organized to help with stress. I never sit in a perfectly dark room because that causes my eyes to strain. I do not exercise, which I know is not ideal, but any loss of breath or increase in heart rate gives him a worse headache. I do not read books, I listen to them. I try to stay out of really cold breezes or really hot temperatures. (Unfortunately my desk at work is right under the AC vent, so that is a constant source of pain right now.) I try to eat healthy food, and avoid soda, msg, and other pain triggers. I had nausea for about 6 months each time after 2 of my concussions, and then randomly for a couple months at a time at random intervals. Dizziness comes and goes as if on a whim. I also see stars at increasing intervals. I have constant but sometimes worse and sometimes less painful pain in my head. I have difficulty remembering things. I have difficulty speaking sometimes.

But, in answer to your question, though the help of my close friends, and family. I have been able to reach a place where I can live my daily life and I know exactly the consequences of each action. I will go to that concert, but it will take me 1 week to be able to function afterwards. I will go to the movie theater, but it will take me 3 days to recover. I will get up an hour early to help out a family member but that means I have to go to bed 2 hours early. ETC....

It does not end, it is not pleasant, but we learn to cope.

Good luck! Do NOT get a 2nd concussion!!!!!!!!!!!!!!!
In Christ,
Margarite
__________________


Fell off a horse in late winter of 2009 blacked out for a couple seconds, had amnesia for 10 hours (still don't remember this time), had 2 CT scans, 2 MRI's, 1 MRA all negative. Since the first concussion I have continually knocked my head into different things purely by accident or from being stupid. These many concussions over a short period of time have caused
constant migraines, nausea, and dizziness/lack of balance.
Migraine triggers are:
light sensitivity (especially to florescent or bright lights)
sound sensitivity (especially to high pitched or loud sounds)
temperature sensitivity (especially to cold or extreme heat)
activity (especially if breathing increases or head is jostled)
pressure on head (sinuses, hats, headbands, sunglasses, pony-tails)
lacks or quality (food, sleep, water)
tension (stress, tight muscles, tired eyes, sickness)
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