I'm glad for the new forum. I think one of the other problems PCS and MTBI patient's have that frustrates their recovery is they cannot organize their thoughts enough to be advocates for themselves. I am a parent of a PCS 16 year old and he frequently is unable to articulate his symptoms and he used to say he didn't realize he had a headache until hours later and then needed to be told to take medicine. How sad! It still brings tears to my eyes. He is much better and has so much more mental stamina to his day. I caught him running across a field, showing off when there were girls around the other day and yelled at him to stop. He felt good and impulsively ran while playing frisbe. I guess this is good. We will gradually do schoolwork this summer and are planning to have him start as a Junior with his peers. He is reading and listening in class with no symptoms. He wants to run cross country next fall and I am going to do everything in my power to not have him wrestle again!! He still talks about it and i do not have the heart to depress him now. God help me fight that battle. Hugs, best wishes and lots of hope to all you PCS sufferers. You are the heroes and you will get better. Stay on course and be positive. Alot of support is coming your way. Check out this website and new video. www.thehiddenepidemic.com it is very informative.

Hi Nancy,
It's good to hear your son is making such good recovery again. It's a tough battle especially for a young person still in school as he is. I wish him all the best. Thankyou very much for the website. I'll check it out. We had a few other posters over in Child Neurology I think. I often wonder how their children are doing as well. I'm still in a bit of a blur, but it's over 2 years now and I'm finally getting to the stage where I can walk around without feeling dizzy all the time.

take care there,
Lara

Edited to add after I read the site.
Nancy did you get a chance to read the other post I made about TBI and Endocrine issues? The article I just read on the site you gave talks about depression and suicidal thinking after PCS and it really makes me wonder even more about those Endocrine issues.
TBI and Endocrine Issues Post

Edited again... Cancel that last part, Nancy. I just checked the thread more carefully and see you have seen it. That's good!

Lara,
Thanks for comments and support. Sam had his pituitary gland function checked with some bloodwork and other hormone levels were also checked. He had normal results. His serum 100 beta protein was on the normal/high side. He also had an MRI which did not reveal anything abnormal. He is in the classic PCS boat that is taking it's own time to clear. This summer he will start school stuff if symptom free at next appt.
Nancy

I am also glad to see a forum dedicated to TBI/PCS. Listening to first-hand experience in the forums is a great source of info. Google can only take you so far. Hope everyone is getting better (slowly, I'm sure). I like hearing updates from people as it gives everyone hope and helps them stay positive. As for me, I started an light exercise program about a month ago and it has helped with some of my symptoms, like depression. I still don't feel quite right - I feel dizzy and confused sometimes, but its still progress. I feel better if I am not on the computer all day and doing light physical activity like walking around, cleaning the house, etc, but I make my living doing computer work and its not possible for me to take alot of time off right now. Gotta pay the bills :-) The symptoms are not terrible now and I can live with them. I just wish I was able to exercise and lift weights like I used to. Oh well... Best luck to everyone out there with brain injuries.

Hi yannimac, good to meet you!

I'm still having dizzy spells after more than 2 years but just lately it's not been so bad and now I'm beginning to hope that the dizziness might eventually go away altogether. Can only hope. The more I get dizzy the more I panic about falling, so it's been a vicious cycle. Creates a certain amount of inertia.

I'm glad you're doing so much better. Swimming has been no real problem so that's good, but walking and using exercize equipment has been out of the question for me as well for a long while.

take care there,
Lara

I too was very happy to find this area. I've been falling for many years so I'm not sure how many post concussions I've had. I've only been officially diagnosed with one that was last August but I would guess I've had at least one other. And I think its also the one causing part of the other problems I've been having. So its a combo of whats going on with me.

I'm trying to go through all my problems and solve them.

Donna