Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 10-02-2013, 04:31 AM #1
Living_Dazed's Avatar
Living_Dazed Living_Dazed is offline
Member
 
Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
10 yr Member
Living_Dazed Living_Dazed is offline
Member
Living_Dazed's Avatar
 
Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
10 yr Member
Default Being treated as less

Hello all you still smart important people,

I've learned that I have a new superpower since my injury. I have the ability to detect a rottenness in people. It's unfortunate that a handful of people I've come in contact with have displayed behavior that they didn't prior to my brain injury.

It's as if they think I can't understand or don't see it. My intelligence is still there, everything just works differently, and slowly now. I know when someone is being cruel or bad.

I've been a child advocate for years. You can't just be kind when others witness you with kids. It has to be all the time and come from respect of others.

I'm seeing a side of people I didn't before maybe because it was obvious I had all my faculties working correctly. I've met amazingly kind people and wolves in sheeps clothing.

I've always had the attitude of be kind to others, they'll be kind to you. That doesn't always work but mostly in my life. Now I feel even though I'm kind, some people talk down to me or are outright cruel. I lost my voice, my thoughts don't come fast anymore and my lack of confidence is obvious. I'm afraid if I do speak up and it all comes out wrong they'll think I've lost my mind and admit me.

I'm rarely alone. 100 % of the time someone has driven me. 98% of the time someone is with me. It's the other 2% of the time that this happens.

Any thoughts on this? Am I lacking perspective?

If no one told you lately, you are smart, and you are important.. I couldn't get through this without all of you here.
__________________

.


*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
Living_Dazed is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (10-02-2013), Marina22 (10-02-2013), MiaVita2012 (10-03-2013), Mokey (10-02-2013), tamisue (10-08-2013)

advertisement
Old 10-02-2013, 07:49 AM #2
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hi living and dazed

Consider that ability as a good thing to happen. It will keep the rotten people further away from your life. Maybe those people were there all along, and you now see people for what they are. I sure want to believe in the good in people too. However, these days, we need to be careful. I stay away from the news as much as I can too. Take care, ginnie
ginnie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Consider (11-25-2013), Living_Dazed (10-07-2013), Mokey (10-02-2013), poetrymom (10-05-2013), tamisue (10-08-2013)
Old 10-02-2013, 08:17 AM #3
music-in-me music-in-me is offline
Member
 
Join Date: Aug 2013
Posts: 127
10 yr Member
music-in-me music-in-me is offline
Member
 
Join Date: Aug 2013
Posts: 127
10 yr Member
Default

"I'm rarely alone. 100% of the time someone has driven me. 98% of the time someone is with me. It's the other 2% of the time that this happens."

Hello Living Dazed:

I was just wondering that if the only time you are recognizing the cruelness of others is when you're alone with them is because you feel anxious and awkward ( I do) having to answer for yourself when your speech is halting or when nothing comes out.
I know that there are people who are inappropriate ( whether intentionally or unintentionally) and try to make you feel bad.

I think maybe you could ask yourself this: "Is this person's opinion of me really that important right now?" When we have people who are close to us, and care about us, they tend to be more understanding. Maybe the one's who make you feel bad are just not really concerned about your well-being, and you don't need their opinions to define you.

I still believe in goodness in people, and have come to learn it firsthand in some people I didn't know well before this injury, and seen less compassion from those I did know well and thought would be more concerned. Go figure. I guess I would say to take the good from the people who are genuine, and disregard those who would make you feel bad with a grain of salt.

And by the way, you are smart and you are important, too. Take care, music-in-me
music-in-me is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (10-02-2013), Living_Dazed (10-07-2013)
Old 10-02-2013, 12:13 PM #4
thedude58 thedude58 is offline
Member
 
Join Date: Dec 2012
Location: Ontario
Posts: 120
10 yr Member
thedude58 thedude58 is offline
Member
 
Join Date: Dec 2012
Location: Ontario
Posts: 120
10 yr Member
Default

I know EXACTLY what you mean. I have lost all patience with stupid people who think they are smart... They see it in your (my) eyes and they back off, or so I suspect. I pity the fool tries to pull a fast one now, and yes, they are out there. I get no compassion, and compassion escapes me.
__________________
Brain Fog, Short Term Memory, Depression, Anxiety, Sleep Apnea
thedude58 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Living_Dazed (10-07-2013), Marina22 (10-02-2013), poetrymom (10-05-2013), tamisue (10-08-2013)
Old 10-02-2013, 02:07 PM #5
Lightrail11's Avatar
Lightrail11 Lightrail11 is offline
Member
 
Join Date: Mar 2012
Location: Phoenix AZ
Posts: 531
10 yr Member
Lightrail11 Lightrail11 is offline
Member
Lightrail11's Avatar
 
Join Date: Mar 2012
Location: Phoenix AZ
Posts: 531
10 yr Member
Default

Quote:
Originally Posted by thedude58 View Post
I have lost all patience with stupid people who think they are smart... They see it in your (my) eyes and they back off, or so I suspect. I pity the fool tries to pull a fast one now, and yes, they are out there. I get no compassion, and compassion escapes me.
Not to criticize since we all find different paths, but my injury has led me to a very different way of seeing things. I received so much love and support during my hospital stay and recovery, I now find it easier to be tolerant of others.

If you want others to be happy, practice compassion. If you yourself want to be happy, practice compassion.”

- Dalai Lama
__________________
What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
Lightrail11 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Living_Dazed (10-07-2013), Marina22 (10-02-2013), OwlinFL84 (10-02-2013)
Old 10-02-2013, 07:24 PM #6
Marina22 Marina22 is offline
Junior Member
 
Join Date: Mar 2012
Location: Seattle, WA
Posts: 78
10 yr Member
Marina22 Marina22 is offline
Junior Member
 
Join Date: Mar 2012
Location: Seattle, WA
Posts: 78
10 yr Member
Default

I also know EXACTLY what you all are talking about
been there, done that

However, I don't think people try to hurt us emotionally on purpose. They just don't know what we are going through and they think that we are imagining at least half of our symptoms.

I get lots of "oh come on, get there faster" or "i know, it's all in your head, just don't think about it" or "you are just weak, if I were you..." or even "stop imagining your symptoms" and stuff like that, the list goes on.

All this stuff used to get me really mad , but then I realized that I cannot expect people to understand - they don't. If you've never been there, you have no idea how it feels to be there. And lots of people tend to think extremely high of themselves. That's where "if I were you..." comes from.

So, what all of my concussions have taught me is not to judge anybody. I can't wish this on people. So, why judge them for not understanding? I hope, that all makes sense... and, please, don't judge me - it's just my opinion...
Marina22 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Living_Dazed (10-07-2013), music-in-me (10-05-2013)
Old 10-02-2013, 11:43 PM #7
berkeleybrain berkeleybrain is offline
Member
 
Join Date: Dec 2012
Posts: 205
10 yr Member
berkeleybrain berkeleybrain is offline
Member
 
Join Date: Dec 2012
Posts: 205
10 yr Member
Default

This accident reminds me of all the lessons my mother tried to teach me.

Her favorite: "Don't complain if you don't explain." So I try to explain to those who don't get it. Some try to understand. Some dismiss. Most are sympathetic.

I really now get living in the moment/present. Not angry about the past. Not fearful of the future. Just in this moment.

I'm slowly becoming the Buddhist my mom wanted me to be.
I wish you all peace.
__________________
The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
berkeleybrain is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Living_Dazed (10-07-2013), Mokey (10-02-2013), MsRriO (10-06-2013)
Old 10-03-2013, 02:37 PM #8
thedude58 thedude58 is offline
Member
 
Join Date: Dec 2012
Location: Ontario
Posts: 120
10 yr Member
thedude58 thedude58 is offline
Member
 
Join Date: Dec 2012
Location: Ontario
Posts: 120
10 yr Member
Default

Quote:
Originally Posted by Lightrail11 View Post
Not to criticize since we all find different paths, but my injury has led me to a very different way of seeing things. I received so much love and support during my hospital stay and recovery, I now find it easier to be tolerant of others.

If you want others to be happy, practice compassion. If you yourself want to be happy, practice compassion.”

- Dalai Lama
The Dalai Lama is a wise man, but I have no interest in religion. The fact is, after the first two years, since I was 15, I got ZERO support. And compassion? None. No-one understands the internal pain of 40 years of living in a fog. Failing at school, failing at jobs, failing at life in general and being treated like a moron by all the 'normal' people has left me jaded and very angry. From my original post, most of what I said was tongue in cheek... But when I said compassion escapes me, I really meant that I don't get it, its beyond me...
__________________
Brain Fog, Short Term Memory, Depression, Anxiety, Sleep Apnea
thedude58 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Living_Dazed (10-07-2013)
Old 10-04-2013, 11:37 AM #9
Concussion Concussion is offline
Member
 
Join Date: Aug 2012
Location: East Coast
Posts: 259
10 yr Member
Concussion Concussion is offline
Member
 
Join Date: Aug 2012
Location: East Coast
Posts: 259
10 yr Member
Default

My outlook:

I am treating me, as me....and I don't want their sympathy.

I don't want their sadness, I don't want their well wishes.

They don't understand, for the majority of what is occurring... within me... no matter how they seem to be interested in my difficulty.

I appreciate it that they may feel sorrow for my difficulties... or the problems that I may have...... but I don't want their sympathy.

I want them to treat me as they did, before I was injured, and let me adjust as best I can, and just understand that this is me NOW.

I am not being mean, if I seem inattentive, if I seem distracted or uninterested; I am doing My best to either attend to the activity around me or adjust to it..... or finding a way to best remove myself from it as it is causing me enough trouble that I am better off away from it.

If they can understand that, then we can all be happy. And no one needs be sad or upset about it.

Thats what I try to make clear to my wife, her father (the 2 central people in my close environment) and the remainder of our family.

I can accept that people want to be well wishing, but try to let them know they don't need to try, because it only makes me uncomfortable and them too. I am adjusting......... its ok, I'm ok, with this 'thing' thats happened.. TO Me.

Past co-workers get that 'grin', when they see me at the work site, when I pick up my medications ( I used to work at the hospital where the pharmacy is), and they start off with "How are you?" ........ my reply is " I am alive"... its a fact. Then I tell them, to relax, its me, just a different me and I am alive, and adjusting........., then that 'grin' relaxes.

We live on, and thats always good news, how we live on is different for everyone of us, I know, and I have nothing but good wishes for each and everyone of you............

Best Wishes ................
__________________

.
Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses.
Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings.
Concussion is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Living_Dazed (10-07-2013), Marina22 (10-04-2013), Mark in Idaho (10-04-2013), tamisue (10-08-2013)
Old 10-05-2013, 02:20 PM #10
poetrymom's Avatar
poetrymom poetrymom is offline
Member
 
Join Date: Mar 2013
Location: Minnesota
Posts: 398
10 yr Member
poetrymom poetrymom is offline
Member
poetrymom's Avatar
 
Join Date: Mar 2013
Location: Minnesota
Posts: 398
10 yr Member
Default body language

Early on in my injury I found I could really read people's body language really well. It amazed me.

Now that I am much better I don't notice body language like I did at first

Some people will not be nice, and you have a new gift to see that now. Those people, sadly, are not worth your time.

I found that my real friends stayed in touch with me, never doubted my sickness, and my husband was a real rock.

I hope you can keep good, positive people around you all the time. I need that now. I can not handle negativity and crulety at all now.

God bless you!

poetrymom
__________________
[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
poetrymom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Living_Dazed (10-07-2013), Marina22 (10-05-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
What do you do when you're treated like you don't exist? SDFencer Depression 5 12-10-2012 09:40 AM
New to the forum..being treated for MG. Ken0710 Myasthenia Gravis 12 05-08-2011 03:49 PM
Anyone being treated with Topamax? llrn7470 Reflex Sympathetic Dystrophy (RSD and CRPS) 7 06-26-2009 06:02 PM
Hi all treated myself to a new car brandonwall The Stumble Inn 11 03-01-2009 07:59 PM
How I treated myself yesterday.... bizi Bipolar Disorder 2 05-10-2008 12:39 PM


All times are GMT -5. The time now is 09:11 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.